{"id":131664,"date":"2026-05-19T11:31:04","date_gmt":"2026-05-19T16:31:04","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=131664"},"modified":"2026-06-15T13:42:45","modified_gmt":"2026-06-15T18:42:45","slug":"racing-toward-hope-2026-suivi-des-collectes-de-fonds-de-la-course-ludique","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/racing-toward-hope-2026-fun-run-fundraising-tracker\/","title":{"rendered":"Course vers l'espoir : Suivi des collectes de fonds pour la course amusante de 2026"},"content":{"rendered":"<p>L'Alliance mondiale contre la maladie d'Erdheim-Chester (ECDGA) est ravie d'annoncer la <strong>\u00c9dition 2026 de \u00ab Global Steps Towards Awareness &amp; Hope \u00bb : course, marche et parcours en fauteuil roulant virtuels pour la sensibilisation et l'espoir<\/strong>! De <strong>Du 1er au 30 juin 2026<\/strong>, nous VOUS invitons \u2014 patients, soignants, sympathisants et d\u00e9fenseurs du monde entier \u2014 \u00e0 rejoindre notre mouvement commun, porteur de force, de visibilit\u00e9 et d'espoir.<\/p>\n<p>Cet \u00e9v\u00e9nement enti\u00e8rement virtuel est l'occasion pour vous de sensibiliser le public \u00e0 la maladie d'Erdheim-Chester (ECD), un cancer du sang ultra-rare et souvent mal compris qui touche un peu plus d'un millier de familles dans le monde. Que vous enfiliez vos baskets, que vous parcouriez votre quartier en v\u00e9lo ou que vous marchiez sur un sentier avec votre \u00e9quipe, chaque pas que vous ferez contribuera \u00e0 faire avancer notre mission : sensibilisation, soutien, information et recherche au profit des personnes touch\u00e9es par l'ECD.<\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/event\/2026funrunwalkorroll\/register\/form\/registration\/\" target=\"_blank\" rel=\"noopener\"><strong>Inscrivez-vous d\u00e8s aujourd'hui<\/strong><\/a><\/span><\/p>\n<p><strong>Informations cl\u00e9s sur l'\u00e9v\u00e9nement :<\/strong><\/p>\n<ul>\n<li style=\"list-style-type: none;\">\n<ul>\n<li><strong>Dates des \u00e9v\u00e9nements<\/strong>: du 1er juin au 30 juillet 2026<\/li>\n<li><strong>Inscription<\/strong>: Ouverture le 1er juin 2026 \u2014 $20 par personne<\/li>\n<li><strong>O\u00f9<\/strong>: Partout dans le monde \u2014 c'est enti\u00e8rement virtuel<\/li>\n<li>Des t-shirts sont en vente.<strong> <a href=\"https:\/\/www.bonfire.com\/2026-fun-run-walk-or-roll-t-shirt\/\" target=\"_blank\" rel=\"noopener\">Commandez d\u00e8s aujourd'hui !<\/a><\/strong><\/li>\n<li>Formez une \u00e9quipe, repr\u00e9sentez votre r\u00e9gion ou votre pays, et marchez avec d\u00e9termination<\/li>\n<\/ul>\n<\/li>\n<\/ul>\n<p><em>Tous les fonds collect\u00e9s soutiennent notre mission mondiale et nous rapprochent de meilleurs r\u00e9sultats et, \u00e0 terme, d'un rem\u00e8de. Continuons \u00e0 aller de l'avant, ensemble.<\/em><\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/event\/2026funrunwalkorroll\/register\/form\/registration\/\" target=\"_blank\" rel=\"noopener\"><strong>Inscrivez-vous d\u00e8s aujourd'hui<\/strong><\/a><\/span><\/p>\n<h3>Commandez d\u00e8s aujourd\u2019hui un t-shirt ou un sweat \u00e0 capuche de l\u2019ECDGA \u00ab Fun Walk or Roll \u00bb 2026 !<\/h3>\n<p><a href=\"https:\/\/www.bonfire.com\/2026-fun-run-walk-or-roll-t-shirt\/\"><br \/>\n<\/a><a href=\"https:\/\/www.bonfire.com\/2026-fun-run-walk-or-roll-t-shirt\/\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-131693\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/900.jpeg\" alt=\"\" width=\"200\" height=\"200\" \/><\/a><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/900-3.jpeg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-131769\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/900-3.jpeg\" alt=\"\" width=\"200\" height=\"200\" \/><\/a><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/900-1.jpeg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-131718\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/900-1.jpeg\" alt=\"\" width=\"200\" height=\"200\" \/><\/a><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/900-2.jpeg\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft wp-image-131719\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/900-2.jpeg\" alt=\"\" width=\"225\" height=\"225\" \/><\/a><\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p>&nbsp;<\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/www.bonfire.com\/2026-fun-run-walk-or-roll-t-shirt\/\" target=\"_blank\" rel=\"noopener\">Boutique V\u00eatements<\/a><\/span><\/p>\n<p>&nbsp;<\/p>\n<div style=\"float: left; margin: 0 25px 20px 0; max-width: 320px;\"><iframe id=\"qgiv-embed-37557976\" class=\"qgiv-embed\" style=\"width: 331.328125px; height: 625.453125px;\" src=\"https:\/\/secure.qgiv.com\/event\/2026funrunwalkorroll\/widget\/37557976\/?etype=event&amp;entity=1134405\" frameborder=\"0\" scrolling=\"no\"><\/iframe><\/div>\n<p>Des questions ? N'h\u00e9sitez pas \u00e0 contacter <a class=\"cursor-pointer\" rel=\"noopener\">Renita.Page@erdheim-chester.org<\/a><\/p>\n<p>Allons de l'avant avec force. Avan\u00e7ons avec r\u00e9silience. Courons avec espoir.<\/p>","protected":false},"excerpt":{"rendered":"<p>The Erdheim-Chester Disease Global Alliance (ECDGA) is thrilled to announce the 2026 Global Steps Towards Awareness &amp; Hope Virtual Fun Run, Walk &amp; Roll! From June 1 through June 30, [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":131931,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[5573],"tags":[],"class_list":["post-131664","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-home-featured-news-two"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/131664","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=131664"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/131664\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/131931"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=131664"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=131664"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=131664"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}