Lieu :<\/strong> Hilton at UAB Downtown<\/p>\nVendredi 1er mai 2026<\/strong>
\nSymposium m\u00e9dical : <\/strong>8h00-17h00
\nLieu :<\/strong> Marnix E. Heersink Conference Center \u00e0 l’Universit\u00e9 d’Alabama \u00e0 Birmingham
\nR\u00e9ception m\u00e9dicale du symposium m\u00e9dical : <\/strong>18h00-20h00
\nLieu :<\/strong> Marnix E. Heersink Conference Center \u00e0 l’Universit\u00e9 d’Alabama \u00e0 Birmingham<\/p>\nSamedi 2 mai 2026<\/strong>
\nR\u00e9union du centre de soins ECD : <\/strong>8h00-11h00
\nLieu :<\/strong> UAB Cancer Center<\/p>\nCet \u00e9v\u00e9nement r\u00e9unira la communaut\u00e9 mondiale de la maladie d’Erdheim-Chester avec des experts m\u00e9dicaux de premier plan pour partager les derni\u00e8res recherches, les perspectives cliniques et les ressources de la communaut\u00e9. Les participants peuvent s’attendre \u00e0 des sessions \u00e9ducatives, \u00e0 des opportunit\u00e9s de se connecter avec leurs pairs et \u00e0 des mises \u00e0 jour sur les traitements \u00e9mergents et les soins aux patients.<\/p>\n
De plus amples informations sur l’h\u00f4tel et les points forts du programme seront communiqu\u00e9es dans les mois \u00e0 venir.<\/p>\n
L’ordre du jour<\/h2>\n\n
\n\n\n\t| Time<\/th> | Subject<\/th> | Presenter<\/th>\n<\/tr>\n<\/thead>\n |
\n\n\t| 8:00 am<\/td> | Registration & light breakfast<\/td> | <\/td>\n<\/tr>\n |
\n\t| 8:30 am<\/td> | Welcome to Birmingham and the 11th Annual Erdheim-Chester Disease International Conference<\/td> | Gaurav Goyal<\/strong>
\nUniversity of Alabama at Birmingham, Birmingham, AL USA<\/td>\n<\/tr>\n\n\tKeynote Address<\/strong><\/td>\n<\/tr>\n\n\t| 8:45 am <\/td> | Diversity and Degeneration in
\nNeurohistiocytic Disease<\/td> | Nicole Coufal<\/strong>
\nUniversity of California, San Diego
\nUSA<\/td>\n<\/tr>\n\n\t| 9:25 am<\/td> | Break<\/td>\n<\/tr>\n | \n\tMorning Abstract Presentations Session 1: Cells, Clones & Circuits: Where Histiocytosis Begins (and Persists)<\/strong><\/td>\n<\/tr>\n\n\t| 9:35 am<\/td> | ARAF Mutations Drive Histiocytic Neoplasms
\nIn Vivo and Provide Insights into Cellular
\nOrigin<\/td> | Benjamin Durham<\/strong>
\nRutgers Cancer Institute, Robert
\nWood Johnson School of Medicine,
\nBrunswick, NJ<\/td>\n<\/tr>\n\n\t| 9:50 am<\/td> | Tracking BRAF V600E Persistence under MEK
\nInhibition in Histiocytoses: a B-cell\u2013enriched
\nsignal<\/td> | Julien Haroche<\/strong>
\nDepartment of Internal Medicine &
\nE3M Institute, Piti\u00e9-Salp\u00eatri\u00e8re
\nHospital, AP-HP \u2013 Sorbonne
\nUniversity, Paris, France<\/td>\n<\/tr>\n\n\t| 10:05 am<\/td> | Distribution of MAP2K1 Variants Across
\nPeripheral Blood Cells in Erdheim-Chester
\nDisease and Other Histiocytoses<\/td> | Irena Ungureanu<\/strong>
\nAmbroise-Par\u00e9 Hospital, Pathology
\nDepartment, Boulogne-Billancourt,
\nFrance<\/td>\n<\/tr>\n\n\t| 10:20 am<\/td> | The Clonal Origin and Evolution of High-Risk
\nMultisystem Histiocytosis in Adults<\/td> | Matthew Collin<\/strong>
\nNewcastle University, United
\nKingdom<\/td>\n<\/tr>\n\n\t| 10:35 am<\/td> | Networking Break<\/td>\n<\/tr>\n | \n\tMorning Abstract Presentations Session 2: Genotype \u2192 Therapy: Biomarkers, Responses, and New Vulnerabilities<\/strong><\/td>\n<\/tr>\n\n\t| 10:50 am<\/td> | KRAS Mutations in Histiocytic Neoplasms:
\nMutation Spectrum and Response to MEK
\nInhibition<\/td> | Dongni Yi<\/strong>
\nMayo Clinic, Rochester, MN USA<\/td>\n<\/tr>\n\n\t| 11:05 am<\/td> | Cyclin D1 Overexpression Drives Replication
\nStress and Creates Therapeutic
\nVulnerabilities in Histiocytic Neoplasms<\/td> | Dongni Yi<\/strong>
\nMayo Clinic, Rochester, MN USA<\/td>\n<\/tr>\n\n\t| 11:20 am<\/td> | Clonal Hematopoiesis Predicts Response to
\nInterferon-\u03b1 in Erdheim-Chester Disease and
\nMyeloproliferative Neoplasms<\/td> | J\u00e9r\u00f4me Razanamahery<\/strong>
\nDijon University Hospital, France<\/td>\n<\/tr>\n\n\t| 11:35 am<\/td> | Impact of Additional Genetic Variants in the
\nCourse of Erdheim-Chester Disease\u2026 a
\nMulticentric Longitudinal Study of 445 French
\nPatients<\/td> | F\u00e9licien Triboulet<\/strong>
\nPiti\u00e9-Salp\u00eatri\u00e8re hospital, Sorbonne
\nUniversity, Paris, France<\/td>\n<\/tr>\n\n\t| 11:50 am<\/td> | Group Photo<\/td> | <\/td>\n<\/tr>\n | \n\t| 12:00 pm<\/td> | Lunch<\/td>\n<\/tr>\n | \n\tAfternoon Abstract Presentations Session 3: Pixels to Patterns: ECD and Xanthogranuloma<\/strong><\/td>\n<\/tr>\n\n\t| 1:00 pm<\/td> | Central Nervous System Imaging
\nAbnormalities in Erdheim\u2013Chester Disease: A
\nSystematic Review<\/td> | Mustafa Abomohsen<\/strong>
\nBrookdale University Hospital and
\nMedical Center, Brooklyn, NY USA<\/td>\n<\/tr>\n\n\t| 1:15 pm<\/td> | Musculoskeletal System Imaging
\nAbnormalities in Erdheim\u2013Chester Disease: A
\nSystematic Review<\/td> | Mustafa Abomohsen<\/strong>
\nBrookdale University Hospital and
\nMedical Center, Brooklyn, NY USA<\/td>\n<\/tr>\n\n\t| 1:30 pm<\/td> | Patterns of Presentation and Outcomes in
\nAdult Xanthogranuloma<\/td> | Guneet Janda<\/strong>
\nMayo Clinic, Rochester, MN USA<\/td>\n<\/tr>\n\n\t| 1:45 pm<\/td> | Networking Break<\/td>\n<\/tr>\n | \n\tAfternoon Abstract Presentations Session 4: Care in the Real World: Treatment Patterns and Survivorship<\/strong><\/td>\n<\/tr>\n\n\t| 2:00 pm<\/td> | Real World Frontline Systemic Anti-Cancer
\nTreatment Patterns and Outcomes in
\nErdheim\u2013Chester Disease<\/td> | Carla Isabel Borre<\/strong>
\nMayo Clinic, Rochester, MN USA<\/td>\n<\/tr>\n\n\t| 2:15 pm<\/td> | Burden of Chronic Health Conditions After
\nDiagnosis of Erdheim\u2013Chester Disease
\n(ECD): Early Results from the Histiocytic
\nDisorder Survivor Study<\/td> | Gaurav Goyal<\/strong>
\nUniversity of Alabama at
\nBirmingham, Birmingham, AL USA<\/td>\n<\/tr>\n\n\t| 2:30 pm<\/td> | Destombes-Rosai-Dorfman Disease:
\nClinical, Molecular Characteristics and
\nTreatment Response: data from a
\nretrospective cohort of 107 patients<\/td> | Julien Haroche<\/strong>
\nDepartment of Internal Medicine &
\nE3M Institute, Piti\u00e9-Salp\u00eatri\u00e8re
\nHospital, AP-HP \u2013 Sorbonne
\nUniversity, Paris, France<\/td>\n<\/tr>\n\n\t| 2:45 pm<\/td> | Considerations for Assessment and
\nTreatment of Neuropsychiatric Symptoms in
\nECD<\/td> | Anneka Johnston<\/strong>
\nRush University Medical Center,
\nChicago IL<\/td>\n<\/tr>\n\n\tPoster Presentations and Networking<\/strong><\/td>\n<\/tr>\n\n\t| 3:00 pm<\/td> | Erdheim-Chester Disease (ECD) is a Rare
\nHistiocytic Neoplasm of Non-Langerhans
\nCell Histiocytosis<\/td> | Abdalla Bowirrat<\/strong>
\nAriel University, Israel<\/td>\n<\/tr>\n\n\tDiagnostic challenges in mixed ErdheimChester Disease and Langerhans Cell
\nHistiocytosis in a 54-year-old male<\/td> | Sameer Andani<\/strong>
\nMofitt Cancer Center & University
\nof South Florida<\/td>\n<\/tr>\n\n\tA Mycosis Fungoides-like Drug Reaction
\nRapidly Resolving Following Switch from
\nBRAF Inhibitor to MEK Inhibitor Monotherapy
\nin Erdheim-Chester Disease<\/td> | Saipriya Ayyar<\/strong>
\nUniversity of Cincinnati\/UC Health,
\nCincinnati OH<\/td>\n<\/tr>\n\n\tMultimodality Imaging in Erdheim\u2013Chester
\nDisease: Radiologic Insights from Pediatric
\nand Adult Cases<\/td> | Priyanka Naranje<\/strong>
\nAll India Institute of Medical
\nSciences, New Delhi, India<\/td>\n<\/tr>\n\n\tCardiovascular System Imaging
\nAbnormalities in Erdheim-Chester Disease: A
\nSystematic Review<\/td> | Mustafa Abomohsen<\/strong>
\nBrookdale University Hospital and
\nMedical Center, Brooklyn, NY USA<\/td>\n<\/tr>\n\n\tBRAF-Positive Erdheim\u2013Chester Disease with
\nProgressive Pulmonary and Vascular
\nInvolvement Successfully Treated with
\nVemurafenib: A Case Report<\/td> | Hulya Yilmaz Tekinhatun<\/strong>
\nDiyarbakir Gazi Yasargil Training and
\nResearch Hospital, Turkey<\/td>\n<\/tr>\n\n\tConcurrent Erdheim-Chester Disease and
\nClassical Hodgkin Lymphoma with
\nunexpected response to lymphoma-directed
\ntherapy<\/td> | Rebecca Denson<\/strong>
\nNew York Presbyterian-Weill Cornell
\nMedicine, New York, NY<\/td>\n<\/tr>\n\n\tAbdominal Imaging Abnormalities in
\nErdheim-Chester Disease: A Systematic
\nReview<\/td> | Mustafa Abomohsen<\/strong>
\nBrookdale University Hospital and
\nMedical Center, Brooklyn, NY USA<\/td>\n<\/tr>\n\n\tPrevalence and distribution of ErdheimChester Disease in the UK estimated from
\nreferral to a National Advisory Panel<\/td> | Matthew Collin<\/strong>
\nNewcastle University, United
\nKingdom<\/td>\n<\/tr>\n\n\tChallenging Case Study<\/strong><\/td>\n<\/tr>\n\n\t| 3:45 pm<\/td> | All that glitters: retro-orbital
\nxanthogranuloma or ECD?<\/td> | Matthew Collin<\/strong>
\nNewcastle University, United
\nKingdom<\/td>\n<\/tr>\n\n\tChallenging Case Study<\/strong><\/td>\n<\/tr>\n\n\t| 4:15 pm<\/td> | The Clue Was the Blood Pressure: Atypical
\nErdheim\u2013Chester Disease<\/td> | Jithma Abeykoon<\/strong>
\nMayo Clinic, Rochester, MN USA<\/td>\n<\/tr>\n\n\tClosing Remarks & Student Abstract Award<\/strong><\/td>\n<\/tr>\n\n\t| 4:45 pm<\/td> | ECD Global Alliance into the Future<\/td> | Jerome Henson<\/strong>
\nExecutive Director, ECD Global
\nAlliance, DeRidder, LA USA<\/td>\n<\/tr>\n\n\t| 4:55 pm<\/td> | Junior Investigator \u2013 Best Student
\nPresentation Award<\/td> | Oshrat Hershkovitz-Rokah<\/strong>
\nAriel University & Assut<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\nT\u00e9l\u00e9charger l\u2019ordre du jour<\/a><\/span><\/p>\nRegistre<\/a><\/span><\/p>\nREMARQUE :<\/strong> Inscrivez-vous avant le 1er f\u00e9vrier pour b\u00e9n\u00e9ficier du tarif pr\u00e9f\u00e9rentiel ! Economisez 200 USD et inscrivez-vous pour seulement 300 USD ! <\/p>\nPrix Mark Heaney de la sensibilisation et prix du champion de la communaut\u00e9<\/h3>\n1er f\u00e9vrier 2026 – Dernier jour pour soumettre votre candidature au Prix Mark Heaney de la sensibilisation et au Prix du champion de la communaut\u00e9.<\/strong><\/p>\n | | | | | | | | | | | | | | | | | | | | | | | | | | | | | | | | | | | | | | |
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