{"id":162802,"date":"2026-06-25T14:03:41","date_gmt":"2026-06-25T19:03:41","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=162802"},"modified":"2026-06-25T14:03:41","modified_gmt":"2026-06-25T19:03:41","slug":"un-message-a-notre-communaute","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/a-message-to-our-community\/","title":{"rendered":"Un message \u00e0 notre communaut\u00e9"},"content":{"rendered":"

Lorsqu'on entend les mots \u201c Vous souffrez de la maladie d'Erdheim-Chester \u201d, on se retrouve souvent avec plus de questions que de r\u00e9ponses.<\/p>\n

    \n
  1. O\u00f9 puis-je trouver des informations ?<\/li>\n
  2. Qui peut m'aider \u00e0 comprendre cette maladie ?<\/li>\n
  3. Quelles sont les options th\u00e9rapeutiques disponibles ?<\/li>\n
  4. Comment puis-je entrer en contact avec d'autres personnes atteintes de cette maladie ?<\/li>\n<\/ol>\n

    L'ECDGA aide chaque jour \u00e0 r\u00e9pondre \u00e0 ces questions.<\/p>\n

    Soutenez les patients et leurs familles en faisant d\u00e8s aujourd\u2019hui un don qui sera doubl\u00e9.<\/p>\n

    Nous sommes \u00e0 deux doigts d'atteindre notre objectif \u00ab Match Challenge \u00bb de $10 000,00. Nous en sommes actuellement \u00e0 $7 261,00. Aidez-nous \u00e0 atteindre cet objectif avant le 30 juin.<\/p>\n

    Faites un don ici<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"

    When someone hears the words “You have Erdheim-Chester Disease,” they often have more questions than answers. Where do I find information? Who can help me understand this disease? What treatment […]<\/p>\n","protected":false},"author":27,"featured_media":162987,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,5985,376],"class_list":["post-162802","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-funrun","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/162802","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=162802"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/162802\/revisions"}],"predecessor-version":[{"id":162986,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/162802\/revisions\/162986"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/162987"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=162802"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=162802"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=162802"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}