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Cliquez sur l’image pour l’agrandir.[\/et_pb_text][et_pb_button button_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Symptom-Flyer-with-Jaw.pdf\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb button_text=\u00a0\u00bbT\u00e9l\u00e9chargez la version PDF\u00a0\u00bb module_class=\u00a0\u00bbfull-button\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb6px||6px||true|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_button][\/et_pb_column][et_pb_column type=\u00a0\u00bb2_3″ _builder_version=\u00a0\u00bb4.16″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text admin_label=\u00a0\u00bbText\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.6″ background_size=\u00a0\u00bbinitial\u00a0\u00bb background_position=\u00a0\u00bbtop_left\u00a0\u00bb background_repeat=\u00a0\u00bbrepeat\u00a0\u00bb hover_enabled=\u00a0\u00bb0″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0″]Les sympt\u00f4mes de ECD d\u00e9pendent de l’organe (ou des organes) touch\u00e9(s), qui varie(nt) d’un patient \u00e0 l’autre. C’est pourquoi les sympt\u00f4mes de ECD peuvent \u00eatre diff\u00e9rents pour chaque patient. <\/p>\n
Un m\u00eame patient peut pr\u00e9senter une combinaison diff\u00e9rente de ces sympt\u00f4mes, ainsi que d’autres. Peu de patients pr\u00e9sentent tous les sympt\u00f4mes ci-dessus. C’est en partie ce qui rend ECD difficile \u00e0 diagnostiquer<\/u><\/a>. Un diagnostic<\/u><\/a> ECD n\u00e9cessite un examen des sympt\u00f4mes en conjonction avec l’imagerie (PET-CT et IRM si disponible) et les biopsies effectu\u00e9es par une \u00e9quipe m\u00e9dicale comp\u00e9tente. <\/p>\n Toute personne qui pense \u00eatre atteinte de ECD devrait demander l’aide d’un fournisseur de soins de sant\u00e9 bien inform\u00e9. Un diagnostic<\/u><\/a> pr\u00e9coce donnera potentiellement aux patients les meilleures chances de r\u00e9ussite du plan de traitement. <\/p>\n Fin 2018, le registre des patients ECD<\/u><\/a> a donn\u00e9 lieu \u00e0 l’article suivant sur l’\u00e9valuation des sympt\u00f4mes. Les r\u00e9sultats comprennent un tableau de pourcentage des sympt\u00f4mes d\u00e9clar\u00e9s par les patients. Voir Une \u00e9chelle pour l’\u00e9valuation des sympt\u00f4mes rapport\u00e9s par les patients pour les patients atteints de Erdheim-Chester maladie<\/u><\/strong><\/a> pour en savoir plus. <\/p>\n Seul un professionnel de la sant\u00e9 peut diagnostiquer<\/u><\/a> ECD, mais certains des sympt\u00f4mes les plus courants peuvent inclure un ou plusieurs des \u00e9l\u00e9ments suivants :[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row admin_label=\u00a0\u00bbrang\u00e9e\u00a0\u00bb _builder_version=\u00a0\u00bb4.16″ background_size=\u00a0\u00bbinitial\u00a0\u00bb background_position=\u00a0\u00bbtop_left\u00a0\u00bb background_repeat=\u00a0\u00bbrepeat\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.16″ custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text admin_label=\u00a0\u00bbText\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.6″ link_text_color=\u00a0\u00bb#35A4BB\u00a0\u00bb background_size=\u00a0\u00bbinitial\u00a0\u00bb background_position=\u00a0\u00bbtop_left\u00a0\u00bb background_repeat=\u00a0\u00bbrepeat\u00a0\u00bb hover_enabled=\u00a0\u00bb0″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0″]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]Suivant><\/strong> Diagnostic<\/a>[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb hover_enabled=\u00a0\u00bb0″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0″]<\/p>\n Derni\u00e8re mise \u00e0 jour :<\/strong> 17\/03\/2026<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" Les sympt\u00f4mes de ECD d\u00e9pendent de l’organe (ou des organes) touch\u00e9(s), qui varie(nt) d’un patient \u00e0 l’autre. C’est pourquoi les sympt\u00f4mes de ECD peuvent \u00eatre diff\u00e9rents pour chaque patient. Un […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-55535","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/55535","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=55535"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/55535\/revisions"}],"predecessor-version":[{"id":162419,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/55535\/revisions\/162419"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=55535"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}\n