{"id":19752,"date":"2021-09-13T14:39:45","date_gmt":"2021-09-13T19:39:45","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19752"},"modified":"2026-08-19T06:52:38","modified_gmt":"2026-08-19T11:52:38","slug":"%d7%a9%d7%91%d7%95%d7%a2-%d7%94%d7%9e%d7%95%d7%93%d7%a2%d7%95%d7%aa-%d7%9c-ecd-2021","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/he\/2021-ecd-awareness-week\/","title":{"rendered":"\u05e9\u05d1\u05d5\u05e2 \u05d4\u05de\u05d5\u05d3\u05e2\u05d5\u05ea \u05dc-ECD 2021"},"content":{"rendered":"

 <\/p>\n

\u05e9\u05d1\u05d5\u05e2 \u05d4\u05de\u05d5\u05d3\u05e2\u05d5\u05ea \u05dc\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8<\/h2>\n

13\u201318 \u05d1\u05e1\u05e4\u05d8\u05de\u05d1\u05e8 2021<\/em><\/p>\n

#\u05e9\u05d9\u05ea\u05d5\u05e3_\u05d4\u05d5\u05d0_\u05d4\u05de\u05e4\u05ea\u05d7 #\u05de\u05d5\u05d3\u05e2\u05d5\u05ea_\u05dc-ECD #\u05e9\u05d1\u05d5\u05e2_\u05d4\u05de\u05d5\u05d3\u05e2\u05d5\u05ea<\/p>\n

 <\/p>\n

\u05d4\u05d1\u05e8\u05d9\u05ea \u05d4\u05e2\u05d5\u05dc\u05de\u05d9\u05ea \u05dc\u05de\u05d7\u05dc\u05ea ECD \u05de\u05d0\u05e8\u05d2\u05e0\u05ea \u05d0\u05ea \u05e9\u05d1\u05d5\u05e2 \u05d4\u05de\u05d5\u05d3\u05e2\u05d5\u05ea \u05d4\u05e9\u05e0\u05ea\u05d9 \u05d4\u05e9\u05d1\u05d9\u05e2\u05d9 \u05dc\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8! \u05d4\u05e6\u05d8\u05e8\u05e4\u05d5 \u05dc\u05e7\u05d4\u05d9\u05dc\u05ea\u05e0\u05d5 \u05d1\u05d4\u05e2\u05dc\u05d0\u05ea \u05d4\u05de\u05d5\u05d3\u05e2\u05d5\u05ea \u05dc\u05de\u05d7\u05dc\u05ea ECD \u05d4\u05e0\u05d3\u05d9\u05e8\u05d4 \u05d1\u05d9\u05d5\u05ea\u05e8, \u05d4\u05d7\u05dc \u05de\u05d4\u05d9\u05d5\u05dd \u05d5\u05e2\u05d3 \u05d4-18 \u05d1\u05e1\u05e4\u05d8\u05de\u05d1\u05e8 2021.<\/p>\n

\u05d0\u05e0\u05d0 \u05e9\u05e7\u05dc\u05d5 \u05dc\u05e1\u05d9\u05d9\u05e2 \u05dc\u05e6\u05d5\u05d5\u05ea \u05e9\u05dc\u05e0\u05d5 \u05d1\u05d4\u05e4\u05e6\u05ea \u05de\u05d9\u05d3\u05e2 \u05e2\u05dc \u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8 \u05dc\u05d0\u05d7\u05e8\u05d9\u05dd. The voice of our supporters is essential to reducing the time it takes\u00a0to find a diagnosis for this rare disorder.<\/strong><\/p>\n

 <\/p>\n

Sharing\u00a0is Key!<\/h3>\n

\u05e9\u05ea\u05e3\u00a0<\/strong>\u05d4\u05e4\u05e8\u05e1\u05d5\u05de\u05d9\u05dd \u05e9\u05dc\u05e0\u05d5 \u05d1\u05e8\u05e9\u05ea\u05d5\u05ea \u05d4\u05d7\u05d1\u05e8\u05ea\u05d9\u05d5\u05ea, \u05d5\u05db\u05df \u05de\u05d0\u05de\u05e6\u05d9 \u05d4\u05d4\u05e1\u05d1\u05e8\u05d4 \u05e9\u05dc\u05db\u05dd \u05d1\u05e2\u05de\u05d5\u05d3\u05d9 \u05d4\u05e8\u05e9\u05ea\u05d5\u05ea \u05d4\u05d7\u05d1\u05e8\u05ea\u05d9\u05d5\u05ea \u05e9\u05dc\u05db\u05dd, \u05e2\u05dd \u05d4\u05d0\u05e9\u05d8\u05d2\u05d9\u05dd \u05db\u05d3\u05d9 \u05dc\u05d4\u05d2\u05d1\u05d9\u05e8 \u05d0\u05ea \u05d4\u05d7\u05e9\u05d9\u05e4\u05d4!
\n#ErdheimChester\u00a0 #SharingIsKey\u00a0 #AwarenessWeek\u00a0\u00a0#ECDawareness\u00a0 #Histio\u00a0 #endECD<\/p>\n

\u05ea\u05ea\u05d9\u05d9\u05d2\u05d5 \u05d0\u05d5\u05ea\u05e0\u05d5 \u05db\u05d3\u05d9 \u05e9\u05e0\u05e8\u05d0\u05d4 \u05d0\u05ea \u05d4\u05e4\u05d5\u05e1\u05d8\u05d9\u05dd \u05e9\u05dc\u05db\u05dd!<\/strong><\/p>\n

\u05e4\u05d9\u05d9\u05e1\u05d1\u05d5\u05e7: @ErdheimChesterDisease<\/p>\n

\u05d0\u05d9\u05e0\u05e1\u05d8\u05d2\u05e8\u05dd: @erdheim_chester<\/p>\n

Twitter:\u00a0@ECDGA<\/p>\n

\u05dc\u05d1\u05d9\u05e9\u05d4\u00a0<\/strong>your ECD gear or ribbon and send us a photo. Consider adding a quote on why awareness is important to you and your family.\u00a0 These images and quotes will be placed on the above media pages for more exposure.<\/p>\n

\"\"<\/a><\/p>\n

\u05ea\u05e2\u05e9\u05d5 \u05de\u05d0\u05de\u05e5 \u05e0\u05d5\u05e1\u05e3!<\/h3>\n

\u05e4\u05e8\u05e1\u05de\u05d5 \u05d0\u05d5 \u05d4\u05d3\u05e4\u05d9\u05e1\u05d5 \u05d0\u05ea \u05e2\u05dc\u05d5\u05df \u05d4\u05d4\u05e1\u05d1\u05e8\u05d4 \u05d1\u05e0\u05d5\u05e9\u05d0 ECD \u05d5\u05d4\u05e2\u05d1\u05d9\u05e8\u05d5 \u05d0\u05d5\u05ea\u05d5 \u05dc\u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05ea\u05db\u05dd, \u05dc\u05d7\u05d1\u05e8\u05d9\u05db\u05dd \u05d5\u05dc\u05e6\u05d5\u05d5\u05ea\u05d9\u05dd \u05d4\u05e8\u05e4\u05d5\u05d0\u05d9\u05d9\u05dd.\u00a0\u00a0\u05e2\u05dc\u05d5\u05df \u05d4\u05e1\u05d1\u05e8\u05d4<\/a><\/p>\n

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\u05d0\u05e0\u05d5 \u05de\u05de\u05dc\u05d9\u05e6\u05d9\u05dd \u05e2\u05dc \u05e9\u05d9\u05de\u05d5\u05e9 \u05d1\u05d7\u05d5\u05d1\u05e8\u05d5\u05ea \u05d4\u05de\u05d9\u05d3\u05e2 \u05e9\u05dc\u05e0\u05d5 \u05d1\u05de\u05e8\u05db\u05d6 \u05d4\u05e8\u05e4\u05d5\u05d0\u05d9 \u05e9\u05dc\u05db\u05dd.\u00a0\u00a0\u05d1\u05e7\u05e9\u05d4 \u05dc\u05e7\u05d1\u05dc\u05ea \u05d7\u05d5\u05d1\u05e8\u05ea<\/a><\/p>\n

\u05d4\u05d6\u05de\u05d9\u05e0\u05d5 \u05d0\u05ea \u05d4\u05e6\u05d5\u05d5\u05ea \u05d4\u05e8\u05e4\u05d5\u05d0\u05d9 \u05e9\u05dc\u05db\u05dd \u05dc\u05d4\u05d9\u05e8\u05e9\u05dd \u05dc-ECD Global Alliance \u05db\u05d3\u05d9 \u05e9\u05d9\u05d5\u05db\u05dc\u05d5 \u05dc\u05d4\u05d9\u05e9\u05d0\u05e8 \u05de\u05e2\u05d5\u05d3\u05db\u05e0\u05d9\u05dd.\u00a0\u00a0\u05d8\u05d5\u05e4\u05e1 \u05d4\u05e6\u05d8\u05e8\u05e4\u05d5\u05ea<\/a><\/p>\n

 <\/p>\n

\u05e1\u05d9\u05e4\u05d5\u05e8 \u05e9\u05dc \u05de\u05d8\u05d5\u05e4\u05dc \u05d7\u05d3\u05e9!<\/h3>\n

\u05d4\u05d6\u05de\u05df \u05d4\u05d5\u05d0 \u05d2\u05d5\u05e8\u05dd \u05de\u05db\u05e8\u05d9\u05e2<\/a><\/h3>\n

 <\/p>\n

\u05dc\u05de\u05d3\u05d5 \u05de\u05d4\u05de\u05d5\u05de\u05d7\u05d9\u05dd \u05d1\u05e4\u05d5\u05d3\u05e7\u05d0\u05e1\u05d8 \u05d4\u05d6\u05d4!<\/h3>\n

\u05e0\u05e9\u05d9\u05d0\u05ea\u05e0\u05d5 \u05d5\u05de\u05d9\u05d9\u05e1\u05d3\u05ea-\u05e9\u05d5\u05ea\u05e4\u05d4, \u05e7\u05ea\u05d9 \u05d1\u05e8\u05d5\u05d0\u05e8, \u05d4\u05e6\u05d8\u05e8\u05e4\u05d4 \u05dc\u05d3\"\u05e8 \u05d2\u05d0\u05d5\u05e8\u05d1 \u05d2\u05d5\u05d9\u05d0\u05dc, \u05dc\u05d0\u05d2\u05d5\u05d3\u05ea \u05d4\u05d4\u05d9\u05e1\u05d8\u05d9\u05d5\u05e6\u05d9\u05d8\u05d5\u05d6\u05d9\u05e1 \u05d5\u05dc\u05d0\u05d2\u05d5\u05d3\u05ea \u05d4\u05d4\u05d9\u05e1\u05d8\u05d9\u05d5\u05e6\u05d9\u05d8\u05d5\u05d6\u05d9\u05e1 \u05e9\u05dc \u05e7\u05e0\u05d3\u05d4 \u05d1\u05e4\u05d5\u05d3\u05e7\u05d0\u05e1\u05d8 \u05e9\u05e2\u05e1\u05e7 \u05d1\u05d4\u05e2\u05dc\u05d0\u05ea \u05d4\u05de\u05d5\u05d3\u05e2\u05d5\u05ea! \u05d4\u05de\u05e9\u05ea\u05ea\u05e4\u05d9\u05dd \u05d1\u05e4\u05d0\u05e0\u05dc \u05de\u05e9\u05ea\u05e4\u05d9\u05dd \u05d1\u05d7\u05d5\u05d5\u05d9\u05d5\u05ea\u05d9\u05d4\u05dd \u05d4\u05e2\u05d5\u05e6\u05de\u05ea\u05d9\u05d5\u05ea \u05e2\u05dd \u05de\u05d7\u05dc\u05d5\u05ea \u05e0\u05d3\u05d9\u05e8\u05d5\u05ea, \u05d5\u05de\u05d3\u05d2\u05d9\u05e9\u05d9\u05dd \u05d0\u05ea \u05d7\u05e9\u05d9\u05d1\u05d5\u05ea\u05d4 \u05e9\u05dc \u05d4\u05de\u05d5\u05d3\u05e2\u05d5\u05ea.\u00a0 \u05d4\u05d0\u05d6\u05df \u05e2\u05db\u05e9\u05d9\u05d5<\/a><\/p>\n

\u05db\u05de\u05d5 \u05ea\u05de\u05d9\u05d3, \u05ea\u05d5\u05d3\u05d4 \u05e2\u05dc \u05e2\u05d6\u05e8\u05ea\u05db\u05dd \u05d1\u05d4\u05d2\u05d1\u05e8\u05ea \u05d4\u05de\u05d5\u05d3\u05e2\u05d5\u05ea \u05dc\u05de\u05d7\u05dc\u05ea \u05d0\u05e8\u05d3\u05d4\u05d9\u05d9\u05dd-\u05e6'\u05e1\u05d8\u05e8. \u05d4\u05e7\u05d4\u05d9\u05dc\u05d4 \u05e9\u05dc\u05e0\u05d5 \u05de\u05e2\u05e8\u05d9\u05db\u05d4 \u05de\u05d0\u05d5\u05d3 \u05d0\u05ea \u05de\u05d0\u05de\u05e6\u05d9\u05db\u05dd!<\/p>\n

\u05d1\u05ea\u05d5\u05d3\u05d4,<\/p>\n

\u05de\u05e0\u05db\"\u05dc \u05d4-ECD Global Alliance
\n\u05d2'\u05e1\u05d9\u05e7\u05d4 \u05e7\u05d5\u05e8\u05e7\u05e8\u05df<\/em><\/p>","protected":false},"excerpt":{"rendered":"

  Erdheim-Chester Disease Awareness Week September 13 – 18, 2021 #SharingIsKey #ECDawareness #AwarenessWeek   The ECD Global Alliance is hosting its 7th Annual Erdheim-Chester Disease Awareness Week! Join our community […]<\/p>\n","protected":false},"author":14,"featured_media":19753,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51,70],"tags":[101,83,54,59,58,56,57,122,123,98,99,124,82,52],"class_list":["post-19752","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-research-awareness","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-diabetes-insipidus","tag-erdheim-chester","tag-hairy-kidney","tag-histio","tag-histio-warrior","tag-isolation","tag-lifestyle","tag-podcast","tag-rare-cancer","tag-rare-disease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/19752","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/comments?post=19752"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/19752\/revisions"}],"predecessor-version":[{"id":175283,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/19752\/revisions\/175283"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media\/19753"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media?parent=19752"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/categories?post=19752"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/tags?post=19752"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}