{"id":46482,"date":"2025-03-21T16:02:29","date_gmt":"2025-03-21T20:02:29","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=46482"},"modified":"2025-08-23T17:13:22","modified_gmt":"2025-08-23T21:13:22","slug":"%d7%94%d7%aa%d7%9e%d7%95%d7%93%d7%93%d7%95%d7%aa-%d7%a2%d7%9d-%d7%a2%d7%99%d7%99%d7%a4%d7%95%d7%aa-%d7%91%d7%9e%d7%97%d7%9c%d7%aa-%d7%90%d7%a8%d7%93%d7%94%d7%99%d7%99%d7%9d-%d7%a6%d7%a1%d7%98%d7%a8-2","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/he\/managing-fatigue-with-erdheim-chester-disease-2\/","title":{"rendered":"\u05d4\u05ea\u05de\u05d5\u05d3\u05d3\u05d5\u05ea \u05e2\u05dd \u05e2\u05d9\u05d9\u05e4\u05d5\u05ea \u05d1\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8"},"content":{"rendered":"<p>\u05d1\u05e2\u05d5\u05d3 \u05e4\u05d7\u05d5\u05ea \u05de\u05e9\u05dc\u05d5\u05e9\u05d4 \u05d7\u05d5\u05d3\u05e9\u05d9\u05dd, \u05d4\u05e7\u05d4\u05d9\u05dc\u05d4 \u05d4\u05e2\u05d5\u05dc\u05de\u05d9\u05ea \u05e9\u05dc \u05d7\u05d5\u05dc\u05d9 \u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8 (ECD) \u05ea\u05ea\u05db\u05e0\u05e1 \u05dc...\u00a0<strong>\u05d4\u05db\u05e0\u05e1 \u05d4\u05e9\u05e0\u05ea\u05d9 \u05d4\u05e2\u05e9\u05d9\u05e8\u05d9 \u05e9\u05dc ECD \u05d1\u05d1\u05e8\u05e6\u05dc\u05d5\u05e0\u05d4<\/strong>. \u05d0\u05d9\u05e8\u05d5\u05e2 \u05de\u05db\u05d5\u05e0\u05df \u05d6\u05d4 \u05de\u05d0\u05d7\u05d3 \u05de\u05d5\u05de\u05d7\u05d9\u05dd \u05e8\u05e4\u05d5\u05d0\u05d9\u05d9\u05dd, \u05d7\u05d5\u05e7\u05e8\u05d9\u05dd, \u05d7\u05d5\u05dc\u05d9\u05dd \u05d5\u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05d5\u05ea\u05d9\u05d4\u05dd \u05e1\u05d1\u05d9\u05d1 \u05de\u05e9\u05d9\u05de\u05d4 \u05de\u05e9\u05d5\u05ea\u05e4\u05ea: \u05dc\u05e7\u05d3\u05dd \u05d0\u05ea \u05d4\u05d9\u05d3\u05e2, \u05dc\u05d8\u05e4\u05d7 \u05e7\u05e9\u05e8\u05d9\u05dd \u05d5\u05dc\u05d4\u05e0\u05d9\u05e2 \u05d4\u05ea\u05e7\u05d3\u05de\u05d5\u05ea \u05d1\u05de\u05d0\u05de\u05e5 \u05dc\u05d4\u05ea\u05d2\u05d1\u05e8 \u05e2\u05dc ECD.<\/p>\n<p><strong>\u05dc\u05de\u05d4 \u05db\u05d3\u05d0\u05d9 \u05dc\u05d4\u05e9\u05ea\u05ea\u05e3?<\/strong><\/p>\n<ul>\n<li><strong>\u05dc\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05dc\u05de\u05e9\u05e4\u05d7\u05d5\u05ea:<\/strong>\u00a0\u05de\u05e4\u05d2\u05e9 \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d1\u05e0\u05d9 \u05d4\u05de\u05e9\u05e4\u05d7\u05d4 \u05de\u05e6\u05d9\u05e2 \u05d4\u05d6\u05d3\u05de\u05e0\u05d5\u05ea \u05d9\u05e7\u05e8\u05ea \u05e2\u05e8\u05da \u05dc\u05e9\u05de\u05d5\u05e2 \u05de\u05d5\u05de\u05d7\u05d9\u05dd \u05de\u05d5\u05d1\u05d9\u05dc\u05d9\u05dd, \u05dc\u05d9\u05e6\u05d5\u05e8 \u05e7\u05e9\u05e8\u05d9\u05dd \u05e2\u05dd \u05d0\u05e0\u05e9\u05d9\u05dd \u05d0\u05d7\u05e8\u05d9\u05dd \u05e9\u05de\u05d1\u05d9\u05e0\u05d9\u05dd \u05d0\u05ea \u05d4\u05de\u05e1\u05e2 \u05d4\u05d6\u05d4, \u05d5\u05dc\u05e7\u05d1\u05dc \u05ea\u05d5\u05d1\u05e0\u05d5\u05ea \u05e9\u05d9\u05e2\u05e0\u05d9\u05e7\u05d5 \u05dc\u05db\u05dd \u05d0\u05ea \u05d4\u05db\u05d5\u05d7 \u05dc\u05d3\u05d0\u05d5\u05d2 \u05dc\u05d1\u05e8\u05d9\u05d0\u05d5\u05ea\u05db\u05dd.<\/li>\n<li><strong>\u05dc\u05d0\u05e0\u05e9\u05d9 \u05de\u05e7\u05e6\u05d5\u05e2 \u05d1\u05ea\u05d7\u05d5\u05dd \u05d4\u05e8\u05e4\u05d5\u05d0\u05d4:<\/strong>\u00a0\u05d4\u05e1\u05d9\u05de\u05e4\u05d5\u05d6\u05d9\u05d5\u05df \u05d4\u05e8\u05e4\u05d5\u05d0\u05d9 \u05de\u05d0\u05d2\u05d3 \u05de\u05d5\u05de\u05d7\u05d9\u05dd \u05de\u05e8\u05d7\u05d1\u05d9 \u05d4\u05e2\u05d5\u05dc\u05dd \u05db\u05d3\u05d9 \u05dc\u05d3\u05d5\u05df \u05d1\u05de\u05d7\u05e7\u05e8\u05d9\u05dd \u05e4\u05d5\u05e8\u05e6\u05d9 \u05d3\u05e8\u05da, \u05d1\u05d8\u05d9\u05e4\u05d5\u05dc\u05d9\u05dd \u05d7\u05d3\u05e9\u05d9\u05dd \u05d5\u05d1\u05e9\u05d9\u05d8\u05d5\u05ea \u05d4\u05de\u05d5\u05de\u05dc\u05e6\u05d5\u05ea \u05dc\u05d0\u05d1\u05d7\u05d5\u05df \u05d5\u05d8\u05d9\u05e4\u05d5\u05dc \u05d1-ECD.<\/li>\n<\/ul>\n<p>\u05d6\u05d4 \u05d9\u05d5\u05ea\u05e8 \u05de\u05e1\u05ea\u05dd \u05db\u05e0\u05e1 \u2014 \u05d6\u05d5 \u05d4\u05d6\u05d3\u05de\u05e0\u05d5\u05ea \u05dc\u05e7\u05d7\u05ea \u05d7\u05dc\u05e7 \u05d1\u05ea\u05e0\u05d5\u05e2\u05d4 \u05e9\u05de\u05e9\u05e0\u05d4 \u05d0\u05ea \u05e4\u05e0\u05d9 \u05d4\u05d3\u05d1\u05e8\u05d9\u05dd \u05d1\u05db\u05dc \u05d4\u05e7\u05e9\u05d5\u05e8 \u05dc\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8.<\/p>\n<p><strong>\u05d0\u05dc \u05ea\u05e4\u05e1\u05e4\u05e1\u05d5 \u05d0\u05ea \u05d4\u05d4\u05d6\u05d3\u05de\u05e0\u05d5\u05ea! \u05d4\u05d1\u05d8\u05d9\u05d7\u05d5 \u05d0\u05ea \u05de\u05e7\u05d5\u05de\u05db\u05dd \u05e2\u05d5\u05d3 \u05d4\u05d9\u05d5\u05dd:<\/strong><\/p>\n<ul>\n<li><strong>\u05d7\u05d5\u05dc\u05d9\u05dd \u05d5\u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05d5\u05ea\u05d9\u05d4\u05dd:<\/strong>\u00a0<a href=\"https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/\" target=\"_new\" rel=\"noopener\">\u05d4\u05d9\u05e8\u05e9\u05dd \u05db\u05d0\u05df<\/a><\/li>\n<li><strong>\u05d0\u05e0\u05e9\u05d9 \u05de\u05e7\u05e6\u05d5\u05e2 \u05d1\u05ea\u05d7\u05d5\u05dd \u05d4\u05e8\u05e4\u05d5\u05d0\u05d4:<\/strong>\u00a0<a href=\"https:\/\/secure.qgiv.com\/for\/barcelonapatientfamilygathering\/event\/2024ecdmedicalsymposium-barcelona\/\" target=\"_new\" rel=\"noopener\">\u05d4\u05d9\u05e8\u05e9\u05dd \u05db\u05d0\u05df<\/a><\/li>\n<\/ul>\n<p>\u05d4\u05e6\u05d8\u05e8\u05e4\u05d5 \u05d0\u05dc\u05d9\u05e0\u05d5 \u05d1\u05d1\u05e8\u05e6\u05dc\u05d5\u05e0\u05d4, \u05e9\u05dd \u05e0\u05ea\u05d0\u05e1\u05e3 \u05d9\u05d7\u05d3 \u05db\u05d3\u05d9 \u05dc\u05dc\u05de\u05d5\u05d3, \u05dc\u05d9\u05e6\u05d5\u05e8 \u05e7\u05e9\u05e8\u05d9\u05dd \u05d5\u05dc\u05e7\u05d3\u05dd \u05d0\u05ea \u05d4\u05ea\u05d7\u05d5\u05dd \u05e9\u05dc \u05d4\u05d8\u05d9\u05e4\u05d5\u05dc \u05d5\u05d4\u05de\u05d7\u05e7\u05e8 \u05d1\u05ea\u05d7\u05d5\u05dd \u05d4\u05d4\u05ea\u05e4\u05ea\u05d7\u05d5\u05ea \u05d4\u05de\u05d5\u05e7\u05d3\u05de\u05ea \u05e9\u05dc \u05d9\u05dc\u05d3\u05d9\u05dd. \u05d0\u05e0\u05d7\u05e0\u05d5 \u05db\u05d1\u05e8 \u05dc\u05d0 \u05d9\u05db\u05d5\u05dc\u05d9\u05dd \u05dc\u05d7\u05db\u05d5\u05ea \u05dc\u05e4\u05d2\u05d5\u05e9 \u05d0\u05ea\u05db\u05dd \u05e9\u05dd!<\/p>","protected":false},"excerpt":{"rendered":"<p>In less than three months, the global Erdheim-Chester Disease (ECD) community will come together for the\u00a010th Annual ECD Conference in Barcelona. This milestone event unites medical experts, researchers, patients, and [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":46483,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-46482","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/46482","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/comments?post=46482"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/46482\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media\/46483"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media?parent=46482"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/categories?post=46482"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/tags?post=46482"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}