{"id":28759,"date":"2024-12-26T21:32:58","date_gmt":"2024-12-27T03:32:58","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=28759"},"modified":"2024-12-26T21:32:58","modified_gmt":"2024-12-27T03:32:58","slug":"sois-courageux-avec-hank","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/be-brave-with-hank\/","title":{"rendered":"Sois courageux avec Hank"},"content":{"rendered":"<p>Le domaine viticole Running Vines, situ\u00e9 \u00e0 Chesterton, dans l\u2019Indiana, a organis\u00e9 un \u00e9v\u00e9nement de collecte de fonds et de sensibilisation en l\u2019honneur de Hank, un patient atteint d\u2019ECD, pendant le week-end de la Journ\u00e9e des maladies rares. Au programme : concerts, restauration, ainsi que la vente de t-shirts et de sweats \u00e0 capuche destin\u00e9s \u00e0 sensibiliser le public \u00e0 l\u2019ECD. Gr\u00e2ce \u00e0 une campagne de communication men\u00e9e au sein de la communaut\u00e9 et sur Internet, l\u2019\u00e9v\u00e9nement a attir\u00e9 un public nombreux. De plus, le domaine viticole a revers\u00e9 un pourcentage des recettes issues de la vente de vin \u00e0 l\u2019ECDGA en l\u2019honneur de Hank. Cette initiative a permis de sensibiliser largement le public \u00e0 l\u2019ECD, tout en g\u00e9n\u00e9rant des dons qui ont \u00e9t\u00e9 remis \u00e0 l\u2019ECDGA !<\/p>","protected":false},"excerpt":{"rendered":"<p>Running Vines Winery in Chesterton, IN hosted a fundraiser and awareness event in honor of ECD patient, Hank during Rare Disease Day weekend. They provided live music, food, and ECD [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":28760,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[250],"tags":[],"class_list":["post-28759","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-fundraisers"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/28759","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=28759"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/28759\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/28760"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=28759"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=28759"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=28759"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}