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En tant que maladie multisyst\u00e9mique, l’Erdheim-Chester doit \u00eatre surveill\u00e9e de pr\u00e8s, quel que soit le traitement qu’un patient pourrait utiliser. Il est recommand\u00e9 \u00e0 toute personne ayant re\u00e7u un diagnostic<\/u><\/a> d’ECD de subir p\u00e9riodiquement les tests suivants afin de surveiller la maladie et les effets secondaires potentiels du traitement : <\/p>\n De plus, les patients atteints d’ECD n\u00e9cessitent une initiation pr\u00e9coce des services de kin\u00e9sith\u00e9rapie. Selon les sympt\u00f4mes<\/u><\/a> du patient, cela peut inclure la kin\u00e9sith\u00e9rapie, l’ergoth\u00e9rapie et\/ou l’orthophonie\/la th\u00e9rapie de la d\u00e9glutition. Les patients et les m\u00e9decins rapportent que c’est une partie importante de la gestion du traitement qui ne doit pas \u00eatre n\u00e9glig\u00e9e. <\/p>\n Enfin, tout patient souffrant de probl\u00e8mes psychologiques ou psychosociaux devrait en discuter avec son m\u00e9decin. Lutter contre l’inqui\u00e9tude, l’anxi\u00e9t\u00e9, la tristesse et m\u00eame la d\u00e9pression est courant chez les patients atteints d’ECD, et les traitements<\/u><\/a> peuvent aider. Les patients sont encourag\u00e9s \u00e0 poursuivre les interactions sociales et les activit\u00e9s de loisirs qu’ils appr\u00e9cient. La recherche de conseils et l’implication aupr\u00e8s de l’ECDGA par le biais des programmes propos\u00e9s se sont \u00e9galement av\u00e9r\u00e9es utiles pour les patients. <\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_4,3_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb0px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/10\/Picture155.jpg\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][et_pb_column type=\u00a0\u00bb3_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n Voir :<\/p>\n\n
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Kin\u00e9sith\u00e9rapie, ergoth\u00e9rapie, orthophonie<\/h3>\n
Consid\u00e9rations psychologiques<\/h3>\n
Besoins en mati\u00e8re de survie<\/h3>\n
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Plus d’informations sur la survie avec ECD<\/h3>\n