[et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png\u00a0\u00bb background_position=\u00a0\u00bbbottom_center\u00a0\u00bb background_vertical_offset=\u00a0\u00bb20%\u00a0\u00bb custom_padding=\u00a0\u00bb15px||15px||true|false\u00a0\u00bb background_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb background_position_tablet=\u00a0\u00bbbottom_right\u00a0\u00bb background_position_phone=\u00a0\u00bbcenter_right\u00a0\u00bb global_module=\u00a0\u00bb28071″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_heading title=\u00a0\u00bb@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _dynamic_attributes=\u00a0\u00bbtitle\u00a0\u00bb _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_font=\u00a0\u00bb–et_global_heading_font|300|||||||\u00a0\u00bb title_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb title_font_size=\u00a0\u00bb40px\u00a0\u00bb custom_margin=\u00a0\u00bb||3px|||\u00a0\u00bb title_font_size_tablet=\u00a0\u00bb\u00a0\u00bb title_font_size_phone=\u00a0\u00bb25px\u00a0\u00bb title_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_heading][et_pb_button button_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/contactez-nous\/\u00a0\u00bb button_text=\u00a0\u00bbContactez nous\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_button=\u00a0\u00bbon\u00a0\u00bb button_text_size=\u00a0\u00bb15px\u00a0\u00bb button_text_color=\u00a0\u00bb#C02E43″ button_bg_color=\u00a0\u00bbrgba(10,22,64,0.53)\u00a0\u00bb button_border_width=\u00a0\u00bb0px\u00a0\u00bb button_icon=\u00a0\u00bb||divi||400″ button_icon_color=\u00a0\u00bb#C02E43″ button_icon_placement=\u00a0\u00bbleft\u00a0\u00bb button_on_hover=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb filter_opacity__hover_enabled=\u00a0\u00bbon|hover\u00a0\u00bb filter_opacity__hover=\u00a0\u00bb70%\u00a0\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row column_structure=\u00a0\u00bb2_3,1_3″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb2_3″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb6px|||||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
L’Alliance mondiale ECD organise chaque mois des chats virtuels en ligne \u00e0 l’intention de tous les membres de la communaut\u00e9 ECD. Cela inclut les patients, les soignants, les membres de la famille, le personnel m\u00e9dical, les chercheurs, etc. <\/p>\n
Pour ceux qui s’inscrivent \u00e0 l’Alliance mondiale ECD, vous recevrez un courriel annon\u00e7ant chaque session de chat en rapport avec votre r\u00f4le. Si vous n’\u00eates pas encore inscrit au groupe, nous vous recommandons de le faire ici<\/a> pour rester connect\u00e9 et inform\u00e9. <\/p>\n Les chats sont ouverts \u00e0 tous les sujets de discussion, dans la limite du raisonnable. Les sujets souvent abord\u00e9s sont les suivants : ECD, les probl\u00e8mes de diagnostic, les traitements, les tests, les m\u00e9decins comp\u00e9tents, les sympt\u00f4mes, les effets secondaires des traitements, et parfois simplement des discussions amicales sur des choses agr\u00e9ables qui se passent dans la vie des participants. La plupart des participants aux sessions ont trouv\u00e9 des liens et continuent \u00e0 correspondre en dehors des sessions de chat. Les r\u00e9unions constituent \u00e9galement une structure de soutien pour les personnes d\u00e9sireuses d’en apprendre le plus possible sur ECD et de se soutenir mutuellement. <\/a><\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#35A4BB\u00a0\u00bb custom_padding=\u00a0\u00bb30px|30px|30px|30px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|10px|10px|10px|10px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_layout=\u00a0\u00bbdark\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n La perte d’un \u00eatre cher \u00e0 cause de la maladie d’Erdheim-Chester est un parcours incroyablement douloureux, et personne ne devrait avoir \u00e0 le traverser seul. Bien que nous ne pr\u00e9voyions plus de s\u00e9ances de discussion sur le deuil \u00e0 l’avance, nous sommes l\u00e0 pour vous soutenir lorsque vous en avez le plus besoin. Contactez notre navigateur pour plus d’informations.<\/p>\n [\/et_pb_text][et_pb_button button_url=\u00a0\u00bbmailto:Belinda.Cobb@erdheim-chester.org\u00a0\u00bb button_text=\u00a0\u00bbContactez nous\u00a0\u00bb button_alignment=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_button=\u00a0\u00bbon\u00a0\u00bb button_text_color=\u00a0\u00bb#35A4BB\u00a0\u00bb button_bg_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb button_border_radius=\u00a0\u00bb8px\u00a0\u00bb button_use_icon=\u00a0\u00bboff\u00a0\u00bb custom_padding=\u00a0\u00bb10px||10px||true|false\u00a0\u00bb custom_css_main_element=\u00a0\u00bbwidth: 100%;\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ module_class=\u00a0\u00bbchat-sessions\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb 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_builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb text_font_size=\u00a0\u00bb18px\u00a0\u00bb text_line_height=\u00a0\u00bb1.8em\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_css_main_element=\u00a0\u00bbcolor: #ffffff;\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_layout=\u00a0\u00bbdark\u00a0\u00bb custom_margin=\u00a0\u00bb||10px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n [\/et_pb_text][et_pb_image src=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/australia-june.png\u00a0\u00bb title_text=\u00a0\u00bbAustralie juin\u00a0\u00bb 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global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_video src=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/05\/Community-Chats.mp4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_video][et_pb_image src=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/06\/Housekeeping.png\u00a0\u00bb title_text=\u00a0\u00bbEntretien m\u00e9nager\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n Auparavant, l’ECDGA organisait des sessions de chat en ligne dactylographi\u00e9es et en direct pour la communaut\u00e9. Les r\u00e9sum\u00e9s des sessions de chat pr\u00e9c\u00e9dentes ont \u00e9t\u00e9 compil\u00e9s et archiv\u00e9s ici.<\/a> <\/p>\n Veuillez lire notre politique de participation virtuelle<\/a> avant de vous joindre \u00e0 une r\u00e9union ou \u00e0 un webinaire de l’Alliance mondiale ECD.<\/p>\n NOTE : V\u00e9rifiez votre fuseau horaire ici : Convertisseur de fuseau horaire<\/a>.<\/p>\n Aucun<\/u> professionnel de la sant\u00e9 n’<\/u> assistera \u00e0 ces appels. Chaque patient est unique et il n’est pas possible de donner des conseils m\u00e9dicaux ici ; nous vous encourageons \u00e0 partager vos id\u00e9es avec des m\u00e9decins. Veuillez lire notre politique de participation virtuelle.<\/a> <\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" Connexion en ligne avec votre communaut\u00e9 L’Alliance mondiale ECD organise chaque mois des chats virtuels en ligne \u00e0 l’intention de tous les membres de la communaut\u00e9 ECD. Cela inclut les […]<\/p>\n","protected":false},"author":14,"featured_media":21077,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-56731","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/56731","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=56731"}],"version-history":[{"count":7,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/56731\/revisions"}],"predecessor-version":[{"id":134201,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/56731\/revisions\/134201"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/21077"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=56731"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}Connexion au deuil<\/h3>\n
Groupes anglophones<\/h2>\n
Groupes internationaux<\/h2>\n
Chat de la communaut\u00e9 canadienne<\/h3>\n
Chat pour ceux qui parlent espagnol<\/h3>\n
Chat australien et n\u00e9o-z\u00e9landais<\/h3>\n
Chat de la communaut\u00e9 italienne<\/span><\/span><\/span><\/h3>\n
Chat francophone<\/h3>\n
Chat allemand<\/h3>\n