{"id":46370,"date":"2025-03-21T10:23:31","date_gmt":"2025-03-21T14:23:31","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=46370"},"modified":"2025-08-23T17:13:31","modified_gmt":"2025-08-23T21:13:31","slug":"%d7%99%d7%95%d7%9d-%d7%94%d7%9e%d7%97%d7%9c%d7%95%d7%aa-%d7%94%d7%a0%d7%93%d7%99%d7%a8%d7%95%d7%aa-%d7%97%d7%9c-%d7%91-28-%d7%91%d7%a4%d7%91%d7%a8%d7%95%d7%90%d7%a8-%d7%9e%d7%94-%d7%90%d7%aa%d7%9d","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/he\/rare-disease-day-is-february-28-what-do-you-plan-to-do\/","title":{"rendered":"\u05d9\u05d5\u05dd \u05d4\u05de\u05d7\u05dc\u05d5\u05ea \u05d4\u05e0\u05d3\u05d9\u05e8\u05d5\u05ea \u05d7\u05dc \u05d1-28 \u05d1\u05e4\u05d1\u05e8\u05d5\u05d0\u05e8: \u05de\u05d4 \u05d0\u05ea\u05dd \u05de\u05ea\u05db\u05e0\u05e0\u05d9\u05dd \u05dc\u05e2\u05e9\u05d5\u05ea?"},"content":{"rendered":"<p data-start=\"65\" data-end=\"360\">\u05e2\u05d3\u05d9\u05d9\u05df \u05e0\u05d5\u05ea\u05e8\u05d4 \u05d3\u05e8\u05da \u05d0\u05e8\u05d5\u05db\u05d4 \u05dc\u05d7\u05e7\u05d5\u05e8 \u05d8\u05d9\u05e4\u05d5\u05dc\u05d9\u05dd \u05dc\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8 (ECD) \u05d5\u05dc\u05db\u05dc \u05d4\u05de\u05d7\u05dc\u05d5\u05ea \u05d4\u05e0\u05d3\u05d9\u05e8\u05d5\u05ea. \u05db\u05de\u05d7\u05dc\u05ea \u05e1\u05e8\u05d8\u05df \u05d3\u05dd \u05e0\u05d3\u05d9\u05e8\u05d4 \u05d1\u05d9\u05d5\u05ea\u05e8 \u05d4\u05e4\u05d5\u05d2\u05e2\u05ea \u05d1\u05d0\u05d9\u05d1\u05e8\u05d9\u05dd \u05e8\u05d1\u05d9\u05dd, \u05de\u05d7\u05dc\u05ea ECD \u05e2\u05d3\u05d9\u05d9\u05df \u05d0\u05d9\u05e0\u05d4 \u05de\u05d5\u05db\u05e8\u05ea \u05de\u05e1\u05e4\u05d9\u05e7, \u05d5\u05d7\u05d5\u05dc\u05d9\u05dd \u05e8\u05d1\u05d9\u05dd \u05e1\u05d5\u05d1\u05dc\u05d9\u05dd \u05de\u05e2\u05d9\u05db\u05d5\u05d1\u05d9\u05dd \u05d1\u05d0\u05d1\u05d7\u05d5\u05df \u05d5\u05de\u05d0\u05e4\u05e9\u05e8\u05d5\u05d9\u05d5\u05ea \u05d8\u05d9\u05e4\u05d5\u05dc \u05de\u05d5\u05d2\u05d1\u05dc\u05d5\u05ea.<\/p>\n<p data-start=\"362\" data-end=\"661\">\u05dc\u05db\u05df \u05d0\u05e0\u05d5 \u05e2\u05d5\u05de\u05d3\u05d9\u05dd \u05dc\u05e6\u05d3 \u05e7\u05d4\u05d9\u05dc\u05ea \u05d7\u05d5\u05dc\u05d9 \u05d4\u05de\u05d7\u05dc\u05d5\u05ea \u05d4\u05e0\u05d3\u05d9\u05e8\u05d5\u05ea \u05d1\u05ea\u05de\u05d9\u05db\u05ea\u05e0\u05d5 \u05d1-\u00a0<strong data-start=\"428\" data-end=\"447\">1TP5\u05d9\u05d5\u05dd_\u05d4\u05de\u05d7\u05dc\u05d5\u05ea_\u05d4\u05e0\u05d3\u05d9\u05e8\u05d5\u05ea<\/strong>\u00a0\u05d1-28 \u05d1\u05e4\u05d1\u05e8\u05d5\u05d0\u05e8. \u05d4\u05de\u05d5\u05d3\u05e2\u05d5\u05ea \u05d4\u05d9\u05d0 \u05e7\u05e8\u05d9\u05d8\u05d9\u05ea \u2014 \u05d4\u05d9\u05d0 \u05de\u05d5\u05d1\u05d9\u05dc\u05d4 \u05dc\u05d0\u05d1\u05d7\u05d5\u05df \u05de\u05d5\u05e7\u05d3\u05dd \u05d9\u05d5\u05ea\u05e8, \u05dc\u05d4\u05d2\u05d1\u05e8\u05ea \u05d4\u05de\u05d7\u05e7\u05e8 \u05d5\u05dc\u05d8\u05d9\u05e4\u05d5\u05dc\u05d9\u05dd \u05d8\u05d5\u05d1\u05d9\u05dd \u05d9\u05d5\u05ea\u05e8. \u05d9\u05d7\u05d3, \u05e0\u05d5\u05db\u05dc \u05dc\u05d7\u05d5\u05dc\u05dc \u05e9\u05d9\u05e0\u05d5\u05d9 \u05e2\u05d1\u05d5\u05e8 300 \u05de\u05d9\u05dc\u05d9\u05d5\u05df \u05d4\u05d0\u05e0\u05e9\u05d9\u05dd \u05d1\u05e8\u05d7\u05d1\u05d9 \u05d4\u05e2\u05d5\u05dc\u05dd \u05d4\u05d7\u05d9\u05d9\u05dd \u05e2\u05dd \u05de\u05d7\u05dc\u05d4 \u05e0\u05d3\u05d9\u05e8\u05d4.<\/p>\n<p data-start=\"663\" data-end=\"1138\">\u05de\u05d7\u05dc\u05ea ECD \u05d4\u05d9\u05d0 \u05e8\u05e7 \u05d0\u05d7\u05ea \u05de\u05d1\u05d9\u05df \u05d9\u05d5\u05ea\u05e8 \u05de-7,000 \u05de\u05d7\u05dc\u05d5\u05ea \u05e0\u05d3\u05d9\u05e8\u05d5\u05ea, \u05d5\u05db\u05de\u05d5 \u05e8\u05d1\u05d5\u05ea \u05d0\u05d7\u05e8\u05d5\u05ea, \u05d0\u05d9\u05df \u05dc\u05d4 \u05ea\u05e8\u05d5\u05e4\u05d4 \u05d9\u05d3\u05d5\u05e2\u05d4. \u05d0\u05da \u05d4\u05d5\u05d3\u05d5\u05ea \u05dc\u05de\u05d5\u05d3\u05e2\u05d5\u05ea \u05d4\u05d2\u05d5\u05d1\u05e8\u05ea \u05d5\u05dc\u05d4\u05ea\u05e7\u05d3\u05de\u05d5\u05ea \u05d1\u05de\u05d7\u05e7\u05e8, \u05e0\u05e8\u05e9\u05de\u05d9\u05dd \u05d4\u05d9\u05e9\u05d2\u05d9\u05dd \u05d1\u05ea\u05d7\u05d5\u05dd. \u05d4\u05d1\u05e8\u05d9\u05ea \u05d4\u05e2\u05d5\u05dc\u05de\u05d9\u05ea \u05dc\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8 (ECDGA) \u05e1\u05d9\u05d9\u05e2\u05d4 \u05d1\u05de\u05d9\u05de\u05d5\u05df \u05d9\u05d5\u05d6\u05de\u05d5\u05ea \u05de\u05d7\u05e7\u05e8 \u05e8\u05d1\u05d5\u05ea, \u05d5\u05d0\u05e0\u05d5 \u05de\u05de\u05e9\u05d9\u05db\u05d9\u05dd \u05dc\u05e4\u05e2\u05d5\u05dc \u05dc\u05e7\u05d9\u05d3\u05d5\u05dd \u05ea\u05d2\u05dc\u05d9\u05d5\u05ea \u05d7\u05d3\u05e9\u05d5\u05ea \u05e9\u05d9\u05d1\u05d9\u05d0\u05d5 \u05ea\u05e7\u05d5\u05d5\u05d4 \u05dc\u05d7\u05d5\u05dc\u05d9\u05dd \u05d5\u05dc\u05de\u05e9\u05e4\u05d7\u05d5\u05ea\u05d9\u05d4\u05dd. \u05e7\u05d5\u05dc\u05db\u05dd, \u05e4\u05e2\u05d9\u05dc\u05d5\u05ea\u05db\u05dd \u05dc\u05de\u05e2\u05df \u05d4\u05e0\u05d5\u05e9\u05d0 \u05d5\u05ea\u05de\u05d9\u05db\u05ea\u05db\u05dd \u05d7\u05e9\u05d5\u05d1\u05d9\u05dd \u05d1\u05de\u05d0\u05d1\u05e7 \u05dc\u05de\u05e2\u05df \u05d8\u05d9\u05e4\u05d5\u05dc\u05d9\u05dd \u05d8\u05d5\u05d1\u05d9\u05dd \u05d9\u05d5\u05ea\u05e8 \u05d5\u05e2\u05ea\u05d9\u05d3 \u05d8\u05d5\u05d1 \u05d9\u05d5\u05ea\u05e8.<\/p>\n<p>\u05ea\u05de\u05db\u05d5 \u05d1-#RareDiseaseDay, \u05d1-28 \u05d1\u05e4\u05d1\u05e8\u05d5\u05d0\u05e8.<\/p>\n<p>\u05d2\u05dc\u05d5 \u05de\u05d4 \u05d0\u05ea\u05dd \u05d9\u05db\u05d5\u05dc\u05d9\u05dd \u05dc\u05e2\u05e9\u05d5\u05ea \u05db\u05d3\u05d9 \u05dc\u05e2\u05d6\u05d5\u05e8:\u00a0<a href=\"http:\/\/bit.ly\/rdd2025\" target=\"_blank\" rel=\"noopener\" aria-label=\"http:\/\/bit.ly\/rdd2025 - \u05e0\u05e4\u05ea\u05d7 \u05d1\u05dc\u05e9\u05d5\u05e0\u05d9\u05ea \u05d7\u05d3\u05e9\u05d4\">http:\/\/bit.ly\/rdd2025<\/a><\/p>\n<p>\u05e9\u05ea\u05e4\u05d5 \u05d0\u05ea \u05d4\u05e6\u05d1\u05e2\u05d9\u05dd \u05e9\u05dc\u05db\u05dd:\u00a0<a href=\"https:\/\/www.rarediseaseday.org\/#share-your-colours\" target=\"_blank\" rel=\"noopener\" aria-label=\"https:\/\/www.rarediseaseday.org\/#share-your-colours - \u05e0\u05e4\u05ea\u05d7 \u05d1\u05dc\u05e9\u05d5\u05e0\u05d9\u05ea \u05d7\u05d3\u05e9\u05d4\">https:\/\/www.rarediseaseday.org\/#share-your-colours<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>There is so much progress yet to be made in researching treatments for Erdheim-Chester Disease (ECD) and all rare diseases. As an ultra-rare blood cancer that affects multiple organs, ECD [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":46371,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-46370","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/46370","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/comments?post=46370"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/46370\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media\/46371"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media?parent=46370"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/categories?post=46370"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/tags?post=46370"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}