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The ECD Global Alliance organization is a non-profit corporation with a tax exempt status under section 501(c)(3) of the Internal Revenue Code with an effective date of exemption of August 28, 2009.\u00a0 The organization is registered in the State of Louisiana.\u00a0 (EIN number 27-0759192.)<\/p>\n
The timeline in the figure below shows the major milestones the organization has achieved since its beginning as an informal support group to a more formal organization.\u00a0 In April 2008, a few ECD caregivers, Carol, Kathy, and RuthAnn found each other via the internet.\u00a0With a spirit of \u00ab\u00a0If you build it, they will come\u201d an online chat session was scheduled for all those affected by ECD.\u00a0 We started with a group representing only 6 patients. \u00a0Currently, the organization serves over 400 families worldwide.
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