{"id":102155,"date":"2014-04-01T18:22:36","date_gmt":"2014-04-01T23:22:36","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/2eme-symposium-medical-annuel-des-ecd-bethesda-maryland\/"},"modified":"2026-06-03T05:56:36","modified_gmt":"2026-06-03T10:56:36","slug":"2eme-symposium-medical-annuel-des-ecd-bethesda-maryland","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/fr\/2eme-symposium-medical-annuel-des-ecd-bethesda-maryland\/","title":{"rendered":"2\u00e8me symposium m\u00e9dical annuel des ECD Bethesda, Maryland"},"content":{"rendered":"

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_module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_button=\u00a0\u00bbon\u00a0\u00bb button_text_size=\u00a0\u00bb16px\u00a0\u00bb button_text_color=\u00a0\u00bb#000000″ button_bg_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb button_border_radius=\u00a0\u00bb0px\u00a0\u00bb button_icon=\u00a0\u00bb||fa||900″ button_icon_color=\u00a0\u00bb#35A4BB\u00a0\u00bb button_icon_placement=\u00a0\u00bbleft\u00a0\u00bb button_on_hover=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][\/et_pb_button][et_pb_button button_text=\u00a0\u00bbBethesda, Maryland\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_button=\u00a0\u00bbon\u00a0\u00bb button_text_size=\u00a0\u00bb16px\u00a0\u00bb button_text_color=\u00a0\u00bb#000000″ button_bg_color=\u00a0\u00bbRGBA(255,255,255,0)\u00a0\u00bb button_border_radius=\u00a0\u00bb0px\u00a0\u00bb 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Photo de groupe du symposium m\u00e9dical de Bethesda 2014<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb width=\u00a0\u00bb65%\u00a0\u00bb width_tablet=\u00a0\u00bb80%\u00a0\u00bb width_phone=\u00a0\u00bb80%\u00a0\u00bb width_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb custom_padding=\u00a0\u00bb10px||||false|false\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb width__hover_enabled=\u00a0\u00bboff|desktop\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||15px||false|false\u00a0\u00bb border_width_bottom=\u00a0\u00bb2px\u00a0\u00bb border_color_bottom=\u00a0\u00bb#35A4BB\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb]<\/p>\n

R\u00e9sum\u00e9 du symposium<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb hover_enabled=\u00a0\u00bb0″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb sticky_enabled=\u00a0\u00bb0″]Environ cinquante-trois professionnels de la sant\u00e9 de six pays ont particip\u00e9 au Symposium m\u00e9dical annuel sur l’ECD en 2014. Quatorze communications orales ont \u00e9t\u00e9 pr\u00e9sent\u00e9es. En tant que conf\u00e9rencier invit\u00e9, Kenneth McClain a donn\u00e9 une conf\u00e9rence intitul\u00e9e \u00ab Avanc\u00e9es dans l’ECD \u00bb. Une r\u00e9ception en soir\u00e9e a permis des \u00e9changes favorisant les collaborations actuelles et futures entre les membres de ce groupe de m\u00e9decins et de scientifiques hautement qualifi\u00e9s, tous d\u00e9sireux d\u2019en apprendre davantage sur la maladie d\u2019Erdheim-Chester. [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb width=\u00a0\u00bb65%\u00a0\u00bb width_tablet=\u00a0\u00bb80%\u00a0\u00bb width_phone=\u00a0\u00bb80%\u00a0\u00bb width_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb custom_padding=\u00a0\u00bb10px||20px||false|false\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb width__hover_enabled=\u00a0\u00bboff|desktop\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb border_width_bottom=\u00a0\u00bb2px\u00a0\u00bb border_color_bottom=\u00a0\u00bb#35A4BB\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb]<\/p>\n

Programmes avec l’ordre du jour du symposium<\/h2>\n

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+1-337-202-5200<\/a>
support@erdheim-chester.org<\/a><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_5,1_5,1_5,1_5,1_5″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb50px||50px||true|false\u00a0\u00bb border_width_bottom=\u00a0\u00bb1px\u00a0\u00bb border_color_bottom=\u00a0\u00bbrgba(255,255,255,0.2)\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_5″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_font=\u00a0\u00bb||||||||\u00a0\u00bb text_text_color=\u00a0\u00bbrgba(255,255,255,0.9)\u00a0\u00bb text_font_size=\u00a0\u00bb17px\u00a0\u00bb header_5_font=\u00a0\u00bb|600|||||||\u00a0\u00bb header_5_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_5_font_size=\u00a0\u00bb17px\u00a0\u00bb header_6_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb custom_margin=\u00a0\u00bb||16px|||\u00a0\u00bb text_orientation_tablet=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_phone=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_last_edited=\u00a0\u00bbon|tablet\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb]Qu’est-ce que ECD?[\/et_pb_text][et_pb_menu menu_id=\u00a0\u00bb3464″ module_class=\u00a0\u00bbfooter-menu\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb menu_text_color=\u00a0\u00bbrgba(255,255,255,0.6)\u00a0\u00bb menu_font_size=\u00a0\u00bb15px\u00a0\u00bb background_enable_color=\u00a0\u00bboff\u00a0\u00bb custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb db_link_spacing=\u00a0\u00bb32px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb menu_text_color__hover_enabled=\u00a0\u00bbon|hover\u00a0\u00bb menu_text_color__hover=\u00a0\u00bb#35A4BB\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][\/et_pb_menu][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_5″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_font=\u00a0\u00bb||||||||\u00a0\u00bb text_text_color=\u00a0\u00bbrgba(255,255,255,0.9)\u00a0\u00bb text_font_size=\u00a0\u00bb17px\u00a0\u00bb header_5_font=\u00a0\u00bb|600|||||||\u00a0\u00bb header_5_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_5_font_size=\u00a0\u00bb17px\u00a0\u00bb header_6_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb custom_margin=\u00a0\u00bb||16px|||\u00a0\u00bb text_orientation_tablet=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_phone=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_last_edited=\u00a0\u00bbon|tablet\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb]<\/p>\n

Patients\/Aim\u00e9s<\/p>\n

[\/et_pb_text][et_pb_menu menu_id=\u00a0\u00bb3465″ module_class=\u00a0\u00bbfooter-menu\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb menu_text_color=\u00a0\u00bbrgba(255,255,255,0.6)\u00a0\u00bb menu_font_size=\u00a0\u00bb15px\u00a0\u00bb background_enable_color=\u00a0\u00bboff\u00a0\u00bb text_orientation_tablet=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_phone=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_last_edited=\u00a0\u00bbon|tablet\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb menu_text_color__hover_enabled=\u00a0\u00bbon|hover\u00a0\u00bb menu_text_color__hover=\u00a0\u00bb#35A4BB\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][\/et_pb_menu][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_5″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_font=\u00a0\u00bb||||||||\u00a0\u00bb text_text_color=\u00a0\u00bbrgba(255,255,255,0.9)\u00a0\u00bb text_font_size=\u00a0\u00bb17px\u00a0\u00bb header_5_font=\u00a0\u00bb|600|||||||\u00a0\u00bb header_5_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_5_font_size=\u00a0\u00bb17px\u00a0\u00bb header_6_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb custom_margin=\u00a0\u00bb||16px|||\u00a0\u00bb text_orientation_tablet=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_phone=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_last_edited=\u00a0\u00bbon|tablet\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb]A propos de nous[\/et_pb_text][et_pb_menu menu_id=\u00a0\u00bb3466″ module_class=\u00a0\u00bbfooter-menu\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb 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theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][\/et_pb_menu][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_5″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_font=\u00a0\u00bb||||||||\u00a0\u00bb text_text_color=\u00a0\u00bbrgba(255,255,255,0.9)\u00a0\u00bb text_font_size=\u00a0\u00bb17px\u00a0\u00bb header_5_font=\u00a0\u00bb|600|||||||\u00a0\u00bb header_5_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb header_5_font_size=\u00a0\u00bb17px\u00a0\u00bb header_6_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb custom_margin=\u00a0\u00bb||16px|||\u00a0\u00bb text_orientation_tablet=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_phone=\u00a0\u00bbcenter\u00a0\u00bb text_orientation_last_edited=\u00a0\u00bbon|tablet\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb]Professionnels de la sant\u00e9[\/et_pb_text][et_pb_menu menu_id=\u00a0\u00bb3468″ module_class=\u00a0\u00bbfooter-menu\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb menu_text_color=\u00a0\u00bbrgba(255,255,255,0.6)\u00a0\u00bb menu_font_size=\u00a0\u00bb15px\u00a0\u00bb background_enable_color=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb menu_text_color__hover_enabled=\u00a0\u00bbon|hover\u00a0\u00bb menu_text_color__hover=\u00a0\u00bb#35A4BB\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][\/et_pb_menu][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_2,1_2″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb50px||50px||true|false\u00a0\u00bb border_width_bottom=\u00a0\u00bb1px\u00a0\u00bb 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global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb][et_pb_social_media_follow_network social_network=\u00a0\u00bbfacebook\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.facebook.com\/ErdheimChesterDisease\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bbrgba(255,255,255,0.15)\u00a0\u00bb background_enable_color=\u00a0\u00bbon\u00a0\u00bb custom_padding=\u00a0\u00bb8px|8px|8px|8px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|1000px|1000px|1000px|1000px\u00a0\u00bb border_width_all=\u00a0\u00bb1px\u00a0\u00bb border_color_all=\u00a0\u00bb#FFFFFF\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb follow_button=\u00a0\u00bboff\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb]facebook[\/et_pb_social_media_follow_network][et_pb_social_media_follow_network social_network=\u00a0\u00bbinstagram\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.instagram.com\/erdheim_chester\/?hl=en\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bbrgba(255,255,255,0.15)\u00a0\u00bb background_enable_color=\u00a0\u00bbon\u00a0\u00bb custom_padding=\u00a0\u00bb8px|8px|8px|8px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|1000px|1000px|1000px|1000px\u00a0\u00bb border_width_all=\u00a0\u00bb1px\u00a0\u00bb border_color_all=\u00a0\u00bb#FFFFFF\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb follow_button=\u00a0\u00bboff\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb]instagram[\/et_pb_social_media_follow_network][et_pb_social_media_follow_network social_network=\u00a0\u00bbyoutube\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.youtube.com\/c\/ECDGlobalAlliance\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bbrgba(255,255,255,0.15)\u00a0\u00bb background_enable_color=\u00a0\u00bbon\u00a0\u00bb custom_padding=\u00a0\u00bb8px|8px|8px|8px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|1000px|1000px|1000px|1000px\u00a0\u00bb border_width_all=\u00a0\u00bb1px\u00a0\u00bb border_color_all=\u00a0\u00bb#FFFFFF\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb follow_button=\u00a0\u00bboff\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb]youtube[\/et_pb_social_media_follow_network][et_pb_social_media_follow_network social_network=\u00a0\u00bblinkedin\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.linkedin.com\/company\/erdheim-chester-disease-global-alliance-npo\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bbrgba(255,255,255,0.15)\u00a0\u00bb background_enable_color=\u00a0\u00bbon\u00a0\u00bb custom_padding=\u00a0\u00bb8px|8px|8px|8px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|1000px|1000px|1000px|1000px\u00a0\u00bb border_width_all=\u00a0\u00bb1px\u00a0\u00bb border_color_all=\u00a0\u00bb#FFFFFF\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb theme_builder_area=\u00a0\u00bbpost_content\u00a0\u00bb follow_button=\u00a0\u00bboff\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb]linkedin[\/et_pb_social_media_follow_network][et_pb_social_media_follow_network social_network=\u00a0\u00bbtwitter\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/twitter.com\/@ECDGA\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bbrgba(255,255,255,0.15)\u00a0\u00bb background_enable_color=\u00a0\u00bbon\u00a0\u00bb custom_padding=\u00a0\u00bb8px|8px|8px|8px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|1000px|1000px|1000px|1000px\u00a0\u00bb 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Ce site web est uniquement destin\u00e9 \u00e0 des fins d’information.<\/p>\n

Con\u00e7u par The Egghead. <\/span><\/a>Copyright 2026. Tous droits r\u00e9serv\u00e9s ECD GLOBAL ALLIANCE. Organisation 501(c)(3). EIN# 27-0759192.<\/p>\n

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