{"id":57465,"date":"2014-11-20T08:03:43","date_gmt":"2014-11-20T13:03:43","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/des-medecins-competents\/"},"modified":"2025-05-12T14:46:40","modified_gmt":"2025-05-12T18:46:40","slug":"des-medecins-competents","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/fr\/des-medecins-competents\/","title":{"rendered":"Des m\u00e9decins comp\u00e9tents"},"content":{"rendered":"

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Medical Professional Contacts<\/h2>\n

Medical Professionals with Erdheim-Chester Disease Knowledge\/Experience<\/strong><\/p>\n

\"\"<\/p>\n

Often times a patient cannot travel to an ECD Care Center<\/a>. In this case a patient may need physician close to home who is knowledgeable about ECD and the care of someone living with ECD.<\/p>\n

The ECDGA Patient Navigator<\/a> has access to information about physicians outside of Care Centers who are familar with ECD. If you are a patient or family member, and need information about physicians outside of Care Centers, please contact us.<\/p>\n

If you are a medical professional and would like to include your name and contact information to the ECD Global Alliance to help patients find you, please contact us<\/a>.<\/p>\n

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Si vous \u00eates un professionnel de la sant\u00e9 et que vous souhaitez que votre \u00e9tablissement soit ajout\u00e9 au r\u00e9seau de r\u00e9f\u00e9rence des centres de soins ECD, veuillez nous contacter.<\/a><\/p>\n

Chaque centre de soins doit avoir pour mission de veiller \u00e0 ce que les patients du site ECD b\u00e9n\u00e9ficient d’un niveau de soins expert.<\/p>\n

Pour devenir un centre de soins, il faut remplir un formulaire d’auto-nomination. Les informations demand\u00e9es comprennent des donn\u00e9es d\u00e9montrant que votre \u00e9quipe est en mesure de fournir des soins et un soutien appropri\u00e9s aux personnes vivant avec ECD. <\/p>\n

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