{"id":102294,"date":"2016-03-16T19:06:48","date_gmt":"2016-03-17T00:06:48","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%d7%9e%d7%a4%d7%92%d7%a9-%d7%91%d7%99%d7%a0%d7%9c%d7%90%d7%95%d7%9e%d7%99-%d7%a8%d7%91%d7%99%d7%a2%d7%99-%d7%9c%d7%97%d7%95%d7%9c%d7%99-ecd-%d7%95%d7%91%d7%a0%d7%99-%d7%9e%d7%a9%d7%a4%d7%97%d7%94\/"},"modified":"2026-05-25T10:08:08","modified_gmt":"2026-05-25T15:08:08","slug":"%d7%9e%d7%a4%d7%92%d7%a9-%d7%91%d7%99%d7%a0%d7%9c%d7%90%d7%95%d7%9e%d7%99-%d7%a8%d7%91%d7%99%d7%a2%d7%99-%d7%9c%d7%97%d7%95%d7%9c%d7%99-ecd-%d7%95%d7%91%d7%a0%d7%99-%d7%9e%d7%a9%d7%a4%d7%97%d7%94","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/he\/%d7%9e%d7%a4%d7%92%d7%a9-%d7%91%d7%99%d7%a0%d7%9c%d7%90%d7%95%d7%9e%d7%99-%d7%a8%d7%91%d7%99%d7%a2%d7%99-%d7%9c%d7%97%d7%95%d7%9c%d7%99-ecd-%d7%95%d7%91%d7%a0%d7%99-%d7%9e%d7%a9%d7%a4%d7%97%d7%94\/","title":{"rendered":"\u05de\u05e4\u05d2\u05e9 \u05e9\u05e0\u05ea\u05d9 \u05e8\u05d1\u05d9\u05e2\u05d9 \u05dc\u05d7\u05d5\u05dc\u05d9 ECD \u05d5\u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05d4, \u05e4\u05e8\u05d9\u05d6, \u05e6\u05e8\u05e4\u05ea"},"content":{"rendered":"<p>[et_pb_section fb_built=&quot;1&quot; disabled_on=&quot;off|off|off&quot; _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; custom_padding=&quot;20px||0px||false|false&quot; locked=&quot;off&quot; global_colors_info=&quot;{}&quot;][et_pb_row _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; width=&quot;65%&quot; width_tablet=&quot;80%&quot; width_phone=&quot;80%&quot; width_last_edited=&quot;on|phone&quot; custom_padding=&quot;||10px||false|false&quot; global_colors_info=&quot;{}&quot;][et_pb_column type=&quot;4_4&quot; _builder_version=&quot;4.27.5&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;][et_pb_heading title=&quot;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@&quot; _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; custom_margin=&quot;||0px||false|false&quot; custom_padding=&quot;||0px||false|false&quot; hover_enabled=&quot;0&quot; global_colors_info=&quot;{}&quot; 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button_bg_color=&quot;RGBA(255,255,255,0)&quot; button_border_radius=&quot;0px&quot; button_icon=&quot;&#xe01d;||divi||400&quot; button_icon_color=&quot;#35A4BB&quot; button_icon_placement=&quot;left&quot; button_on_hover=&quot;off&quot; global_colors_info=&quot;{}&quot;][\/et_pb_button][et_pb_button button_text=&quot;16 \u05d1\u05e1\u05e4\u05d8\u05de\u05d1\u05e8 2016&quot; _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; custom_button=&quot;on&quot; button_text_size=&quot;16px&quot; button_text_color=&quot;#000000&quot; button_bg_color=&quot;RGBA(255,255,255,0)&quot; button_border_radius=&quot;0px&quot; button_icon=&quot;&#xf274;||fa||400&quot; button_icon_color=&quot;#35A4BB&quot; button_icon_placement=&quot;left&quot; button_on_hover=&quot;off&quot; global_colors_info=&quot;{}&quot;][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; width=&quot;65%&quot; width_tablet=&quot;80%&quot; width_phone=&quot;80%&quot; width_last_edited=&quot;on|phone&quot; custom_padding=&quot;0px||||false|false&quot; global_colors_info=&quot;{}&quot;][et_pb_column type=&quot;4_4&quot; _builder_version=&quot;4.27.5&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;][et_pb_image src=&quot;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/11\/2016-PFG-Group-Photo-Small.jpg&quot; title_text=&quot;2016-pfg-group-photo-small&quot; align=&quot;center&quot; force_fullwidth=&quot;on&quot; module_class=&quot;event-image&quot; _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; border_radii=&quot;on|10px|10px|10px|10px&quot; global_colors_info=&quot;{}&quot;][\/et_pb_image][et_pb_text _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; text_font_size=&quot;14px&quot; text_line_height=&quot;-0.1em&quot; text_orientation=&quot;center&quot; global_colors_info=&quot;{}&quot;]<\/p>\n<div class=\"mb-10\">\n<div class=\"mb-8\">\n<p class=\"text-center text-gray-600 text-sm mt-3 italic\">\u05ea\u05de\u05d5\u05e0\u05d4 \u05e7\u05d1\u05d5\u05e6\u05ea\u05d9\u05ea \u05e9\u05dc \u05de\u05e4\u05d2\u05e9 \u05d7\u05d5\u05dc\u05d9 ECD \u05d5\u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05d5\u05ea\u05d9\u05d4\u05dd \u05d4\u05d1\u05d9\u05e0\u05dc\u05d0\u05d5\u05de\u05d9 \u05d1\u05e4\u05e8\u05d9\u05d6 2016<\/p>\n<\/div>\n<\/div>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&quot;1&quot; disabled_on=&quot;off|off|off&quot; _builder_version=&quot;4.27.5&quot; _module_preset=&quot;default&quot; custom_padding=&quot;0px||||false|false&quot; locked=&quot;off&quot; global_colors_info=&quot;{}&quot;][et_pb_row _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; width=&quot;65%&quot; width_tablet=&quot;80%&quot; width_phone=&quot;80%&quot; width_last_edited=&quot;on|phone&quot; custom_padding=&quot;10px||||false|false&quot; global_colors_info=&quot;{}&quot; width__hover_enabled=&quot;off|desktop&quot;][et_pb_column type=&quot;4_4&quot; _builder_version=&quot;4.27.5&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;][et_pb_text _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; custom_margin=&quot;||15px||false|false&quot; border_width_bottom=&quot;2px&quot; border_color_bottom=&quot;#35A4BB&quot; global_colors_info=&quot;{}&quot;]<\/p>\n<h2>\u05e1\u05d9\u05db\u05d5\u05dd \u05de\u05e4\u05d2\u05e9 \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d4\u05de\u05e9\u05e4\u05d7\u05d5\u05ea<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;]\u05d1\u05e1\u05da \u05d4\u05db\u05dc, 63 \u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05d5\u05ea\u05d9\u05d4\u05dd, \u05d5\u05e8\u05d5\u05e4\u05d0\u05d9\u05dd \u05e8\u05d1\u05d9\u05dd, \u05de-17 \u05de\u05d3\u05d9\u05e0\u05d5\u05ea \u05e9\u05d5\u05e0\u05d5\u05ea, \u05d4\u05e9\u05ea\u05ea\u05e4\u05d5 \u05d1\u05de\u05e4\u05d2\u05e9 \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d4\u05de\u05e9\u05e4\u05d7\u05d5\u05ea \u05dc\u05e9\u05e0\u05ea 2016. \u05d4\u05de\u05e9\u05ea\u05ea\u05e4\u05d9\u05dd \u05dc\u05de\u05d3\u05d5 \u05e2\u05dc \u05de\u05d7\u05e7\u05e8\u05d9\u05dd \u05d5\u05e0\u05d9\u05e1\u05d5\u05d9\u05d9\u05dd \u05e2\u05d3\u05db\u05e0\u05d9\u05d9\u05dd \u05d1\u05ea\u05d7\u05d5\u05dd ECD , \u05db\u05d9\u05e6\u05d3 ECD \u05d9\u05db\u05d5\u05dc \u05dc\u05d4\u05e9\u05e4\u05d9\u05e2 \u05e2\u05dc \u05d0\u05d9\u05d1\u05e8\u05d9\u05dd \u05e9\u05d5\u05e0\u05d9\u05dd \u05d1\u05d2\u05d5\u05e3, \u05e0\u05d9\u05d4\u05d5\u05dc \u05db\u05d0\u05d1, \u05e1\u05e8\u05d9\u05e7\u05d5\u05ea \u05d5\u05e0\u05d9\u05d4\u05d5\u05dc \u05d8\u05d9\u05e4\u05d5\u05dc. \u05d0\u05e0\u05d0 \u05e2\u05d9\u05d9\u05e0\u05d5 \u05d1\u05d7\u05d5\u05de\u05e8\u05d9 \u05d4\u05d0\u05d9\u05e8\u05d5\u05e2 \u05e9\u05dc\u05d4\u05dc\u05df \u05dc\u05de\u05d9\u05d3\u05e2 \u05e0\u05d5\u05e1\u05e3 \u05e2\u05dc \u05d0\u05d9\u05e8\u05d5\u05e2 \u05de\u05d5\u05e6\u05dc\u05d7 \u05d6\u05d4.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; width=&quot;65%&quot; width_tablet=&quot;80%&quot; width_phone=&quot;80%&quot; width_last_edited=&quot;on|phone&quot; custom_padding=&quot;0px||0px||false|false&quot; global_colors_info=&quot;{}&quot;][et_pb_column type=&quot;4_4&quot; _builder_version=&quot;4.27.5&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;][et_pb_text _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; custom_margin=&quot;||15px||false|false&quot; border_width_bottom=&quot;2px&quot; border_color_bottom=&quot;#35A4BB&quot; global_colors_info=&quot;{}&quot;]<\/p>\n<h2>\u05de\u05e6\u05d2\u05ea<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;]\u05d4\u05de\u05e6\u05d2\u05d5\u05ea \u05d4\u05d1\u05d0\u05d5\u05ea \u05e0\u05db\u05dc\u05dc\u05d5 \u05d1\u05e1\u05d3\u05e8 \u05d4\u05d9\u05d5\u05dd \u05e9\u05dc \u05de\u05e4\u05d2\u05e9 \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d4\u05de\u05e9\u05e4\u05d7\u05d5\u05ea \u05dc\u05e9\u05e0\u05ea 2016 \u05d1\u05e4\u05e8\u05d9\u05d6, \u05e6\u05e8\u05e4\u05ea. \u05d1\u05e7\u05e8\u05d5 \u05d1<a href=\"https:\/\/www.youtube.com\/channel\/UCYR3skRhqAFWC5PTOGv34JQ\" target=\"_blank\" rel=\"noopener\">\u05e2\u05e8\u05d5\u05e5 \u05d4\u05d9\u05d5\u05d8\u05d9\u05d5\u05d1 \u05e9\u05dc ECD Global Alliance<\/a> \u05dc\u05e6\u05e4\u05d9\u05d9\u05d4 \u05d1\u05db\u05dc <a href=\"https:\/\/www.erdheim-chester.org\/he\/%d7%a1%d7%a8%d7%98%d7%95%d7%a0%d7%99%d7%9d\/\">\u05d4\u05e1\u05e8\u05d8\u05d5\u05e0\u05d9\u05dd<\/a> \u05e9\u05e4\u05d5\u05e8\u05e1\u05de\u05d5 \u05d1\u05e0\u05d5\u05e9\u05d0 ECD.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; width=&quot;65%&quot; width_tablet=&quot;80%&quot; width_phone=&quot;80%&quot; width_last_edited=&quot;on|phone&quot; custom_padding=&quot;||0px||false|false&quot; global_colors_info=&quot;{}&quot;][et_pb_column type=&quot;4_4&quot; _builder_version=&quot;4.27.5&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;][et_pb_text module_class=&quot;event-table&quot; _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;]<\/p>\n\n<table id=\"tablepress-34\" class=\"tablepress tablepress-id-34\">\n<thead>\n<tr class=\"row-1\">\n\t<th class=\"column-1\">Presenter<\/th><th class=\"column-2\">Presentation Slides<\/th><th class=\"column-3\">Presentation Video<\/th>\n<\/tr>\n<\/thead>\n<tbody class=\"row-striping row-hover\">\n<tr class=\"row-2\">\n\t<td class=\"column-1\">St\u00e9phane Barete, MD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/11\/BARETE_Skin.pdf\" target=\"_blank\">ECD Skin Issues<\/a><\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=N-DXQkyZVSk&amp;index=8&amp;list=PLd9i5JBvapc48Y1VxxkYEuEMnOJb7VI01\" target=\"_blank\">ECD Skin Issues<\/a><\/td>\n<\/tr>\n<tr class=\"row-3\">\n\t<td class=\"column-1\">Giulio Cavalli, MD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/11\/Cavalli_LungHeart-Issues.pdf\" target=\"_blank\">ECD Lung &amp; Heart Issues<\/a><\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=M5liyrxLbu4&amp;list=PLd9i5JBvapc48Y1VxxkYEuEMnOJb7VI01&amp;index=6\" target=\"_blank\">ECD Lung &amp; Heart Issues<\/a><\/td>\n<\/tr>\n<tr class=\"row-4\">\n\t<td class=\"column-1\">Carine Courtillot, MD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/11\/Courtillot_Endocrine.pdf\" target=\"_blank\">Endocrinological Consequences of ECD<\/a><\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=0qdkx5ulTZM&amp;index=7&amp;list=PLd9i5JBvapc48Y1VxxkYEuEMnOJb7VI01\" target=\"_blank\">Endocrinological Consequences of ECD<\/a><\/td>\n<\/tr>\n<tr class=\"row-5\">\n\t<td class=\"column-1\">Eli Diamond, MD<br \/>\n(Presented by Juvianee Estrada-Veras, MD)<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/11\/DIAMOND-ESTRADA-VERAS_Brain.pdf\" target=\"_blank\">ECD Neurological Issues<\/a><\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=JdI9wzkERZc&amp;index=3&amp;list=PLd9i5JBvapc48Y1VxxkYEuEMnOJb7VI01\" target=\"_blank\">ECD Neurological Issues<\/a><\/td>\n<\/tr>\n<tr class=\"row-6\">\n\t<td class=\"column-1\">Benjamin Durham, MD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/11\/Durham-Diamond_Studies.pdf\" target=\"_blank\">ECD Studies at MSKCC<\/a><\/td><td class=\"column-3\">See ECD Studies &amp; Trials Panel<\/td>\n<\/tr>\n<tr class=\"row-7\">\n\t<td class=\"column-1\">Philippe A. Grenier, MD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/11\/Grenier_Rad.pdf\" target=\"_blank\">CT of Thoracoabdominal Involvement in Erdheim-Chester Disease<\/a><\/td><td class=\"column-3\">See ECD Scan and Radiology Panel.<\/td>\n<\/tr>\n<tr class=\"row-8\">\n\t<td class=\"column-1\">Filip Janku, MD, PhD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/02\/Janku_Trials.pdf\" target=\"_blank\">Importance of Clinical Trials<\/a><\/td><td class=\"column-3\">See ECD Studies &amp; Trials Panel<\/td>\n<\/tr>\n<tr class=\"row-9\">\n\t<td class=\"column-1\">Kenneth L. McClain, MD, PhD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/02\/McClain_Trials.pdf\" target=\"_blank\">ECD Studies &amp; Trials \u2013 Texas Children\u2019s Cancer Center<\/a><\/td><td class=\"column-3\">See ECD Studies &amp; Trials Panel<\/td>\n<\/tr>\n<tr class=\"row-10\">\n\t<td class=\"column-1\">Augusto Vaglio, MD, PhD<\/td><td class=\"column-2\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/11\/Vaglio_Renal.pdf\" target=\"_blank\">Renal &amp; Ureteral Involvement in ECD<\/a><\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=4pUj3RwY8K4&amp;list=PLd9i5JBvapc48Y1VxxkYEuEMnOJb7VI01&amp;index=4\" target=\"_blank\">Renal &amp; Ureteral Involvement in ECD<\/a><\/td>\n<\/tr>\n<tr class=\"row-11\">\n\t<td class=\"column-1\">Panel participants:Achille Aouba, MD, PhD, Lorenzo Dagna, MD, Juvianee Estrada-Veras, MD,<br \/>\nJulien Haroche, MD, PhD, Filip Janku, MD, PhD,<br \/>\nKenneth McClain, MD PhD, Augusto Vaglio, MD, PhD<\/td><td class=\"column-2\">ECD Studies &amp; Trials Panel<\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=maOs9jQ5v6g&amp;index=2&amp;list=PLd9i5JBvapc48Y1VxxkYEuEMnOJb7VI01\" target=\"_blank\">ECD Studies &amp; Trials Panel<\/a><\/td>\n<\/tr>\n<tr class=\"row-12\">\n\t<td class=\"column-1\">Panel participants:Marcus Chen, MD, Phillippe Cluzel, MD PhD,<br \/>\nPhillippe Grenier, MD, Phillippe Maksund, MD<\/td><td class=\"column-2\">ECD Scan and Radiology Panel<\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=hbuLCxUuNMI&amp;list=PLd9i5JBvapc48Y1VxxkYEuEMnOJb7VI01&amp;index=9\" target=\"_blank\">ECD Scan and Radiology Panel<\/a><\/td>\n<\/tr>\n<tr class=\"row-13\">\n\t<td class=\"column-1\">Physician panelists answer patient questions regarding Erdheim-Chester Disease.<\/td><td class=\"column-2\">Doctor Question &amp; Answer Panel<\/td><td class=\"column-3\"><a href=\"https:\/\/www.youtube.com\/watch?v=hbuLCxUuNMI&amp;list=PLd9i5JBvapc48Y1VxxkYEuEMnOJb7VI01&amp;index=9\" target=\"_blank\">Doctor Question &amp; Answer Panel<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; width=&quot;65%&quot; width_tablet=&quot;80%&quot; width_phone=&quot;80%&quot; width_last_edited=&quot;on|phone&quot; custom_padding=&quot;||0px||false|false&quot; global_colors_info=&quot;{}&quot;][et_pb_column type=&quot;4_4&quot; _builder_version=&quot;4.27.5&quot; _module_preset=&quot;default&quot; global_colors_info=&quot;{}&quot;][et_pb_text _builder_version=&quot;4.27.6&quot; _module_preset=&quot;default&quot; custom_margin=&quot;||15px||false|false&quot; border_width_bottom=&quot;2px&quot; border_color_bottom=&quot;#35A4BB&quot; global_colors_info=&quot;{}&quot;]<\/p>\n<h2>\u05ea\u05e6\u05dc\u05d5\u05de\u05d9\u05dd<\/h2>\n<p>[\/et_pb_text][et_pb_gallery gallery_ids=&quot;39548,39560,39572,39584,39596,39608,39620,39632,39644,39656,39668,39680,39692,39704,39716,39728,39740,39752,39764,39776,39788,39800,39812,39824,39836,39848,39860,39872,39884,39896,39908,39920,39932,39944,39956,39968,39980,39992,40004&quot; 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