{"id":176060,"date":"2026-08-29T13:10:34","date_gmt":"2026-08-29T18:10:34","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=176060"},"modified":"2026-09-20T14:05:41","modified_gmt":"2026-09-20T19:05:41","slug":"advocacy-creates-change","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/advocacy-creates-change\/","title":{"rendered":"Advocacy Creates Change"},"content":{"rendered":"<p>Rare diseases need people willing to speak up.<\/p>\n<p>Every conversation about ECD can increase awareness and help patients, families, healthcare professionals, and communities better understand this ultra-rare disease.<\/p>\n<p>You don&#8217;t have to be an expert to be an advocate.<\/p>\n<p><strong>Your voice can make a difference.<\/strong><\/p>\n<p><strong>Agissez :<\/strong> Share one thing you&#8217;ve learned about ECD this month with someone who didn&#8217;t know about the disease before.<\/p>\n<p>Help one more person <strong>#KnowECD.<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>Rare diseases need people willing to speak up. Every conversation about ECD can increase awareness and help patients, families, healthcare professionals, and communities better understand this ultra-rare disease. You don&#8217;t [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":176061,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[55,6186,387,2252,6154,376,3844],"class_list":["post-176060","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-advocacy","tag-ecdadvocacy","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-raredisease","tag-rarediseaseawareness"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/176060","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=176060"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/176060\/revisions"}],"predecessor-version":[{"id":176088,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/176060\/revisions\/176088"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/176061"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=176060"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=176060"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=176060"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}