{"id":106823,"date":"2025-11-05T10:00:39","date_gmt":"2025-11-05T16:00:39","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecdga-a-la-conference-annuelle-2025-de-lamerican-college-of-rheumatology-acr\/"},"modified":"2025-11-05T11:12:56","modified_gmt":"2025-11-05T17:12:56","slug":"ecdga-a-la-conference-annuelle-2025-de-lamerican-college-of-rheumatology-acr","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/ecdga-a-la-conference-annuelle-2025-de-lamerican-college-of-rheumatology-acr\/","title":{"rendered":"ECDGA \u00e0 la conf\u00e9rence annuelle 2025 de l’American College of Rheumatology (ACR)"},"content":{"rendered":"

La semaine derni\u00e8re, Diane Schriner, pr\u00e9sidente de l’ECDGA<\/strong>, et Jerome Henson, membre du personnel de l’ECDGA,<\/strong> ont repr\u00e9sent\u00e9 l’Alliance mondiale pour la maladie d’Erdheim-Chester (ECDGA)<\/strong> \u00e0 la conf\u00e9rence annuelle de l’American College of Rheumatology (ACR)<\/strong>, en compagnie du Dr Mitali Sen<\/strong>, rhumatologue \u00e0 l’universit\u00e9 d’Alabama \u00e0 Birmingham<\/strong>.<\/p>\n

Ensemble, ils sensibilisent les rhumatologues, les cliniciens et les chercheurs du monde entier \u00e0 la maladie d’Erdheim-Chester (ECD)<\/strong>. Par le biais d’actions \u00e9ducatives, de collaborations professionnelles et d’engagements personnels, ils contribuent \u00e0 la reconnaissance de cette maladie rare et encouragent un diagnostic plus pr\u00e9coce et une am\u00e9lioration des soins. <\/p>\n

La conf\u00e9rence annuelle de l’ACR rassemble des milliers d’experts qui se consacrent \u00e0 l’avancement de la compr\u00e9hension et du traitement des maladies rhumatologiques et des maladies inflammatoires rares, ce qui en fait une plateforme id\u00e9ale pour mettre en lumi\u00e8re l’ECD et l’importance de la collaboration multidisciplinaire.<\/p>\n

Nous sommes fiers que Diane, J\u00e9r\u00f4me et le Dr Sen<\/strong> repr\u00e9sentent la communaut\u00e9 ECD et contribuent \u00e0 faire en sorte que la maladie d’Erdheim-Chester continue \u00e0 gagner en visibilit\u00e9 dans le domaine m\u00e9dical.<\/p>\n

Nous vous remercions de votre engagement \u00e0 sensibiliser et \u00e0 \u00e9tablir des liens au nom des patients et des familles touch\u00e9s par les ECD !<\/strong><\/p>\n

\"\"<\/a> \"\"<\/a> \"\"<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

Diane Schriner, pr\u00e9sidente de l’ECDGA, Jerome Henson, membre du personnel, et le Dr Mitali Sen, rhumatologue de l’universit\u00e9 d’Alabama \u00e0 Birmingham, ont assist\u00e9 \u00e0 la conf\u00e9rence annuelle de l’American College of Rheumatology (ACR) afin de sensibiliser le public \u00e0 la maladie d’Erdheim-Chester (ECD).
\nLeurs efforts contribuent \u00e0 la reconnaissance du DPE par les cliniciens et les chercheurs du monde entier. Merci, Diane, Jerome et Dr. Sen, de repr\u00e9senter l’ECDGA et notre communaut\u00e9 ! <\/p>\n","protected":false},"author":14,"featured_media":106704,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[426],"tags":[5309,3424,575,562,5310,3904],"class_list":["post-106823","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ecdga-actualites","tag-acr2025","tag-defense-des-patients","tag-ecdga-fr","tag-maladie-derdheimchester","tag-rhumatologie","tag-sensibilisation-aux-maladies-rares"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/106823","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=106823"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/posts\/106823\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/106704"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=106823"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/categories?post=106823"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/tags?post=106823"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}