{"id":102075,"date":"2016-04-01T18:13:58","date_gmt":"2016-04-01T23:13:58","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%d7%94%d7%a1%d7%99%d7%9e%d7%a4%d7%95%d7%96%d7%99%d7%95%d7%9f-%d7%94%d7%a8%d7%a4%d7%95%d7%90%d7%99-%d7%94%d7%a9%d7%a0%d7%aa%d7%99-%d7%94%d7%a8%d7%91%d7%99%d7%a2%d7%99-%d7%91%d7%a0%d7%95%d7%a9%d7%90-ecd\/"},"modified":"2026-06-03T06:48:25","modified_gmt":"2026-06-03T11:48:25","slug":"%d7%94%d7%a1%d7%99%d7%9e%d7%a4%d7%95%d7%96%d7%99%d7%95%d7%9f-%d7%94%d7%a8%d7%a4%d7%95%d7%90%d7%99-%d7%94%d7%a9%d7%a0%d7%aa%d7%99-%d7%94%d7%a8%d7%91%d7%99%d7%a2%d7%99-%d7%91%d7%a0%d7%95%d7%a9%d7%90-ecd","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/he\/%d7%94%d7%a1%d7%99%d7%9e%d7%a4%d7%95%d7%96%d7%99%d7%95%d7%9f-%d7%94%d7%a8%d7%a4%d7%95%d7%90%d7%99-%d7%94%d7%a9%d7%a0%d7%aa%d7%99-%d7%94%d7%a8%d7%91%d7%99%d7%a2%d7%99-%d7%91%d7%a0%d7%95%d7%a9%d7%90-ecd\/","title":{"rendered":"\u05d4\u05e1\u05d9\u05de\u05e4\u05d5\u05d6\u05d9\u05d5\u05df \u05d4\u05e8\u05e4\u05d5\u05d0\u05d9 \u05d4\u05e9\u05e0\u05ea\u05d9 \u05d4\u05e8\u05d1\u05d9\u05e2\u05d9 \u05d1\u05e0\u05d5\u05e9\u05d0 ECD, \u05e4\u05e8\u05d9\u05d6, \u05e6\u05e8\u05e4\u05ea"},"content":{"rendered":"

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\u05ea\u05de\u05d5\u05e0\u05ea \u05e7\u05d1\u05d5\u05e6\u05d4 \u05e9\u05dc \u05d4\u05e1\u05d9\u05de\u05e4\u05d5\u05d6\u05d9\u05d5\u05df \u05d4\u05e8\u05e4\u05d5\u05d0\u05d9 \u05d1\u05e4\u05e8\u05d9\u05d6 2016<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built="1" _builder_version="4.27.5" _module_preset="default" custom_padding="0px||||false|false" locked="off" global_colors_info="{}" theme_builder_area="post_content"][et_pb_row _builder_version="4.27.6" _module_preset="default" width="65%" width_tablet="80%" width_phone="80%" width_last_edited="on|phone" custom_padding="10px||||false|false" global_colors_info="{}" width__hover_enabled="off|desktop" theme_builder_area="post_content"][et_pb_column type="4_4" _builder_version="4.27.5" _module_preset="default" global_colors_info="{}" theme_builder_area="post_content"][et_pb_text _builder_version="4.27.6" _module_preset="default" custom_margin="||15px||false|false" border_width_bottom="2px" border_color_bottom="#35A4BB" global_colors_info="{}" theme_builder_area="post_content"]<\/p>\n

\u05e1\u05d9\u05db\u05d5\u05dd \u05d4\u05e1\u05d9\u05de\u05e4\u05d5\u05d6\u05d9\u05d5\u05df<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version="4.27.6" _module_preset="default" locked="off" global_colors_info="{}" theme_builder_area="post_content"]\u05d1\u05e8\u05d9\u05ea Erdheim-Chester Disease Global Alliance \u05e9\u05de\u05d7\u05d4 \u05dc\u05e1\u05e4\u05e7 \u05d0\u05ea \u05d4\u05e1\u05d9\u05db\u05d5\u05dd \u05d4\u05d1\u05d0 \u05e9\u05dc \u05d4\u05d4\u05e8\u05e6\u05d0\u05d5\u05ea \u05e9\u05e0\u05d9\u05ea\u05e0\u05d5 \u05d1\u05e1\u05d9\u05de\u05e4\u05d5\u05d6\u05d9\u05d5\u05df \u05d4\u05e8\u05e4\u05d5\u05d0\u05d9 \u05d4\u05d1\u05d9\u05e0\u05dc\u05d0\u05d5\u05de\u05d9 \u05d4\u05e9\u05e0\u05ea\u05d9 \u05d4\u05e8\u05d1\u05d9\u05e2\u05d9 \u05d1\u05e0\u05d5\u05e9\u05d0 ECD \u05d4\u05e9\u05e0\u05d4, \u05e9\u05d4\u05ea\u05e7\u05d9\u05d9\u05dd \u05d1\u05be15 \u05d1\u05e1\u05e4\u05d8\u05de\u05d1\u05e8 2016, \u05d1\u05beH\u00f4pital Piti\u00e9-Salp\u00eatri\u00e8re \u05d1\u05e4\u05e8\u05d9\u05d6, \u05e6\u05e8\u05e4\u05ea. \u05d4\u05e4\u05d2\u05d9\u05e9\u05d4 \u05d0\u05e4\u05e9\u05e8\u05d4 \u05dc\u05d0\u05e0\u05e9\u05d9 \u05de\u05e7\u05e6\u05d5\u05e2 \u05e8\u05e4\u05d5\u05d0\u05d9\u05d9\u05dd \u05dc\u05e9\u05ea\u05e3 \u05e4\u05e2\u05d5\u05dc\u05d4 \u05d1\u05de\u05d7\u05e7\u05e8 ECD, \u05dc\u05d7\u05dc\u05d5\u05e7 \u05de\u05de\u05e6\u05d0\u05d9\u05dd \u05e8\u05e4\u05d5\u05d0\u05d9\u05d9\u05dd \u05d5\u05dc\u05d3\u05d5\u05df \u05d1\u05d8\u05d9\u05e4\u05d5\u05dc \u05d1\u05d7\u05d5\u05dc\u05d9\u05dd. \u05ea\u05d5\u05d3\u05d4 \u05dc\u05de\u05d0\u05e8\u05d7 \u05d4\u05de\u05e9\u05d5\u05ea\u05e3 \u05e9\u05dc \u05d4\u05e9\u05e0\u05d4, \u05e4\u05e8\u05d5\u05e4\u05e1\u05d5\u05e8 Julien Haroche, MD, PhD; \u05dc\u05db\u05dc \u05d4\u05de\u05e8\u05e6\u05d9\u05dd \u05e9\u05e9\u05d9\u05ea\u05e4\u05d5 \u05d0\u05ea \u05d4\u05e0\u05ea\u05d5\u05e0\u05d9\u05dd \u05d5\u05d4\u05de\u05d5\u05de\u05d7\u05d9\u05d5\u05ea \u05e9\u05dc\u05d4\u05dd \u05d1\u05de\u05d4\u05dc\u05da \u05d3\u05d9\u05d5\u05e0\u05d9 \u05d4\u05e4\u05d0\u05e0\u05dc; \u05dc\u05db\u05dc \u05d4\u05de\u05e9\u05ea\u05ea\u05e4\u05d9\u05dd \u05d4\u05de\u05e2\u05d5\u05e0\u05d9\u05d9\u05e0\u05d9\u05dd \u05dc\u05dc\u05de\u05d5\u05d3 \u05e2\u05d5\u05d3 \u05e2\u05dc ECD; \u05d5\u05dc\u05db\u05dc \u05d4\u05de\u05e2\u05d5\u05e8\u05d1\u05d9\u05dd \u05d1\u05ea\u05db\u05e0\u05d5\u05df \u05d5\u05d4\u05e4\u05d9\u05db\u05ea \u05d4\u05d0\u05d9\u05e8\u05d5\u05e2 \u05d4\u05d6\u05d4 \u05dc\u05d4\u05e6\u05dc\u05d7\u05d4. \u05ea\u05d5\u05d3\u05d4 \u05de\u05d9\u05d5\u05d7\u05d3\u05ea \u05dc\u05de\u05ea\u05e0\u05d3\u05d1\u05d9\u05dd \u05e9\u05d9\u05e6\u05e8\u05d5 \u05e1\u05d9\u05db\u05d5\u05dd \u05d6\u05d4 \u05e2\u05d1\u05d5\u05e8 \u05d4\u05e7\u05d4\u05d9\u05dc\u05d4 \u05d5\u05e2\u05d1\u05d5\u05e8 \u05d0\u05e0\u05e9\u05d9 \u05d4\u05de\u05e7\u05e6\u05d5\u05e2 \u05e9\u05dc\u05d0 \u05d9\u05db\u05dc\u05d5 \u05dc\u05d4\u05e9\u05ea\u05ea\u05e3.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version="4.27.6" _module_preset="default" width="65%" width_tablet="80%" width_phone="80%" width_last_edited="on|phone" custom_padding="0px||0px||false|false" locked="off" global_colors_info="{}" theme_builder_area="post_content"][et_pb_column type="4_4" _builder_version="4.27.5" _module_preset="default" global_colors_info="{}" theme_builder_area="post_content"][et_pb_text _builder_version="4.27.5" _module_preset="default" custom_margin="||15px||false|false" border_width_bottom="2px" border_color_bottom="#14b8a6" global_colors_info="{}" theme_builder_area="post_content"]<\/p>\n

\u05ea\u05d5\u05db\u05e0\u05d9\u05d5\u05ea \u05e2\u05dd \u05e1\u05d3\u05e8 \u05d9\u05d5\u05dd \u05dc\u05e1\u05d9\u05de\u05e4\u05d5\u05d6\u05d9\u05d5\u05df<\/h2>\n

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\u05d4\u05de\u05e6\u05d2\u05d5\u05ea \u05d4\u05d1\u05d0\u05d5\u05ea \u05d4\u05d5\u05e6\u05d2\u05d5 \u05d1\u05de\u05e4\u05d2\u05e9 2016. \u05d1\u05e7\u05e8\u05d5 \u05d1\u05e2\u05e8\u05d5\u05e5 \u05d4\u05d9\u05d5\u05d8\u05d9\u05d5\u05d1 \u05e9\u05dc ECD Global Alliance<\/a> \u05dc\u05e6\u05e4\u05d9\u05d9\u05d4 \u05d1\u05db\u05dc \u05d4\u05e1\u05e8\u05d8\u05d5\u05e0\u05d9\u05dd<\/a> \u05d4\u05e7\u05e9\u05d5\u05e8\u05d9\u05dd \u05dc-ECD \u05e9\u05e4\u05d5\u05e8\u05e1\u05de\u05d5. <\/p>\n

[\/et_pb_text][et_pb_text module_class="event-table" _builder_version="4.27.6" _module_preset="default" global_colors_info="{}" theme_builder_area="post_content"]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>Videos<\/th>\n<\/tr>\n<\/thead>\n
Corrado Campochiaro, MD<\/td>Management of ECD Symptoms and Side Effects of Treatments<\/a><\/td>Management of ECD Symptoms and Side Effects of Treatments<\/a><\/td>\n<\/tr>\n
Giulio Cavalli, MD<\/td>Adult Onset (Infratentorial) Leukoencephalopathy as Presenting Manifestation of Erdheim-Chester Disease<\/a><\/td>Adult Onset (Infratentorial) Leukoencephalopathy as Presenting Manifestation of Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Carine Courtillot, MD<\/td>Endocrine manifestations in Erdheim-Chester disease<\/a><\/td>Endocrine manifestations in Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-Derived Xenograft Murine Models<\/a><\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-Derived Xenograft Murine Models<\/a><\/td>\n<\/tr>\n
Marina Ferrarini, MD<\/td>Tailoring Treatment for Erdheim-Chester Disease: Focus on ECD<\/a><\/td>Tailoring Treatment for Erdheim-Chester Disease: Focus on ECD<\/a><\/td>\n<\/tr>\n
Ronald Go, MD<\/td>Efficacy of Cladribine (2-CdA) in the Treatment of Erdheim-Chester Disease (ECD)<\/a><\/td>Efficacy of Cladribine (2-CdA) in the Treatment of Erdheim-Chester Disease (ECD)<\/a><\/td>\n<\/tr>\n
Filip Janku, MD, PhD<\/td>Encouraging activity of MEK inhibitor trametinib in patients with Erdheim-Chester disease irrespective of BRAF mutation statusClinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>Encouraging activity of MEK inhibitor trametinib in patients with Erdheim-Chester disease irrespective of BRAF mutation statusClinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Javier Martin, MD, PhD<\/td>Future Genetic Studies in Erdheim-Chester disease \u2013 GWAS Study<\/a><\/td>Future Genetic Studies in Erdheim-Chester disease \u2013 GWAS Study<\/a><\/td>\n<\/tr>\n
Kenneth McClain, MD, PhD<\/td>Elevated CSF Osteopontin and Circulating Cells with BRAF Mutations in Patients with Langerhans Cell Histiocytosis-Associated Neurodegeneration -A Model for ECD?<\/a><\/td>Elevated CSF Osteopontin and Circulating Cells with BRAF Mutations in Patients with Langerhans Cell Histiocytosis-Associated Neurodegeneration -A Model for ECD?<\/a><\/td>\n<\/tr>\n
Augusto Vaglio, MD, PhD<\/td>MRI evidence of cardiac involvement in Erdheim-Chester disease<\/a><\/td>MRI evidence of cardiac involvement in Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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\u05ea\u05de\u05d5\u05e0\u05ea \u05e7\u05d1\u05d5\u05e6\u05d4 \u05e9\u05dc \u05d4\u05e1\u05d9\u05de\u05e4\u05d5\u05d6\u05d9\u05d5\u05df \u05d4\u05e8\u05e4\u05d5\u05d0\u05d9 \u05d1\u05e4\u05e8\u05d9\u05d6 2016 \u05e1\u05d9\u05db\u05d5\u05dd \u05d4\u05e1\u05d9\u05de\u05e4\u05d5\u05d6\u05d9\u05d5\u05df\u05d1\u05e8\u05d9\u05ea Erdheim-Chester Disease Global Alliance \u05e9\u05de\u05d7\u05d4 \u05dc\u05e1\u05e4\u05e7 \u05d0\u05ea \u05d4\u05e1\u05d9\u05db\u05d5\u05dd \u05d4\u05d1\u05d0 \u05e9\u05dc \u05d4\u05d4\u05e8\u05e6\u05d0\u05d5\u05ea \u05e9\u05e0\u05d9\u05ea\u05e0\u05d5 \u05d1\u05e1\u05d9\u05de\u05e4\u05d5\u05d6\u05d9\u05d5\u05df \u05d4\u05e8\u05e4\u05d5\u05d0\u05d9 \u05d4\u05d1\u05d9\u05e0\u05dc\u05d0\u05d5\u05de\u05d9 \u05d4\u05e9\u05e0\u05ea\u05d9 \u05d4\u05e8\u05d1\u05d9\u05e2\u05d9 \u05d1\u05e0\u05d5\u05e9\u05d0 ECD \u05d4\u05e9\u05e0\u05d4, \u05e9\u05d4\u05ea\u05e7\u05d9\u05d9\u05dd […]<\/p>\n","protected":false},"author":20,"featured_media":135353,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4817],"tags":[],"class_list":["post-102075","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-4817"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/102075","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/comments?post=102075"}],"version-history":[{"count":35,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/102075\/revisions"}],"predecessor-version":[{"id":136765,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/posts\/102075\/revisions\/136765"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media\/135353"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/media?parent=102075"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/categories?post=102075"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/he\/wp-json\/wp\/v2\/tags?post=102075"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}