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Presenter<\/th>Presentation Slides<\/th>Presentation Video<\/th>\n<\/tr>\n<\/thead>\n
Julien Haroche, MD<\/td>N\/A<\/td>Welcome<\/a><\/td>\n<\/tr>\n
St\u00e9phane Barete, MD<\/td>ECD Skin Issues<\/a><\/td>ECD Skin Issues<\/a><\/td>\n<\/tr>\n
Giulio Cavalli, MD<\/td>ECD Lung & Heart Issues<\/a><\/td>ECD Lung & Heart Issues<\/a><\/td>\n<\/tr>\n
Carine Courtillot, MD<\/td>Endocrinological Consequences of ECD<\/a><\/td>Endocrinological Consequences of ECD<\/a><\/td>\n<\/tr>\n
Eli Diamond, MD
\n(Presented by Juvianee Estrada-Veras, MD)<\/td>		ECD Neurological Issues<\/a><\/td>ECD Neurological Issues<\/a><\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>ECD Studies at MSKCC<\/a><\/td>See ECD Studies & Trials Panel<\/td>\n<\/tr>\n
Philippe A. Grenier, MD<\/td>CT of Thoracoabdominal Involvement in Erdheim-Chester Disease<\/a><\/td>See ECD Scan and Radiology Panel.<\/td>\n<\/tr>\n
Filip Janku, MD, PhD<\/td>Importance of Clinical Trials<\/a><\/td>See ECD Studies & Trials Panel<\/td>\n<\/tr>\n
Kenneth L. McClain, MD, PhD<\/td>ECD Studies & Trials \u2013 Texas Children\u2019s Cancer Center<\/a><\/td>See ECD Studies & Trials Panel<\/td>\n<\/tr>\n
Augusto Vaglio, MD, PhD<\/td>Renal & Ureteral Involvement in ECD<\/a><\/td>Renal & Ureteral Involvement in ECD<\/a><\/td>\n<\/tr>\n
Panel participants:Achille Aouba, MD, PhD, Lorenzo Dagna, MD, Juvianee Estrada-Veras, MD,
\nJulien Haroche, MD, PhD, Filip Janku, MD, PhD,
\nKenneth McClain, MD PhD, Augusto Vaglio, MD, PhD<\/td>		ECD Studies & Trials Panel<\/td>ECD Studies & Trials Panel<\/a><\/td>\n<\/tr>\n
Panel participants:Marcus Chen, MD, Phillippe Cluzel, MD PhD,
\nPhillippe Grenier, MD, Phillippe Maksund, MD<\/td>		ECD Scan and Radiology Panel<\/td>ECD Scan and Radiology Panel<\/a><\/td>\n<\/tr>\n
Physician panelists answer patient questions regarding Erdheim-Chester Disease.<\/td>Doctor Question & Answer Panel<\/td>Doctor Question & Answer Panel<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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\u05ea\u05e6\u05dc\u05d5\u05de\u05d9\u05dd<\/h2>\n

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\u05ea\u05de\u05d5\u05e0\u05d4 \u05e7\u05d1\u05d5\u05e6\u05ea\u05d9\u05ea \u05e9\u05dc \u05de\u05e4\u05d2\u05e9 \u05d7\u05d5\u05dc\u05d9 ECD \u05d5\u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05d5\u05ea\u05d9\u05d4\u05dd \u05d4\u05d1\u05d9\u05e0\u05dc\u05d0\u05d5\u05de\u05d9 \u05d1\u05e4\u05e8\u05d9\u05d6 2016 \u05e1\u05d9\u05db\u05d5\u05dd \u05de\u05e4\u05d2\u05e9 \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d4\u05de\u05e9\u05e4\u05d7\u05d5\u05ea\u05de\u05e4\u05d2\u05e9 \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d4\u05de\u05e9\u05e4\u05d7\u05d5\u05ea \u05dc\u05e9\u05e0\u05ea 2016 \u05d4\u05e4\u05d2\u05d9\u05e9 63 \u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d1\u05e0\u05d9 \u05de\u05e9\u05e4\u05d7\u05d4 \u05de-17 \u05de\u05d3\u05d9\u05e0\u05d5\u05ea. \u05dc\u05e7\u05d4\u05d9\u05dc\u05ea \u05d4\u05de\u05d8\u05d5\u05e4\u05dc\u05d9\u05dd \u05d5\u05d4\u05de\u05e9\u05e4\u05d7\u05d5\u05ea \u05d4\u05e6\u05d8\u05e8\u05e4\u05d5 […]<\/p>\n","protected":false},"author":20,"featured_media":173242,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"\"\"<\/a>Location:<\/strong> Paris, France\r\n\r\nA total of 63 patients and family members, and numerous physicians, from 17 different countries attended the 2016 Patient & Family Gathering. Attendees learned about current ECD studies and trials, how ECD can affect various organs of the body, pain management, scans, and care management. Please see the event materials below for more on this successful event.\r\n

2016 Event Materials<\/h4>\r\nPresentations<\/strong>\r\n\r\nThe following presentations were included in the 2016 Patient & Family Gathering agenda in Paris, France. Visit the ECD Global Alliance YouTube channel<\/a> for all published ECD related videos.\r\n\r\n[table id=34 \/]\r\n\r\nPhotos<\/strong>\r\n\r\n[gallery columns=\"4\" size=\"full\" ids=\"39542,39554,39566,39578,39590,39602,39614,39626,39638,39650,39662,39674,39686,39698,39710,39722,39734,39746,39758,39770,39782,39794,39806,39818,39830,39842,39854,39866,39878,39890,39902,39914,39926,39938,39950,39962,39974,39986,39998\"]\r\n

2015 Event Materials<\/h4>\r\nPresentations<\/strong>\r\n\r\nPlease see the following presentations from the 2015 Patient Gathering in Houston, TX.\r\n\r\n[table id=35 \/]\r\n\r\nPhotos\r\n\r\n[gallery columns=\"4\" size=\"full\" ids=\"40037,40049,40061,40073,40085,40097,40109,40121,40133,40145,40157,40169,40181,40193,40205,40217,40229,40241,40253,40265,40277,40289,40301,40313,40325,40337,40349,40361,40373,40385,40397,40409,40421,40433,40445,40457,40469,40481,40493,40505,40517,40529,40541,40553,40565,40577,40589,40601,40613,40625,40637,40649,40661,40673,40685,40697,40709,40721,40733,40745,40757,40769,40781,40793,40805,40817,40829,40841,40853,40865,40877,40889,40901,40913,40925,40937,40949,40961,40973,40985,40997,41009,41021,41033,41045,41057,41069,41081,41093,41105,41117,41129,41141,41153,41165,41177,41189,41201,41213,41225,41237,41249,41261,41273,41285,41297,41309,41321,41333,41345,41357,41369,41381,41393,41405,41417,41429,41441,41453,41465,41477,41489,41501\"]","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4856],"tags":[],"class_list":["post-102294","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-4856"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/102294","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/comments?post=102294"}],"version-history":[{"count":36,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/102294\/revisions"}],"predecessor-version":[{"id":173910,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/102294\/revisions\/173910"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media\/173242"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media?parent=102294"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/categories?post=102294"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/tags?post=102294"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}