{"id":74610,"date":"2025-05-26T07:57:52","date_gmt":"2025-05-26T11:57:52","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-les-medecins-repondent-aux-questions-lors-du-2025-patient-family-gathering-reunion-des-patients-et-des-familles\/"},"modified":"2025-05-26T07:57:52","modified_gmt":"2025-05-26T11:57:52","slug":"ecd-les-medecins-repondent-aux-questions-lors-du-2025-patient-family-gathering-reunion-des-patients-et-des-familles","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/ecd-les-medecins-repondent-aux-questions-lors-du-2025-patient-family-gathering-reunion-des-patients-et-des-familles\/","title":{"rendered":"ECD Les m\u00e9decins r\u00e9pondent aux questions lors du 2025 Patient & Family Gathering (r\u00e9union des patients et des familles)"},"content":{"rendered":"

L’un des aspects les plus int\u00e9ressants de la r\u00e9union des patients et des familles sur le site ECDGA est la possibilit\u00e9 pour les patients et les soignants d’entendre directement les experts. Lors de l \u00ab \u00e9v\u00e9nement de cette ann\u00e9e \u00e0 Barcelone, d \u00bb \u00e9minents m\u00e9decins sp\u00e9cialistes des maladies infectieuses ont particip\u00e9 \u00e0 une s\u00e9ance de questions-r\u00e9ponses en direct. Erdheim-Chester ont particip\u00e9 \u00e0 une session de questions-r\u00e9ponses en direct, offrant leur point de vue et r\u00e9pondant aux questions des participants. <\/p>\n

Eli Diamond, Matt Collin, Augusto Vaglio, Julien Haroche et Xavier Solanich pour leur engagement \u00e0 soutenir la communaut\u00e9 ECD par le biais d’un dialogue ouvert et d’un partage des connaissances.<\/p>\n

Pour en savoir plus sur nos \u00e9v\u00e9nements et sur les efforts d\u00e9ploy\u00e9s \u00e0 l’\u00e9chelle mondiale pour faire progresser les soins \u00e0 l’adresse ECD, consultez le site www.erdheim-chester.org<\/a>.<\/p>\n

L’Alliance mondiale contre les maladies Erdheim-Chester Disease Global Alliance (ECDGA) ne fournit pas de conseils m\u00e9dicaux, de diagnostics ou de traitements. Tout le contenu est fourni \u00e0 titre d’information uniquement. Veuillez consulter un prestataire de soins de sant\u00e9 pour toute question d’ordre m\u00e9dical. <\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

L’un des aspects les plus int\u00e9ressants de la r\u00e9union des patients et des familles sur le site ECDGA est la possibilit\u00e9 pour les patients et les soignants d’entendre directement les […]<\/p>\n","protected":false},"author":14,"featured_media":74616,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[2335],"tags":[2764,2461,566,575,2762,2624,2337,2345,2765,2763,2767,2768,2555,2627,2766],"class_list":["post-74610","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-postes-sociaux","tag-augustovaglio-fr","tag-barcelone2025","tag-communaute-dpe","tag-ecdga-fr","tag-ecdphysicians-fr","tag-elidiamond-fr","tag-erdheimchester-fr","tag-hopital-de-bellvitge","tag-julienharoche-fr","tag-mattcollin-fr","tag-medicalqanda-fr","tag-rarediseaseexperts-fr","tag-rassemblement-de-la-famille-du-patient","tag-soutien-et-science","tag-xaviersolanich-fr"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/74610","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=74610"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/74610\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/74616"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=74610"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=74610"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=74610"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}