{"id":19865,"date":"2021-11-01T13:41:18","date_gmt":"2021-11-01T18:41:18","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19865"},"modified":"2026-08-19T06:49:13","modified_gmt":"2026-08-19T11:49:13","slug":"annonce-de-la-reunion-annuelle-2022-de-lecd","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/announcing-the-2022-annual-ecd-meeting\/","title":{"rendered":"Annonce de la r\u00e9union annuelle 2022 de l'ECD"},"content":{"rendered":"

Une communaut\u00e9 hors du commun se r\u00e9unira pour cr\u00e9er des liens et apprendre.<\/em><\/h3>\n

Finally, the Erdheim-Chester Disease (ECD) community of patients, loved ones, and physicians will gather together again!\u00a0 During the challenges of the pandemic, serving our members remained the top priority.\u00a0 Through regularly scheduled chat sessions, education webinars, and a commitment to support, ECDGA has been able to keep our members connected during the test of the pandemic.<\/p>\n

Le<\/strong> Les rencontres internationales annuelles consacr\u00e9es \u00e0 la maladie d'Erdheim-Chester se tiendront \u00e0 Rochester, dans le Minnesota, du 6 au 8 avril 2022.<\/strong>. Au cours de cette conf\u00e9rence de trois jours, des r\u00e9unions adapt\u00e9es \u00e0 chaque membre de la communaut\u00e9 seront organis\u00e9es.<\/p>\n

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Les docteurs Go et Goyal au Symposium de New York 2017<\/p><\/div>\n

L'ECDGA est ravie de pouvoir compter sur la participation des co-organisateurs de cette ann\u00e9e pour l'aide apport\u00e9e \u00e0 la planification et \u00e0 la mise en \u0153uvre de l'\u00e9v\u00e9nement. Dr Ronald Go<\/strong><\/a> is a hematology-oncologist at the Mayo Clinic in Rochester near the meeting location. Dr. Go is the leading physician for the ECD Care Center at his clinic. He has a passion for creating a better experience for all patients. \u00a0Dr. Go has also shown great care to the community by empowering upcoming physicians with inspiring and effective mentoring in the field of histiocytosis. Also hosting is Dr Gaurav Goyal<\/strong><\/a>,<\/strong> ma\u00eetre de conf\u00e9rences \u00e0 l\u2019universit\u00e9 d\u2019Alabama \u00e0 Birmingham. Le Dr Goyal est un membre d\u00e9vou\u00e9 de la communaut\u00e9 ECD, tant sur le plan professionnel qu\u2019en tant que b\u00e9n\u00e9vole au sein de l\u2019ECDGA. Ses contributions ont eu un impact positif sur la recherche et la qualit\u00e9 des soins prodigu\u00e9s aux patients atteints d\u2019histiocytose, tout en assurant une prise en charge exceptionnelle de ses patients. Apr\u00e8s avoir \u00e9t\u00e9 form\u00e9 par le Dr Go, le Dr Goyal dirige aujourd\u2019hui un centre de soins d\u00e9di\u00e9 \u00e0 l\u2019ECD \u00e0 Birmingham. Les docteurs Go et Goyal ont tous deux jou\u00e9 un r\u00f4le d\u00e9terminant dans le d\u00e9veloppement et le succ\u00e8s de l\u2019ECDGA.<\/p>\n

Le 9e<\/sup> ECD<\/strong> Colloque m\u00e9dical <\/strong>est pr\u00e9vue le 6 avril et offrira aux professionnels de sant\u00e9 l\u2019occasion d\u2019\u00e9changer et de collaborer sur les derniers r\u00e9sultats de la recherche sur l\u2019ECD, ainsi que de partager leurs connaissances en mati\u00e8re de traitement et de prise en charge des patients atteints d\u2019ECD. Tous les professionnels de sant\u00e9 int\u00e9ress\u00e9s par l\u2019ECD et l\u2019histiocytose de l\u2019adulte, en particulier les cliniciens qui d\u00e9butent dans la prise en charge des patients atteints d\u2019ECD, sont vivement encourag\u00e9s \u00e0 y participer.<\/p>\n

Le 8e<\/sup><\/strong> ECD<\/strong> Rencontre des patients et de leurs familles<\/strong> on April 8 is an event offered to all ECD patients, caregivers, and anyone interested in learning more about care and support for ECD patients. The patient meeting sets out to unite patients and family members, as well as increase their knowledge and understanding of ECD. During the meeting, physicians knowledgeable in ECD care offer their specialized expertise and provide answers to the families\u2019 questions. Many patients have reported successful adjustments in their care following these meetings.\u00a0 All ECD patients and their loved ones, especially those with a new diagnosis or who have never attended an ECD event, are strongly encouraged to consider this opportunity.<\/p>\n

There is also time available for the professionals and patients to mingle during a social reception held on April 7.\u00a0 This is a more informal setting for introductions, meeting new members, and enjoying fellowship with those that understand the struggles of living with ECD.<\/p>\n

\u00a0<\/strong>*D\u00e9claration relative au COVID :<\/strong> We are monitoring the sanitation ordinances for this location in hopes that the virus will be behind us in time to hold the meeting as planned.\u00a0 We will continue to monitor the situation and post updates if\u00a0anything changes.\u00a0 Meanwhile, we will continue planning for the dates of April 6 through April 8, 2022.<\/p>\n

Pour en savoir plus :<\/strong><\/p>\n