{"id":74481,"date":"2025-05-26T08:04:02","date_gmt":"2025-05-26T12:04:02","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=74481"},"modified":"2025-05-26T09:32:23","modified_gmt":"2025-05-26T13:32:23","slug":"%d7%9e%d7%90%d7%95%d7%97%d7%93%d7%99%d7%9d-%d7%9c%d7%9e%d7%a2%d7%9f-%d7%94%d7%a2%d7%9c%d7%90%d7%aa-%d7%9e%d7%95%d7%93%d7%a2%d7%95%d7%aa-%d7%aa%d7%9e%d7%99%d7%9b%d7%94-%d7%95%d7%aa%d7%a7%d7%95%d7%95","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/he\/united-for-awareness-support-and-hope-ecdga-patient-family-gathering-2025\/","title":{"rendered":"\u05de\u05d0\u05d5\u05d7\u05d3\u05d9\u05dd \u05dc\u05de\u05e2\u05df \u05de\u05d5\u05d3\u05e2\u05d5\u05ea, \u05ea\u05de\u05d9\u05db\u05d4 \u05d5\u05ea\u05e7\u05d5\u05d5\u05d4 \u2013 \u05de\u05e4\u05d2\u05e9 \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05d5\u05ea\u05d9\u05d4\u05dd \u05e9\u05dc ECDGA \u05dc\u05e9\u05e0\u05ea 2025"},"content":{"rendered":"<p>\u05de\u05e4\u05d2\u05e9 \u05d4\u05d7\u05d5\u05dc\u05d9\u05dd \u05d5\u05d1\u05e0\u05d9 \u05d4\u05de\u05e9\u05e4\u05d7\u05d4 \u05e9\u05dc \u05d4-ECDGA, \u05e9\u05e0\u05e2\u05e8\u05da \u05d4\u05e9\u05e0\u05d4 \u05d1\u05d1\u05e8\u05e6\u05dc\u05d5\u05e0\u05d4, \u05d4\u05e4\u05d2\u05d9\u05e9 \u05d7\u05d5\u05dc\u05d9\u05dd, \u05de\u05d8\u05e4\u05dc\u05d9\u05dd \u05d5\u05d0\u05e0\u05e9\u05d9 \u05de\u05e7\u05e6\u05d5\u05e2 \u05d1\u05ea\u05d7\u05d5\u05dd \u05d4\u05e8\u05e4\u05d5\u05d0\u05d4 \u05de\u05db\u05dc \u05e8\u05d7\u05d1\u05d9 \u05d4\u05e2\u05d5\u05dc\u05dd. \u05ea\u05de\u05d5\u05e0\u05ea \u05d4\u05e7\u05d1\u05d5\u05e6\u05d4 \u05d4\u05d6\u05d5 \u05de\u05e9\u05e7\u05e4\u05ea \u05d0\u05ea \u05e8\u05d5\u05d7 \u05d4\u05e7\u05e9\u05e8 \u05d5\u05d4\u05e7\u05d4\u05d9\u05dc\u05ea\u05d9\u05d5\u05ea \u05d4\u05de\u05d0\u05e4\u05d9\u05d9\u05e0\u05ea \u05d0\u05ea \u05d4\u05d0\u05d9\u05e8\u05d5\u05e2 \u05d4\u05e9\u05e0\u05ea\u05d9 \u05d4\u05d6\u05d4.<\/p>\n<p>\u05d9\u05d7\u05d3, \u05d0\u05e0\u05d5 \u05d7\u05d5\u05dc\u05e7\u05d9\u05dd \u05d9\u05d3\u05e2, \u05de\u05e6\u05d9\u05e2\u05d9\u05dd \u05ea\u05de\u05d9\u05db\u05d4 \u05d5\u05de\u05d7\u05d6\u05e7\u05d9\u05dd \u05d0\u05ea \u05d4\u05e7\u05d5\u05dc \u05d4\u05e7\u05d5\u05dc\u05e7\u05d8\u05d9\u05d1\u05d9 \u05e9\u05dc \u05d0\u05dc\u05d4 \u05d4\u05e1\u05d5\u05d1\u05dc\u05d9\u05dd \u05de\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8. \u05ea\u05d5\u05d3\u05d4 \u05dc\u05db\u05dc \u05d4\u05de\u05e9\u05ea\u05ea\u05e4\u05d9\u05dd \u05e9\u05ea\u05e8\u05de\u05d5 \u05dc\u05d4\u05e4\u05d9\u05db\u05ea \u05d4\u05de\u05e4\u05d2\u05e9 \u05d4\u05d6\u05d4 \u05dc\u05de\u05e9\u05de\u05e2\u05d5\u05ea\u05d9 \u05d5\u05d1\u05e2\u05dc \u05d4\u05e9\u05e4\u05e2\u05d4.<\/p>\n<p>\u05dc\u05de\u05d9\u05d3\u05e2 \u05e0\u05d5\u05e1\u05e3 \u05e2\u05dc \u05d4\u05de\u05e9\u05d9\u05de\u05d4 \u05d5\u05d4\u05ea\u05d5\u05db\u05e0\u05d9\u05d5\u05ea \u05e9\u05dc\u05e0\u05d5, \u05d1\u05e7\u05e8\u05d5 \u05d1\u05d0\u05ea\u05e8 <a class=\"\" href=\"http:\/\/www.erdheim-chester.org\/he\/\" target=\"_new\" rel=\"noopener\">www.erdheim-chester.org<\/a>.<\/p>\n<p><em>\u05d4\u05d1\u05e8\u05d9\u05ea \u05d4\u05e2\u05d5\u05dc\u05de\u05d9\u05ea \u05dc\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8 (ECDGA) \u05d0\u05d9\u05e0\u05d4 \u05de\u05e1\u05e4\u05e7\u05ea \u05d9\u05d9\u05e2\u05d5\u05e5 \u05e8\u05e4\u05d5\u05d0\u05d9, \u05d0\u05d1\u05d7\u05e0\u05d5\u05ea \u05d0\u05d5 \u05d8\u05d9\u05e4\u05d5\u05dc\u05d9\u05dd. \u05db\u05dc \u05d4\u05ea\u05d5\u05db\u05df \u05e0\u05d5\u05e2\u05d3 \u05dc\u05de\u05d8\u05e8\u05d5\u05ea \u05de\u05d9\u05d3\u05e2 \u05d1\u05dc\u05d1\u05d3. \u05d0\u05e0\u05d0 \u05e4\u05e0\u05d5 \u05dc\u05d0\u05d9\u05e9 \u05de\u05e7\u05e6\u05d5\u05e2 \u05d1\u05ea\u05d7\u05d5\u05dd \u05d4\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea \u05d1\u05db\u05dc \u05e9\u05d0\u05dc\u05d4 \u05e8\u05e4\u05d5\u05d0\u05d9\u05ea.<\/em><\/p>","protected":false},"excerpt":{"rendered":"<p>This year\u2019s ECDGA Patient and Family Gathering in Barcelona brought together patients, caregivers, and medical professionals from around the world. This group photo captures the spirit of connection and community [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":74482,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[2251],"tags":[2397,2256,375,378,2660,387,2662,2252,2659,2495,2491,2497,2661,2602,2402],"class_list":["post-74481","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-social-posts","tag-barcelona2025","tag-bellvitgehospital","tag-ecdawareness","tag-ecdcommunity","tag-ecdconnections","tag-ecdga","tag-ecdhope","tag-erdheimchester","tag-globalunity","tag-histiocytosisawareness","tag-patientfamilygathering","tag-rarediseasesupport","tag-strongertogether","tag-supportandscience","tag-teamecdga"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/74481","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/comments?post=74481"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/74481\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media\/74482"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media?parent=74481"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/categories?post=74481"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/tags?post=74481"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}