{"id":110164,"date":"2025-12-16T09:17:23","date_gmt":"2025-12-16T15:17:23","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=110164"},"modified":"2025-12-31T09:18:30","modified_gmt":"2025-12-31T15:18:30","slug":"ziggy-le-zebre-parle-de-limportance-de-rester-en-contact","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/ziggy-the-zebra-talks-about-staying-connected\/","title":{"rendered":"Ziggy le z\u00e8bre nous parle de l'importance de rester en contact"},"content":{"rendered":"<p><iframe loading=\"lazy\" title=\"Ziggy le z\u00e8bre nous parle de l&#039;importance de rester en contact\" width=\"1080\" height=\"608\" src=\"https:\/\/www.youtube.com\/embed\/v56aYI_LF28?feature=oembed\"  allow=\"accelerometer; autoplay; clipboard-write; encrypted-media; gyroscope; picture-in-picture; web-share\" referrerpolicy=\"strict-origin-when-cross-origin\" allowfullscreen><\/iframe><\/p>\n<p class=\"p3\">We\u2019re excited to share a new animated short featuring Ziggy the Zebra, the ECD community\u2019s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and medical professionals stay connected and informed.<\/p>\n<p class=\"p3\">These virtual gatherings provide a safe and welcoming space to discuss a wide range of topics related to Erdheim-Chester Disease, including diagnosis, treatment, symptoms, and quality of life. They also offer an opportunity for community members to build lasting relationships and find support through shared experiences.<\/p>\n<p class=\"p3\">Si vous n'\u00eates pas encore inscrit aupr\u00e8s de l'ECD Global Alliance, nous vous invitons \u00e0 le faire sur www.erdheim-chester.org afin de recevoir des notifications concernant les prochaines discussions en ligne en rapport avec votre fonction.<\/p>\n<p class=\"p3\">Regardez d\u00e8s maintenant cette vid\u00e9o pour d\u00e9couvrir comment la communaut\u00e9 ECD se rassemble aux quatre coins du monde gr\u00e2ce au dialogue, \u00e0 la solidarit\u00e9 et \u00e0 une vision commune.<\/p>\n<p class=\"p1\"><b>L'Alliance mondiale contre la maladie d'Erdheim-Chester (ECDGA) ne fournit ni conseils m\u00e9dicaux, ni diagnostics, ni traitements. L'ensemble du contenu est pr\u00e9sent\u00e9 \u00e0 titre purement informatif. Veuillez consulter un professionnel de sant\u00e9 pour toute question d'ordre m\u00e9dical.<\/b><\/p>","protected":false},"excerpt":{"rendered":"<p>We\u2019re excited to share a new animated short featuring Ziggy the Zebra, the ECD community\u2019s friendly mascot. In this brief video, Ziggy explains how the ECD Global Alliance hosts monthly online chats and webinars to help patients, caregivers, families, researchers, and medical professionals stay connected and informed.<\/p>","protected":false},"author":14,"featured_media":110177,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-110164","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/110164","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=110164"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/110164\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/110177"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=110164"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=110164"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=110164"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}