{"id":109900,"date":"2025-12-11T11:43:38","date_gmt":"2025-12-11T17:43:38","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=109900"},"modified":"2026-08-13T09:08:14","modified_gmt":"2026-08-13T14:08:14","slug":"%d7%94%d7%94%d7%a8%d7%a9%d7%9e%d7%94-%d7%9c%d7%9e%d7%a4%d7%92%d7%a9-%d7%94%d7%9e%d7%a9%d7%a4%d7%97%d7%95%d7%aa-%d7%a9%d7%9c-%d7%9e%d7%98%d7%95%d7%a4%d7%9c%d7%99-%d7%94-ecdga-%d7%9c%d7%a9%d7%a0%d7%aa-2","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/he\/registration-now-open-for-the-2026-ecdga-patient-family-gathering-join-us-in-birmingham-al\/","title":{"rendered":"\u05d4\u05d4\u05e8\u05e9\u05de\u05d4 \u05dc\u05de\u05e4\u05d2\u05e9 \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d4\u05de\u05e9\u05e4\u05d7\u05d5\u05ea \u05e9\u05dc ECDGA \u05dc\u05e9\u05e0\u05ea 2026 \u05e0\u05e4\u05ea\u05d7\u05d4 \u2013 \u05d4\u05e6\u05d8\u05e8\u05e4\u05d5 \u05d0\u05dc\u05d9\u05e0\u05d5 \u05d1\u05d1\u05d9\u05e8\u05de\u05d9\u05e0\u05d2\u05d4\u05dd, \u05d0\u05dc\u05d1\u05de\u05d4"},"content":{"rendered":"<p>\u05d4\u05d1\u05e8\u05d9\u05ea \u05d4\u05d2\u05dc\u05d5\u05d1\u05dc\u05d9\u05ea ECD \u05e9\u05de\u05d7\u05d4 \u05dc\u05d4\u05d5\u05d3\u05d9\u05e2 \u05db\u05d9 \u05e0\u05e4\u05ea\u05d7\u05d4 \u05d4\u05d4\u05e8\u05e9\u05de\u05d4 \u05dc- <strong>2026: \u05de\u05e4\u05d2\u05e9 \u05d7\u05d5\u05dc\u05d9\u05dd \u05d5\u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05d4 \u05d5\u05e1\u05d9\u05de\u05e4\u05d5\u05d6\u05d9\u05d5\u05df \u05e8\u05e4\u05d5\u05d0\u05d9<\/strong>, \u05e9\u05d9\u05ea\u05e7\u05d9\u05d9\u05dd \u05d1- <strong>\u05d1\u05e8\u05de\u05d9\u05e0\u05d2\u05d4\u05dd, \u05d0\u05dc\u05d1\u05de\u05d4<\/strong>.<\/p>\n<p>\u05d0\u05d9\u05e8\u05d5\u05e2 \u05e9\u05e0\u05ea\u05d9 \u05d7\u05e9\u05d5\u05d1 \u05d6\u05d4 \u05de\u05e4\u05d2\u05d9\u05e9 \u05d1\u05d9\u05df \u05d7\u05d5\u05dc\u05d9\u05dd, \u05de\u05d8\u05e4\u05dc\u05d9\u05dd, \u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05d4, \u05d0\u05e0\u05e9\u05d9 \u05e8\u05e4\u05d5\u05d0\u05d4 \u05d5\u05d7\u05d5\u05e7\u05e8\u05d9\u05dd, \u05dc\u05de\u05e4\u05d2\u05e9 \u05e9\u05dc \u05dc\u05de\u05d9\u05d3\u05d4, \u05ea\u05de\u05d9\u05db\u05d4 \u05d5\u05d7\u05d9\u05d1\u05d5\u05e8.<\/p>\n<p><strong>\u05e4\u05e8\u05d8\u05d9 \u05d4\u05d0\u05d9\u05e8\u05d5\u05e2<\/strong><\/p>\n<ul>\n<li><strong>\u05de\u05e4\u05d2\u05e9 \u05d4\u05d9\u05db\u05e8\u05d5\u05ea:<\/strong> 29 \u05d1\u05d0\u05e4\u05e8\u05d9\u05dc 2026<\/li>\n<li><strong>\u05de\u05e4\u05d2\u05e9 \u05dc\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05d5\u05ea\u05d9\u05d4\u05dd:<\/strong> 30 \u05d1\u05d0\u05e4\u05e8\u05d9\u05dc 2026<\/li>\n<li><strong>\u05de\u05d9\u05e7\u05d5\u05dd:<\/strong> \u05d1\u05e8\u05de\u05d9\u05e0\u05d2\u05d4\u05dd, \u05d0\u05dc\u05d1\u05de\u05d4<\/li>\n<li><strong>\u05d1\u05d4\u05e0\u05d7\u05d9\u05d9\u05ea:<\/strong> \u05d4- <strong>\u05d4\u05d1\u05e8\u05d9\u05ea \u05d4\u05d2\u05dc\u05d5\u05d1\u05dc\u05d9\u05ea \u05e9\u05dc ECD<\/strong> \u05d5\u05d4- <strong>\u05d1\u05d9\u05ea \u05d4\u05e1\u05e4\u05e8 \u05dc\u05e8\u05e4\u05d5\u05d0\u05d4 \u05e9\u05dc UAB<\/strong><\/li>\n<\/ul>\n<p><strong>\u00a0\u05dc\u05de\u05d4 \u05dc\u05e6\u05e4\u05d5\u05ea<\/strong><\/p>\n<p>\u05d4\u05de\u05e9\u05ea\u05ea\u05e4\u05d9\u05dd \u05d9\u05d5\u05db\u05dc\u05d5:<\/p>\n<ul>\n<li>\u05e9\u05de\u05e2\u05d5 \u05de\u05de\u05d5\u05de\u05d7\u05d9\u05dd \u05de\u05d5\u05d1\u05d9\u05dc\u05d9\u05dd \u05e2\u05dc \u05d4\u05d7\u05d9\u05d3\u05d5\u05e9\u05d9\u05dd \u05d4\u05d0\u05d7\u05e8\u05d5\u05e0\u05d9\u05dd \u05d1\u05de\u05d7\u05e7\u05e8 \u05d5\u05d1\u05d8\u05d9\u05e4\u05d5\u05dc \u05d1\u05ea\u05d7\u05d5\u05dd \u05d4\u05d4\u05ea\u05e4\u05ea\u05d7\u05d5\u05ea \u05d4\u05de\u05d5\u05e7\u05d3\u05de\u05ea \u05e9\u05dc \u05d4\u05d9\u05dc\u05d3 (ECD)<\/li>\n<li>\u05d4\u05e6\u05d8\u05e8\u05e4\u05d5 \u05dc\u05d3\u05d9\u05d5\u05e0\u05d9\u05dd \u05d1\u05e7\u05d1\u05d5\u05e6\u05d5\u05ea \u05e7\u05d8\u05e0\u05d5\u05ea \u05d4\u05de\u05d9\u05d5\u05e2\u05d3\u05d9\u05dd \u05dc\u05d7\u05d5\u05dc\u05d9\u05dd \u05d5\u05dc\u05de\u05d8\u05e4\u05dc\u05d9\u05dd<\/li>\n<li>\u05e6\u05e8\u05d5 \u05e7\u05e9\u05e8 \u05e2\u05dd \u05d7\u05d1\u05e8\u05d9\u05dd \u05d0\u05d7\u05e8\u05d9\u05dd \u05d1\u05e7\u05d4\u05d9\u05dc\u05ea ECD<\/li>\n<li>\u05dc\u05de\u05d3\u05d5 \u05db\u05dc\u05d9\u05dd \u05de\u05e2\u05e9\u05d9\u05d9\u05dd, \u05de\u05e9\u05d0\u05d1\u05d9\u05dd \u05d5\u05de\u05d9\u05d3\u05e2 \u05e9\u05d9\u05e1\u05d9\u05d9\u05e2\u05d5 \u05dc\u05db\u05dd \u05dc\u05d4\u05ea\u05de\u05d5\u05d3\u05d3 \u05e2\u05dd \u05d7\u05d9\u05d9 \u05d4\u05d9\u05d5\u05de\u05d9\u05d5\u05dd \u05e2\u05dd ECD<\/li>\n<\/ul>\n<p><strong>\u00a0\u05d4\u05d4\u05e8\u05e9\u05de\u05d4 \u05e4\u05ea\u05d5\u05d7\u05d4<\/strong><\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/for\/2026birminghampatientfamilygathering\/event\/ecdpatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\">\u05d4\u05d9\u05e8\u05e9\u05dd<\/a><\/span><\/p>\n<p>\u05d4\u05d1\u05d8\u05d9\u05d7\u05d5 \u05d0\u05ea \u05de\u05e7\u05d5\u05de\u05db\u05dd \u05e2\u05d5\u05d3 \u05d4\u05d9\u05d5\u05dd \u05db\u05d3\u05d9 \u05dc\u05e7\u05d7\u05ea \u05d7\u05dc\u05e7 \u05d1\u05de\u05e4\u05d2\u05e9 \u05d4\u05de\u05e9\u05de\u05e2\u05d5\u05ea\u05d9 \u05d4\u05d6\u05d4.<\/p>\n<p><strong>\u05d4\u05d4\u05e8\u05e9\u05de\u05d4 \u05d4\u05de\u05d5\u05e7\u05d3\u05de\u05ea \u05e4\u05ea\u05d5\u05d7\u05d4 \u05e2\u05d3 \u05d4-1 \u05d1\u05e4\u05d1\u05e8\u05d5\u05d0\u05e8 2026<\/strong><strong>.<\/strong><\/p>\n<p><strong>\u05de\u05d9\u05d3\u05e2 \u05e0\u05d5\u05e1\u05e3<\/strong><\/p>\n<p>\u05dc\u05e4\u05e8\u05d8\u05d9\u05dd \u05e0\u05d5\u05e1\u05e4\u05d9\u05dd \u05e2\u05dc \u05d4\u05d0\u05d9\u05e8\u05d5\u05e2, \u05d0\u05e0\u05d0 \u05d1\u05e7\u05e8\u05d5 \u05d1\u05d0\u05ea\u05e8 <a href=\"https:\/\/www.erdheim-chester.org\/he\/\"><strong>erdheim-chester.org<\/strong><\/a> \u05d0\u05d5 \u05e6\u05e8\u05d5 \u05d0\u05d9\u05ea\u05e0\u05d5 \u05e7\u05e9\u05e8 \u05d1\u05db\u05ea\u05d5\u05d1\u05ea <a href=\"mailto:support@erdheim-chester.org\"><strong>support@erdheim-chester.org<\/strong><\/a>. \u05e0\u05e9\u05de\u05d7 \u05dc\u05e2\u05e0\u05d5\u05ea \u05e2\u05dc \u05db\u05dc \u05e9\u05d0\u05dc\u05d4.<\/p>\n<p>\u05d0\u05e0\u05d5 \u05de\u05e6\u05e4\u05d9\u05dd \u05dc\u05e7\u05d1\u05dc \u05d0\u05ea \u05e4\u05e0\u05d9\u05db\u05dd \u05d1\u05d1\u05e8\u05de\u05d9\u05e0\u05d2\u05d4\u05dd!<\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/for\/2026birminghampatientfamilygathering\/event\/ecdpatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\">\u05d4\u05d9\u05e8\u05e9\u05dd<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Registration is OPEN for the 2026 ECDGA Patient &amp; Family Gathering!<br \/>\nEarly bird registration is open until February 1, 2026!<br \/>\nJoin us in Birmingham, Alabama, for our annual Meet &amp; Greet on April 29 and the Patient &amp; Family Gathering on April 30, 2026.<\/p>\n<p>Hosted by the ECD Global Alliance and the UAB School of Medicine, this event brings together patients, caregivers, families, and medical experts for a powerful day of learning, connection, and community.<\/p>\n<p>Don\u2019t miss your chance to secure a spot at a reduced rate.<\/p>\n<p>Learn more and register at: erdheim-chester.org<br \/>\nQuestions? Email us at support@erdheim-chester.org<\/p>","protected":false},"author":14,"featured_media":174390,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[5501,5500,3190,387,380,5235,122,2491,2881],"class_list":["post-109900","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-histicytosis","tag-uabmedicine","tag-ecd","tag-ecdga","tag-ecdsupport","tag-endecd","tag-histio","tag-patientfamilygathering","tag-rarediseasecommunity"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/109900","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/comments?post=109900"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/109900\/revisions"}],"predecessor-version":[{"id":174667,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/109900\/revisions\/174667"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media\/174390"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media?parent=109900"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/categories?post=109900"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/tags?post=109900"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}