{"id":109900,"date":"2025-12-11T11:43:38","date_gmt":"2025-12-11T17:43:38","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=109900"},"modified":"2026-08-13T09:08:14","modified_gmt":"2026-08-13T14:08:14","slug":"les-inscriptions-sont-desormais-ouvertes-pour-la-rencontre-des-patients-et-de-leurs-familles-de-lecdga-2026-rejoignez-nous-a-birmingham-en-alabama","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/registration-now-open-for-the-2026-ecdga-patient-family-gathering-join-us-in-birmingham-al\/","title":{"rendered":"Les inscriptions sont d\u00e9sormais ouvertes pour la rencontre 2026 de l'ECDGA destin\u00e9e aux patients et \u00e0 leurs familles \u2013 Rejoignez-nous \u00e0 Birmingham, en Alabama"},"content":{"rendered":"<p>L'ECD Global Alliance a le plaisir d'annoncer que les inscriptions sont d\u00e9sormais ouvertes pour le <strong>Rencontre des patients et de leurs familles et colloque m\u00e9dical 2026<\/strong>, qui se tiendra \u00e0 <strong>Birmingham, Alabama<\/strong>.<\/p>\n<p>Cet \u00e9v\u00e9nement annuel majeur rassemble des patients, des aidants, des proches, des professionnels de sant\u00e9 et des chercheurs pour un moment d'apprentissage, de soutien et de partage.<\/p>\n<p><strong>D\u00e9tails de l'\u00e9v\u00e9nement<\/strong><\/p>\n<ul>\n<li><strong>Rencontre avec les artistes :<\/strong> 29 avril 2026<\/li>\n<li><strong>Rencontre avec les patients et leurs proches :<\/strong> 30 avril 2026<\/li>\n<li><strong>Lieu :<\/strong> Birmingham, Alabama<\/li>\n<li><strong>Pr\u00e9sent\u00e9 par :<\/strong> Le <strong>Alliance mondiale ECD<\/strong> et le <strong>Facult\u00e9 de m\u00e9decine de l'UAB<\/strong><\/li>\n<\/ul>\n<p><strong>\u00a0\u00c0 quoi s'attendre<\/strong><\/p>\n<p>Les participants auront l'occasion de :<\/p>\n<ul>\n<li>D\u00e9couvrez les derni\u00e8res avanc\u00e9es en mati\u00e8re de recherche et de prise en charge du d\u00e9veloppement de la petite enfance, pr\u00e9sent\u00e9es par des experts de renom<\/li>\n<li>Participez aux ateliers de discussion destin\u00e9s aux patients et aux aidants<\/li>\n<li>Entrez en contact avec d'autres membres de la communaut\u00e9 ECD<\/li>\n<li>D\u00e9couvrez des outils pratiques, des ressources et des informations pour vous aider au quotidien avec l'ECD<\/li>\n<\/ul>\n<p><strong>\u00a0Les inscriptions sont ouvertes<\/strong><\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/for\/2026birminghampatientfamilygathering\/event\/ecdpatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\">S'inscrire<\/a><\/span><\/p>\n<p>R\u00e9servez d\u00e8s aujourd'hui votre place pour participer \u00e0 ce rassemblement qui a du sens.<\/p>\n<p><strong>Les inscriptions anticip\u00e9es sont ouvertes jusqu'au 1er f\u00e9vrier 2026.<\/strong><strong>.<\/strong><\/p>\n<p><strong>Plus d'informations<\/strong><\/p>\n<p>Pour plus d'informations sur cet \u00e9v\u00e9nement, rendez-vous sur <a href=\"https:\/\/www.erdheim-chester.org\/fr\/\"><strong>erdheim-chester.org<\/strong><\/a> ou contactez-nous \u00e0 l'adresse suivante : <a href=\"mailto:support@erdheim-chester.org\"><strong>support@erdheim-chester.org<\/strong><\/a>. Nous sommes \u00e0 votre disposition pour r\u00e9pondre \u00e0 toutes vos questions.<\/p>\n<p>Nous avons h\u00e2te de vous accueillir \u00e0 Birmingham !<\/p>\n<p><span class=\"register-here\"><a href=\"https:\/\/secure.qgiv.com\/for\/2026birminghampatientfamilygathering\/event\/ecdpatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\">S'inscrire<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Registration is OPEN for the 2026 ECDGA Patient &amp; Family Gathering!<br \/>\nEarly bird registration is open until February 1, 2026!<br \/>\nJoin us in Birmingham, Alabama, for our annual Meet &amp; Greet on April 29 and the Patient &amp; Family Gathering on April 30, 2026.<\/p>\n<p>Hosted by the ECD Global Alliance and the UAB School of Medicine, this event brings together patients, caregivers, families, and medical experts for a powerful day of learning, connection, and community.<\/p>\n<p>Don\u2019t miss your chance to secure a spot at a reduced rate.<\/p>\n<p>Pour en savoir plus et vous inscrire, rendez-vous sur : erdheim-chester.org<br \/>\nQuestions? Email us at support@erdheim-chester.org<\/p>","protected":false},"author":14,"featured_media":174390,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[5501,5500,3190,387,380,5235,122,2491,2881],"class_list":["post-109900","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-histicytosis","tag-uabmedicine","tag-ecd","tag-ecdga","tag-ecdsupport","tag-endecd","tag-histio","tag-patientfamilygathering","tag-rarediseasecommunity"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/109900","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=109900"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/109900\/revisions"}],"predecessor-version":[{"id":174667,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/109900\/revisions\/174667"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/174390"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=109900"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=109900"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=109900"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}