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Gj\u00f8r en positiv forskjell – meld deg som frivillig!<\/p>\n
Takk for at du vurderer \u00e5 l\u00e5ne ut dine ferdigheter til organisasjonens arbeid. ECDGA-medlemmene er et fellesskap av mennesker som g\u00e5r sammen for \u00e5 overvinne ECD og histiocyt\u00e6re sykdommer hos voksne. Frivillige bidrar til \u00e5 gj\u00f8re det daglige arbeidet mulig! Vi h\u00e5per du har lyst til \u00e5 engasjere deg.<\/p>\n
“Du kan si at jeg har en veldig personlig agenda overfor [\u00e5 hjelpe ECDGA]. Jeg ser hva organisasjonen gj\u00f8r for en foreldrel\u00f8s sykdom. P\u00e5 grunn av ECDGA vet jeg i dag hvilken fremtidig behandling som kan v\u00e6re tilgjengelig for personer som meg selv. Jeg ville ikke bare v\u00e6re en pasient i b\u00f8kene, men en bidragsyter til det som ECDGA st\u00e5r for.”<\/em> – Mohammad Chowdhury, pasient, styremedlem, giver, frivillig<\/p>\n