{"id":95398,"date":"2025-09-12T12:08:15","date_gmt":"2025-09-12T17:08:15","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=95398"},"modified":"2026-08-13T10:49:01","modified_gmt":"2026-08-13T15:49:01","slug":"ziggy-le-zebre-sensibiliser-le-public-jour-apres-jour","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/ziggy-the-zebra-spreading-awareness-one-day-at-a-time\/","title":{"rendered":"Ziggy le z\u00e8bre sensibilise le public | Un jour \u00e0 la fois !"},"content":{"rendered":"<div style=\"width: 1080px;\" class=\"wp-video\"><video class=\"wp-video-shortcode\" id=\"video-95398-1\" width=\"1080\" height=\"608\" preload=\"metadata\" controls=\"controls\"><source type=\"video\/mp4\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/2025-Awareness-Spreading-Awareness-One-D.mp4?_=1\" \/><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/2025-Awareness-Spreading-Awareness-One-D.mp4\">https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/2025-Awareness-Spreading-Awareness-One-D.mp4<\/a><\/video><\/div>\n<p class=\"p1\">Ziggy le z\u00e8bre est de retour avec un d\u00e9fi sp\u00e9cial \u00e0 l'occasion de la Semaine de sensibilisation \u00e0 la maladie d'Erdheim-Chester : portez vos rayures !<\/p>\n<p class=\"p1\">En portant des v\u00eatements ray\u00e9s cette semaine, vous manifestez votre solidarit\u00e9 envers la communaut\u00e9 ECD et contribuez \u00e0 sensibiliser le public \u00e0 cette maladie extr\u00eamement rare. Chaque chemise, \u00e9charpe, cravate ou ruban ray\u00e9 suscite des \u00e9changes qui peuvent d\u00e9boucher sur une meilleure compr\u00e9hension de la maladie, des diagnostics plus pr\u00e9coces et un soutien accru aux patients et \u00e0 leurs familles partout dans le monde.<\/p>\n<p class=\"p1\">L'Alliance mondiale contre la maladie d'Erdheim-Chester (ECDGA) se consacre \u00e0 la sensibilisation, au soutien, \u00e0 l'\u00e9ducation et \u00e0 la recherche sur cette maladie. Avec votre aide, nous pouvons faire conna\u00eetre cette maladie rare et faire savoir aux patients qu'ils ne sont pas seuls.<\/p>\n<p class=\"p1\">Relevez le d\u00e9fi :<\/p>\n<ul>\n<li>Cette semaine, misez sur les rayures.<\/li>\n<li>Partagez une photo ou une vid\u00e9o.<\/li>\n<li>Faites entendre votre voix pour sensibiliser le public.<\/li>\n<\/ul>\n<p class=\"p1\">Ensemble, nous pouvons faire la diff\u00e9rence, une rayure \u00e0 la fois.<\/p>","protected":false},"excerpt":{"rendered":"<p>Ziggy the Zebra is back with a special challenge for Erdheim-Chester Disease Awareness Week\u2014wear your stripes! By putting on stripes this week, you\u2019re showing solidarity with the ECD community and [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":174661,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[4365,4786,3190,387,2252,374,3284,4360,4362,376,3844,4364,2402,4363],"class_list":["post-95398","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-awarenessmatters","tag-birmingham","tag-ecd","tag-ecdga","tag-erdheimchester","tag-erdheimchesterdisease","tag-globalawareness","tag-nonprofitlife","tag-patientvoices","tag-raredisease","tag-rarediseaseawareness","tag-spreadhope","tag-teamecdga","tag-unitedforecd"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/95398","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=95398"}],"version-history":[{"count":4,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/95398\/revisions"}],"predecessor-version":[{"id":174704,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/95398\/revisions\/174704"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/174661"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=95398"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=95398"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=95398"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}