{"id":20043,"date":"2022-01-04T11:33:48","date_gmt":"2022-01-04T17:33:48","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20043"},"modified":"2026-08-19T06:10:10","modified_gmt":"2026-08-19T11:10:10","slug":"recompenses-pour-les-athletes-motivants-projet-de-rapport-de-lenqueteur-de-lalliance-mondiale-ecd","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/uplifting-athletes-awards-ecd-global-alliance-investigator-draft\/","title":{"rendered":"Uplifting Athletes d\u00e9signe un candidat au titre de \u00ab chercheur \u00bb au sein de l'ECD Global Alliance"},"content":{"rendered":"

Une association de d\u00e9fense des personnes atteintes de maladies rares a octroy\u00e9 une bourse de recherche sur la maladie d'Erdheim-Chester afin de mener une \u00e9tude aupr\u00e8s des survivants.<\/em><\/h2>\n

Uplifting Athletes is a nonprofit organization focused on using the platform of college football to shine a spotlight on rare diseases.\u00a0 Founded in 2007, Uplifting Athletes funds research and other initiatives, bringing hope to rare communities.\u00a0 Each year the organization grants research dollars through their Uplifting Athletes Young Investigator Draft.\u00a0 Proudly, this year a doctor nominated by the Erdheim-Chester Disease Global Alliance (ECDGA) was selected as a grant recipient!<\/p>\n

\"\"<\/a>

Goyal contribue r\u00e9guli\u00e8rement \u00e0 la sensibilisation et \u00e0 l'\u00e9ducation en collaborant et en partageant les donn\u00e9es issues de ses travaux sur l'histiocytose.<\/p><\/div>\n

The nominee, Dr. Gaurav Goyal is an Assistant Professor of Hematology-Oncology and ECD Care Center lead physician at the University of Alabama Birmingham.\u00a0 He will be awarded a $20,000 grant for a Histiocytic Disorders Survivor Study (HDSS).\u00a0 Results from the study will be used to help devise guidelines for the follow-up care of ECD and other histiocytosis patients and develop intervention strategies in the future to mitigate long-term complications. Dr. Gaurav adds, \u201cThe study aims to utilize the ECDGA Patient Registry to understand the spectrum of long-term health conditions that patients with ECD struggle with, including quality of life and chronic pain.\u201d<\/p>\n

The ECD community has had the pleasure and honor of working with Dr. Goyal on multiple projects that have enhanced patient care, increased awareness, and contributed to the science of histiocytosis across the board.\u00a0 Dr. Goyal is a dedicated physician in his field who is passionate about helping patients and families every single day.<\/p>\n

Neuf laur\u00e9ats seront mis \u00e0 l'honneur lors de la c\u00e9r\u00e9monie \u00ab Uplifting Athletes Young Investigator Draft \u00bb 2022, qui se tiendra le samedi 5 f\u00e9vrier \u00e0 Philadelphie, en Pennsylvanie.<\/p>\n

\"\"<\/a>Research is a mission-critical goal for the ECD Global Alliance.\u00a0 Working with the Uplifting Athletes team to bring more research to fruition has been an honor. \u00a0In the past, grant funding for ECD research has solely come from private donations, whereas the UA opportunity brings another $10,000 to the initiative.\u00a0 By collaborating with a rare disease group that values the important work of discovery in rare science, The ECDGA has extended ECD research efforts.\u00a0 The ECDGA will continue to strengthen its connections with the rare community to aid in a firm foundation for histiocytosis care worldwide.\u00a0 These connections not only help with ECD and histiocytosis research but also help to raise awareness of ECD within the medical community.<\/p>\n

La maladie d'Erdheim-Chester est consid\u00e9r\u00e9e comme une n\u00e9oplasie histiocytaire (un type de cancer du sang), une affection extr\u00eamement rare dont la cause est inconnue et qui est souvent sous-diagnostiqu\u00e9e. Cette maladie se caract\u00e9rise par une accumulation d'histiocytes, des cellules qui combattent normalement les infections, dans les tissus et les organes. Les tissus et les organes deviennent denses et fibrotiques en raison de l'infiltration des histiocytes, ce qui peut entra\u00eener une d\u00e9faillance organique si aucun traitement efficace n'est trouv\u00e9.<\/p>\n

Le Alliance mondiale ECD<\/a> est une association \u00e0 but non lucratif de type 501(c)(3) qui se consacre \u00e0 la sensibilisation, au soutien, \u00e0 l'\u00e9ducation et \u00e0 la recherche concernant la maladie d'Erdheim-Chester.<\/p>\n

Communiqu\u00e9 de presse<\/a><\/p>","protected":false},"excerpt":{"rendered":"

A rare disease advocacy group awarded an Erdheim-Chester Disease Research Grant to conduct a survivor study. Uplifting Athletes is a nonprofit organization focused on using the platform of college football […]<\/p>\n","protected":false},"author":14,"featured_media":20050,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51,70],"tags":[55,101,83,59,53,86,58,173,56,69,57,130,172,171],"class_list":["post-20043","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-research-awareness","tag-advocacy","tag-awareness","tag-blood-cancer","tag-bone-pain","tag-cancer","tag-collaboration","tag-diabetes-insipidus","tag-dr-goyal","tag-erdheim-chester","tag-fatigue","tag-hairy-kidney","tag-research","tag-university-of-alabama-birmingham","tag-uplifting-athletes"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/20043","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=20043"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/20043\/revisions"}],"predecessor-version":[{"id":175261,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/20043\/revisions\/175261"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/20050"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=20043"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=20043"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=20043"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}