{"id":95259,"date":"2025-09-12T09:12:27","date_gmt":"2025-09-12T14:12:27","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/event\/sujet-la-survie-dans-la-maladie-derdheim-chester-integrer-la-voix-du-patient\/"},"modified":"2025-10-03T08:28:55","modified_gmt":"2025-10-03T13:28:55","slug":"sujet-la-survie-dans-la-maladie-derdheim-chester-integrer-la-voix-du-patient","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/fr\/event\/sujet-la-survie-dans-la-maladie-derdheim-chester-integrer-la-voix-du-patient\/","title":{"rendered":"Sujet : La survie dans la maladie d’Erdheim-Chester : Int\u00e9grer la voix du patient"},"content":{"rendered":"

Date d’entr\u00e9e en vigueur :<\/strong> 23 septembre 2025
\nHeure :<\/strong> 1:00 PM CT<\/p>\n

Orateur : Gaurav Goyal, M.D.
\nUniversit\u00e9 d’Alabama \u00e0 Birmingham<\/h3>\n

Le Dr Goyal est n\u00e9 et a grandi en Inde. Il a effectu\u00e9 son stage d’h\u00e9matologie-oncologie \u00e0 la Mayo Clinic de Rochester, dans le Minnesota. Pendant son s\u00e9jour \u00e0 la Mayo Clinic, il s’est sp\u00e9cialis\u00e9 dans les troubles histiocytaires, notamment la maladie d’Erdheim-Chester, l’histiocytose \u00e0 cellules de Langerhans et la maladie de Rosai-Dorfman. Il a men\u00e9 de nombreuses \u00e9tudes sur l’histiocytose et a jou\u00e9 un r\u00f4le cl\u00e9 dans la cr\u00e9ation du premier groupe de travail multidisciplinaire sur l’histiocytose, qui vise \u00e0 am\u00e9liorer les soins pour les personnes atteintes de ces maladies rares. <\/p>\n

Le Dr Goyal a ensuite rejoint la division d’h\u00e9matologie-oncologie de l’universit\u00e9 d’Alabama \u00e0 Birmingham (UAB), o\u00f9 il a fond\u00e9 un centre de soins pour la maladie d’Erdheim-Chester. \u00c0 l’UAB, il a \u00e9galement lanc\u00e9 l’\u00e9tude Histiocytic Disorder Survivor Study en partenariat avec l’ECDGA (Erdheim-Chester Disease Global Alliance), faisant ainsi progresser la recherche et le soutien aux patients atteints de troubles histiocytaires. <\/p>\n

 <\/p>\n

Inscrivez-vous ici<\/a><\/h4>\n

\"\"<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Date d’entr\u00e9e en vigueur : 23 septembre 2025 Heure : 1:00 PM CT Orateur : Gaurav Goyal, M.D. Universit\u00e9 d’Alabama \u00e0 Birmingham Le Dr Goyal est n\u00e9 et a grandi […]<\/p>\n","protected":false},"author":20,"featured_media":91913,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[4150],"class_list":["post-95259","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-webinaires","cat_webinaires"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tribe_events\/95259","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tribe_events\/95259\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/91913"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=95259"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=95259"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tribe_events_cat?post=95259"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}