{"id":174440,"date":"2026-09-05T09:00:42","date_gmt":"2026-09-05T14:00:42","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=174440"},"modified":"2026-09-08T04:15:09","modified_gmt":"2026-09-08T09:15:09","slug":"le-parcours-diagnostique","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/the-diagnostic-journey\/","title":{"rendered":"Le parcours diagnostique"},"content":{"rendered":"<p><strong>Ziggy le sait\u2026<\/strong><\/p>\n<p>Les personnes atteintes d'ECD passent des ann\u00e9es \u00e0 chercher des r\u00e9ponses. Des \u00e9tudes ont montr\u00e9 qu'apr\u00e8s l'apparition des premiers sympt\u00f4mes, il faut en moyenne 4,2 ans pour obtenir un diagnostic d'ECD.<\/p>\n<p>Se renseigner sur le d\u00e9veloppement de la petite enfance peut contribuer \u00e0 raccourcir ce parcours pour les futurs patients.<\/p>\n<p><strong>Un d\u00e9pistage pr\u00e9coce peut vraiment changer la donne.<\/strong><\/p>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>Ziggy Knows&#8230; People with ECD spend years searching for answers. Research has shown that after symptoms first appear, it takes an average of 4.2 years to get an ECD diagnosis. [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":174441,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,6154,376,3844],"class_list":["post-174440","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-raredisease","tag-rarediseaseawareness"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/174440","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=174440"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/174440\/revisions"}],"predecessor-version":[{"id":174449,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/174440\/revisions\/174449"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/174441"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=174440"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=174440"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=174440"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}