{"id":132205,"date":"2023-04-27T00:18:35","date_gmt":"2023-04-27T05:18:35","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=132205"},"modified":"2026-07-10T11:57:02","modified_gmt":"2026-07-10T16:57:02","slug":"8th-annual-ecd-medical-symposium-rochester-minnesota","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/8th-annual-ecd-medical-symposium-rochester-minnesota\/","title":{"rendered":"8th Annual ECD Medical Symposium Rochester, Minnesota"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.6″ _dynamic_attributes=”title” _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_button button_text=”Ronald Go, MD & Gaurav Goyal, MD” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Mayo Clinic” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Rochester, MN USA” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”April 27, 2023″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/07\/8th-ms.png” title_text=”8th ms” align=”center” force_fullwidth=”on” _builder_version=”4.27.7″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}” theme_builder_area=”post_content” custom_margin=”||10px||false|false” module_class=”past-event-image” sticky_enabled=”0″][\/et_pb_image][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

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Symposium Attendees Mayo Group Picture 2023<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||||false|false” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Symposium Summary<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]Approximately 41 medical professionals from six countries attended the Annual ECD Medical Symposium in 2023. Twelve oral abstracts were presented, along with an additional seven poster presentations. As an invited speaker, Mrinal Patnaik, MBBS, delivered a talk titled \u201cUnderstanding monocyte-related disorders
\nincluding epigenetics and genomics.\u201d Workshops on radiology and pathology were held, along with a \u201cMeet the Experts\u201d panel for attendees to discuss challenging situations. An evening reception provided time for discussions supporting current and future collaborations among this highly knowledgeable group of physicians and scientists, all interested in learning more about Erdheim-Chester Disease.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#14b8a6″ global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Programs with Symposium Agenda<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/ECDGA_2023_MS_Event_Program_cover-scaled.png” title_text=”ECDGA_2023_MS_Event_Program_cover” url=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2023-ECDGA-MS-Event-Program-Mayo.pdf” url_new_window=”on” _builder_version=”4.27.6″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” border_width_all=”1px” border_color_all=”#bfbfbf” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Agenda<\/h2>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>Video<\/th>\n<\/tr>\n<\/thead>\n
Ronald Go, MD
\nGaurav Goyal, MD<\/td>		Welcome & Meeting Overview <\/td>Welcome & Meeting Overview <\/a><\/td>\n<\/tr>\n
Kathleen Brewer, Founder
\nPaul Hendrie, MD<\/td>		History of the ECDGAFocus on the Future<\/a><\/td>History of the ECDGAFocus on the Future<\/a><\/td>\n<\/tr>\n
Mrinal Patnaik, MBBS<\/td>Understanding monocyte-related disorders including epigenetics and genomics<\/td>Understanding monocyte-related disorders including epigenetics and genomics<\/a><\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>RAF-independent MEK mutations drive histiocytic neoplasms in vivo and are sensitive to single agent ERK inhibition in patients<\/a><\/td>RAF-independent MEK mutations drive histiocytic neoplasms in vivo and are sensitive to single agent ERK inhibition in patients<\/a><\/td>\n<\/tr>\n
Michelangelo Tesi, MD<\/td>Cluster analysis unveils the clinical spectrum of Erdheim-Chester Disease<\/a><\/td>Cluster analysis unveils the clinical spectrum of Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Aldo A Acosta Medina, MD<\/td>Efficacy of MEK inhibitors of Erdheim-Chester disease<\/a><\/td>Efficacy of MEK inhibitors of Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n
Eli Diamond, MD<\/td>Neoplasms harboring class 3 MAP2K1 mutations, including novel treatment with the ERK inhibitor ulixertinib<\/a><\/td>Neoplasms harboring class 3 MAP2K1 mutations, including novel treatment with the ERK inhibitor ulixertinib<\/a><\/td>\n<\/tr>\n
Jerome Razanamahery, MD<\/td>Early changes in intermediate monocyte distribution correlate with relapse-free survival during follow-up in adult histiocytoses<\/a><\/td>Early changes in intermediate monocyte distribution correlate with relapse-free survival during follow-up in adult histiocytoses<\/a><\/td>\n<\/tr>\n
Francesco Peyronel, MD,<\/td>Geographic clustering of Erdheim-Chester Disease in Italy and France<\/a><\/td>Geographic clustering of Erdheim-Chester Disease in Italy and France<\/a><\/td>\n<\/tr>\n
Eli Diamond, MD<\/td>A multinational series of 26 patients with mixed histiocytic neoplasms highlighting a diverse mutational landscape and superior efficacy of targeted therapies<\/a><\/td>A multinational series of 26 patients with mixed histiocytic neoplasms highlighting a diverse mutational landscape and superior efficacy of targeted therapies<\/a><\/td>\n<\/tr>\n
Matt Slief, MD<\/td>A pilot study of patient-reported outcome measures among individuals with histiocytic neoplasm<\/a><\/td>A pilot study of patient-reported outcome measures among individuals with histiocytic neoplasm<\/a><\/td>\n<\/tr>\n
Karen Rech, MD
\nJennifer Picarsic, MD<\/td>		Pathology mimics workshop<\/a><\/td>Pathology mimics workshop<\/a><\/td>\n<\/tr>\n
Skand Shekhar, MD<\/td>Abnormalities of pituitary imaging and associated endocrine disorders in Erdheim-Chester disease<\/a><\/td>Abnormalities of pituitary imaging and associated endocrine disorders in Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n
Julien Haroch, MD, PhD
\nLevi-Dan Azoulay, MD<\/td>		Longitudinal assessment of cardiac involvement in Erdheim-Chester disease using cardiac magnetic resonance imaging<\/a><\/td>Longitudinal assessment of cardiac involvement in Erdheim-Chester disease using cardiac magnetic resonance imaging<\/a><\/td>\n<\/tr>\n
Aishwarya Ravindran, MD<\/td>The phenotypic spectrum of malignant histiocytosis parallels the lineage subsets of monocytes, macrophages, and dendritic cells<\/a><\/td>Not available<\/td>\n<\/tr>\n
Gordon Ruan, MD<\/td>Clinical features, molecular aberrations, treatments, and outcomes of malignant histiocytoses<\/a><\/td>Clinical features, molecular aberrations, treatments, and outcomes of malignant histiocytoses<\/td>\n<\/tr>\n
Corrie Bach, MD<\/td>Radiology workshop<\/a><\/td>Radiology workshop<\/a><\/td>\n<\/tr>\n
Eli Diamond, MD
\nRon Go, MD
\nJulien Haroche, MD
\nEric Jacobsen, MD<\/td>		No slide deck<\/td>Meet the Experts: Challenging situations and unanswered questions<\/a><\/td>\n<\/tr>\n
Kathy Brewer<\/td>ECD Global Alliance Mission Forward<\/td>ECD Global Alliance Mission Forward<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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Photographs<\/h2>\n

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Medical Symposium<\/h3>\n

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Medical Reception<\/h3>\n

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Care Center Meeting<\/h3>\n

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Symposium Attendees Mayo Group Picture 2023 Symposium SummaryApproximately 41 medical professionals from six countries attended the Annual ECD Medical Symposium in 2023. Twelve oral abstracts were presented, along with an […]<\/p>\n","protected":false},"author":20,"featured_media":172588,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4815],"tags":[],"class_list":["post-132205","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medical-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/132205","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=132205"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/132205\/revisions"}],"predecessor-version":[{"id":174018,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/132205\/revisions\/174018"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/172588"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=132205"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=132205"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=132205"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}