{"id":19654,"date":"2021-06-10T16:11:03","date_gmt":"2021-06-10T16:11:03","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=19654"},"modified":"2025-08-23T17:14:22","modified_gmt":"2025-08-23T21:14:22","slug":"le-reseau-ecd-care-prend-desormais-en-charge-les-patients-du-michigan","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/ecd-care-network-now-serves-michigan-patients\/","title":{"rendered":"Le r\u00e9seau ECD Care prend d\u00e9sormais en charge les patients du Michigan"},"content":{"rendered":"

L'Alliance mondiale contre la maladie d'Erdheim-Chester est fi\u00e8re d'annoncer l'ouverture du premier centre de prise en charge sp\u00e9cialis\u00e9 dans la maladie d'Erdheim-Chester, situ\u00e9 dans le Michigan.<\/strong><\/p>\n

L'Alliance mondiale contre la maladie d'Erdheim-Chester (ECDGA) a le plaisir de pr\u00e9senter le tout dernier membre du r\u00e9seau des centres de prise en charge sp\u00e9cialis\u00e9s de l'ECD, Centre de canc\u00e9rologie Rogel de l'Universit\u00e9 du Michigan, <\/strong>Ann Arbor, Michigan. The lead physician at this center is Dr. Asra Ahmed who specializes in hematology-oncology. Having an Erdheim-Chester Disease (ECD) referral center located in this region will not only be beneficial to the 12 Michigan-based patients currently registered with ECDGA but also allow access for more patients seeking a possible ECD diagnosis in the future. Forming this partnership ensures collaboration, education, improving early diagnosis, providing effective treatments, and support for the ECD patients in this part of the country.<\/p>\n

\"\"<\/p>\n

\u201c La maladie d\u2019Erdheim-Chester est extr\u00eamement rare, ce qui signifie qu\u2019il est essentiel que les patients puissent trouver l\u2019expertise ad\u00e9quate pour b\u00e9n\u00e9ficier d\u2019un traitement adapt\u00e9. Nous sommes ravis d\u2019\u00eatre le seul centre de r\u00e9f\u00e9rence pour la maladie d\u2019Erdheim-Chester dans le Michigan et nous nous r\u00e9jouissons de coordonner la prise en charge des patients dans tout l\u2019\u00c9tat et dans toute la r\u00e9gion \u201d, d\u00e9clare le Dr Asra Ahmed, ma\u00eetre de conf\u00e9rences en m\u00e9decine interne \u00e0 Michigan Medicine, le centre m\u00e9dical universitaire de l\u2019Universit\u00e9 du Michigan.<\/p>\n

L'ECDGA reconna\u00eet 35 centres d'excellence \u00e0 travers le monde. Tous ces \u00e9tablissements sont tenus de communiquer et de collaborer entre eux afin de garantir que les patients b\u00e9n\u00e9ficient des options th\u00e9rapeutiques les plus r\u00e9centes et des meilleurs soins disponibles. Un autre aspect essentiel du r\u00e9seau des centres de soins de r\u00e9f\u00e9rence de l\u2019ECD consiste \u00e0 garantir que, si un patient ne peut pas se d\u00e9placer en raison de sa maladie, les m\u00e9decins de l\u2019ECD de ces centres puissent discuter du cas du patient avec son m\u00e9decin traitant.<\/p>\n

Pour plus d'informations sur le r\u00e9seau des centres d'orientation ECD et pour savoir comment les contacter, rendez-vous sur www.erdheim-chester.org\/care-centers\/<\/a>.<\/p>","protected":false},"excerpt":{"rendered":"

The Erdheim-Chester Disease Global Alliance is proud to announce the first ECD Referral Care Center to be located in Michigan Erdheim-Chester Disease Global Alliance (ECDGA) is pleased to introduce the […]<\/p>\n","protected":false},"author":14,"featured_media":19655,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,115,101,83,54,59,53,58,56,69,57,116,82,52,114,113],"class_list":["post-19654","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-ann-arbor","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fatigue","tag-hairy-kidney","tag-patient-support","tag-rare-cancer","tag-rare-disease","tag-rogel-cancer-center","tag-university-of-michigan"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/19654","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=19654"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/19654\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/19655"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=19654"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=19654"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=19654"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}