{"id":95238,"date":"2025-09-12T09:12:27","date_gmt":"2025-09-12T14:12:27","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&p=95238"},"modified":"2025-10-03T08:28:23","modified_gmt":"2025-10-03T13:28:23","slug":"theme-la-survie-dans-le-cadre-de-la-maladie-derdheim-chester-en-tenant-compte-du-point-de-vue-des-patients","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/fr\/event\/topic-survivorship-in-erdheim-chester-disease-incorporating-the-patient-voice\/","title":{"rendered":"Th\u00e8me : La survie dans la maladie d'Erdheim-Chester : prendre en compte le point de vue des patients"},"content":{"rendered":"

Date :<\/strong>\u00a023 septembre 2025
\nHeure :<\/strong>\u00a013 h 00 (heure du Centre)<\/p>\n

Intervenant : Gaurav Goyal, docteur en m\u00e9decine.
\nUniversit\u00e9 de l'Alabama \u00e0 Birmingham<\/h3>\n

Le Dr Goyal est n\u00e9 et a grandi en Inde ; il a effectu\u00e9 son stage de sp\u00e9cialisation en h\u00e9matologie-oncologie \u00e0 la Mayo Clinic de Rochester, dans le Minnesota. Au cours de son passage \u00e0 la Mayo Clinic, il s'est sp\u00e9cialis\u00e9 dans les troubles histiocytaires, notamment la maladie d'Erdheim-Chester, l'histiocytose \u00e0 cellules de Langerhans et la maladie de Rosai-Dorfman. Il a men\u00e9 de nombreuses \u00e9tudes sur l\u2019histiocytose et a jou\u00e9 un r\u00f4le cl\u00e9 dans la cr\u00e9ation du premier groupe de travail multidisciplinaire sur l\u2019histiocytose, dont l\u2019objectif est d\u2019am\u00e9liorer la prise en charge des personnes atteintes de ces maladies rares.<\/p>\n

Le Dr Goyal a ensuite rejoint le service d'h\u00e9matologie-oncologie de l'Universit\u00e9 de l'Alabama \u00e0 Birmingham (UAB), o\u00f9 il a fond\u00e9 un centre de prise en charge de la maladie d'Erdheim-Chester. \u00c0 l'UAB, il a \u00e9galement lanc\u00e9 l'\u00e9tude \u00ab Histiocytic Disorder Survivor Study \u00bb en partenariat avec l'Erdheim-Chester Disease Global Alliance (ECDGA), contribuant ainsi \u00e0 faire progresser la recherche et le soutien aux patients atteints de troubles histiocytaires.<\/p>\n

 <\/p>\n

Inscrivez-vous ici<\/a><\/h4>\n

\"\"<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Date:\u00a0September 23, 2025 Time:\u00a01:00 PM CT Speaker: Gaurav Goyal, M.D. University of Alabama at Birmingham Dr. Goyal was born and raised in India and completed his Hematology-Oncology Fellowship at the […]<\/p>\n","protected":false},"author":20,"featured_media":91910,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[361],"class_list":["post-95238","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-webinars","cat_webinars"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tribe_events\/95238","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tribe_events\/95238\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/91910"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=95238"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=95238"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tribe_events_cat?post=95238"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}