{"id":174397,"date":"2026-09-03T09:00:35","date_gmt":"2026-09-03T14:00:35","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=174397"},"modified":"2026-09-08T04:14:09","modified_gmt":"2026-09-08T09:14:09","slug":"quelle-est-la-frequence-de-lecd","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/how-rare-is-ecd\/","title":{"rendered":"Quelle est la pr\u00e9valence de l'ECD ?"},"content":{"rendered":"<p><strong>Ziggy le sait\u2026<\/strong><\/p>\n<p>L'ECD est consid\u00e9r\u00e9e comme une maladie extr\u00eamement rare. Des chercheurs ont constat\u00e9 qu'aux \u00c9tats-Unis, entre 2021 et 2022, environ 1 \u00e0 2 personnes sur 10 millions avaient re\u00e7u un nouveau diagnostic d'ECD.<\/p>\n<p>De nombreux professionnels de sant\u00e9 risquent de ne jamais rencontrer de patient atteint d'ECD au cours de leur carri\u00e8re, ce qui rend la sensibilisation \u00e0 cette pathologie d'autant plus importante.<\/p>\n<p><strong>Les maladies rares m\u00e9ritent elles aussi d'\u00eatre reconnues.<\/strong><\/p>","protected":false},"excerpt":{"rendered":"<p>Ziggy Knows&#8230; ECD is considered\u00a0ultra-rare.\u00a0Researchers found that about 1 to 2 out of every 10 million people were newly diagnosed with ECD in the US during 2021 and 2022. Many [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":174398,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,6154,376],"class_list":["post-174397","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/174397","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=174397"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/174397\/revisions"}],"predecessor-version":[{"id":174444,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/174397\/revisions\/174444"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/174398"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=174397"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=174397"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=174397"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}