{"id":5072,"date":"2020-02-25T23:30:43","date_gmt":"2020-02-25T23:30:43","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=5072"},"modified":"2025-08-23T20:21:24","modified_gmt":"2025-08-24T00:21:24","slug":"%d7%99%d7%95%d7%9d-%d7%94%d7%9e%d7%97%d7%9c%d7%95%d7%aa-%d7%94%d7%a0%d7%93%d7%99%d7%a8%d7%95%d7%aa-2023","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/he\/rare-disease-day-2020\/","title":{"rendered":"\u05d9\u05d5\u05dd \u05d4\u05de\u05d7\u05dc\u05d5\u05ea \u05d4\u05e0\u05d3\u05d9\u05e8\u05d5\u05ea 2020"},"content":{"rendered":"<h4>\u05e7\u05e8\u05d9\u05d0\u05d4 \u05dc\u05db\u05dc \u05d4\u05e4\u05e2\u05d9\u05dc\u05d9\u05dd!<\/h4>\n<p><em>29 \u05d1\u05e4\u05d1\u05e8\u05d5\u05d0\u05e8 2020<\/em>, \u05d9\u05d4\u05d9\u05d4 \u05d9\u05d5\u05dd \u05d4\u05de\u05d7\u05dc\u05d5\u05ea \u05d4\u05e0\u05d3\u05d9\u05e8\u05d5\u05ea \u05d4\u05d1\u05d9\u05e0\u05dc\u05d0\u05d5\u05de\u05d9 \u05d4-30, \u05d4\u05de\u05ea\u05d5\u05d0\u05dd \u05e2\u05dc \u05d9\u05d3\u05d9 EURORDIS. \u05d1\u05d9\u05d5\u05dd \u05d6\u05d4 \u05d5\u05d1\u05e1\u05d1\u05d9\u05d1\u05d5\u05ea\u05d9\u05d5 \u05d9\u05e7\u05d9\u05d9\u05de\u05d5 \u05de\u05d0\u05d5\u05ea \u05d0\u05e8\u05d2\u05d5\u05e0\u05d9 \u05d7\u05d5\u05dc\u05d9\u05dd \u05de\u05de\u05d3\u05d9\u05e0\u05d5\u05ea \u05d5\u05d0\u05d6\u05d5\u05e8\u05d9\u05dd \u05d1\u05db\u05dc \u05e8\u05d7\u05d1\u05d9 \u05d4\u05e2\u05d5\u05dc\u05dd \u05e4\u05e2\u05d9\u05dc\u05d5\u05d9\u05d5\u05ea \u05dc\u05d4\u05e2\u05dc\u05d0\u05ea \u05d4\u05de\u05d5\u05d3\u05e2\u05d5\u05ea.&nbsp;&nbsp;<\/p>\n<p>\u05db-300 \u05de\u05d9\u05dc\u05d9\u05d5\u05df \u05d1\u05e0\u05d9 \u05d0\u05d3\u05dd (\u05db-5% \u05de\u05d4\u05d0\u05d5\u05db\u05dc\u05d5\u05e1\u05d9\u05d9\u05d4) \u05e1\u05d5\u05d1\u05dc\u05d9\u05dd \u05de\u05de\u05d7\u05dc\u05d4 \u05e0\u05d3\u05d9\u05e8\u05d4. \u05de\u05ea\u05d5\u05da \u05d0\u05d5\u05ea\u05dd 5%, \u05e4\u05d7\u05d5\u05ea \u05de-1,000 \u05d1\u05e0\u05d9 \u05d0\u05d3\u05dd \u05d1\u05e8\u05d7\u05d1\u05d9 \u05d4\u05e2\u05d5\u05dc\u05dd \u05e1\u05d5\u05d1\u05dc\u05d9\u05dd \u05de\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8.&nbsp;&nbsp;<\/p>\n<p><strong>J<\/strong><strong>\u05d4\u05e6\u05d8\u05e8\u05e4\u05d5 \u05dc-ECD Global Alliance \u05d1\u05de\u05d0\u05de\u05e5 \u05dc\u05d4\u05d2\u05d1\u05d9\u05e8 \u05d0\u05ea \u05d4\u05de\u05d5\u05d3\u05e2\u05d5\u05ea \u05dc\u05de\u05d7\u05dc\u05d5\u05ea \u05e0\u05d3\u05d9\u05e8\u05d5\u05ea, \u05e2\u05dc \u05d9\u05d3\u05d9 \u05e9\u05d9\u05ea\u05d5\u05e3 \u05d4\u05d7\u05d5\u05d5\u05d9\u05d4 \u05e9\u05dc\u05db\u05dd \u05e2\u05dd ECD.<\/strong>&nbsp;&nbsp;<\/p>\n<p>\u05d4\u05e0\u05d5\u05e9\u05d0 \u05d4\u05de\u05e8\u05db\u05d6\u05d9 \u05e9\u05dc \u05d9\u05d5\u05dd \u05d4\u05de\u05d7\u05dc\u05d5\u05ea \u05d4\u05e0\u05d3\u05d9\u05e8\u05d5\u05ea 2020 \u05d4\u05d5\u05d0 \u201c<em>\u05e9\u05d5\u05d5\u05d9\u05d5\u05df \u05dc\u05de\u05d9\u05dc\u05d9\u05d5\u05e0\u05d9 \u05d4\u05d0\u05e0\u05e9\u05d9\u05dd \u05d4\u05d7\u05d9\u05d9\u05dd \u05e2\u05dd \u05de\u05d7\u05dc\u05d4 \u05e0\u05d3\u05d9\u05e8\u05d4!<\/em>\u201d&nbsp;&nbsp;<\/p>\n<ul>\n<li>\u05d0\u05d9\u05dc\u05d5 \u05e7\u05e9\u05d9\u05d9\u05dd \u05e0\u05ea\u05e7\u05dc\u05ea\u05dd \u05d1\u05d4\u05dd \u05db\u05e9\u05e0\u05d9\u05e1\u05d9\u05ea\u05dd \u05dc\u05e7\u05d1\u05dc \u05e9\u05d9\u05e8\u05d5\u05ea\u05d9 \u05d1\u05e8\u05d9\u05d0\u05d5\u05ea?&nbsp;<\/li>\n<li>\u05d0\u05d9\u05dc\u05d5 \u05e7\u05e9\u05d9\u05d9\u05dd \u05de\u05e9\u05e4\u05d9\u05e2\u05d9\u05dd \u05e2\u05dc \u05de\u05e9\u05e4\u05d7\u05ea\u05da \u05d1\u05db\u05dc \u05d4\u05e0\u05d5\u05d2\u05e2 \u05dc\u05d0\u05d9\u05e0\u05d8\u05e8\u05d0\u05e7\u05e6\u05d9\u05d5\u05ea \u05d5\u05e4\u05e2\u05d9\u05dc\u05d5\u05d9\u05d5\u05ea \u05d7\u05d1\u05e8\u05ea\u05d9\u05d5\u05ea?&nbsp;<\/li>\n<li>\u05de\u05d4 \u05d4\u05d9\u05d9\u05ea \u05e8\u05d5\u05e6\u05d4 \u05e9\u05d4\u05e2\u05d5\u05dc\u05dd \u05d9\u05d3\u05e2 \u05e2\u05dc \u05d4\u05d7\u05d9\u05d9\u05dd \u05e2\u05dd \u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8?<\/li>\n<\/ul>\n<p>How will you show your stripes? Share with us on the media, by tagging @ECDGA on Facebook and #ECDawareness&nbsp;on any site. Contact us to put your story, quote, photo, and\/or post on our public Facebook page.<\/p>\n<p>\u05e9\u05ea\u05e4\u05d5 \u05d0\u05ea \u05d4\u05e2\u05dc\u05d5\u05df \u05d4\u05d6\u05d4 \u05d1\u05e2\u05de\u05d5\u05d3\u05d9 \u05d4\u05de\u05d3\u05d9\u05d4 \u05d4\u05d7\u05d1\u05e8\u05ea\u05d9\u05ea \u05e9\u05dc\u05db\u05dd \u05d0\u05d5 \u05e9\u05dc\u05d7\u05d5 \u05d0\u05d5\u05ea\u05d5 \u05d1\u05d3\u05d5\u05d0\"\u05dc \u05dc\u05d0\u05e0\u05e9\u05d9 \u05d4\u05e7\u05e9\u05e8 \u05e9\u05dc\u05db\u05dd!&nbsp;<a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2020\/02\/Facebook-RDD-2020.png\" target=\"_blank\" rel=\"noopener\"><img loading=\"lazy\" decoding=\"async\" class=\"aligncenter wp-image-5074 size-medium\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2020\/02\/Facebook-RDD-2020-300x251.png\" alt=\"\" width=\"300\" height=\"251\"><\/a><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>CALLING ALL ADVOCATES! February 29, 2020, will be the 30th International Rare Disease Day coordinated by EURORDIS. On and around this day, hundreds of patient organizations from countries and regions [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":5073,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,54,59,53,58,56,69,57,68,75],"class_list":["post-5072","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fatigue","tag-hairy-kidney","tag-pain","tag-rare-disease-day"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/5072","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/comments?post=5072"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/5072\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media\/5073"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media?parent=5072"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/categories?post=5072"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/tags?post=5072"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}