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Trouvez des informations sur les \u00e9v\u00e9nements li\u00e9s \u00e0 ECD organis\u00e9s dans le monde entier.<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_3,2_3″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ custom_padding=\u00a0\u00bb40px|40px|40px|40px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|20px|20px|20px|20px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_3″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/03\/2017-Patient-Caregiver-Attendees-Small-e1516487954105.jpg\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][et_pb_column type=\u00a0\u00bb2_3″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_blurb title=\u00a0\u00bbECD R\u00e9union des patients et des familles\u00a0\u00bb icon_alignment=\u00a0\u00bbleft\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||12px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
Le site ECDGA a accueilli cinq r\u00e9unions de patients et de familles, rassemblant les familles, les patients et les professionnels de la sant\u00e9 pour en savoir plus sur les sujets suivants Erdheim-Chester la maladie. ECD Au cours des \u00e9v\u00e9nements pr\u00e9c\u00e9dents, des pr\u00e9sentations \u00e9ducatives ont \u00e9t\u00e9 faites par des m\u00e9decins comp\u00e9tents du monde entier. Les sessions ont fourni des strat\u00e9gies de gestion de la maladie et des mises \u00e0 jour, permettant aux patients et aux familles d’\u00eatre mieux inform\u00e9s sur ECD; les aidant \u00e0 \u00eatre des d\u00e9fenseurs plus forts. Outre les possibilit\u00e9s d’apprentissage, les patients et leurs familles ont profit\u00e9 de moments de convivialit\u00e9 qui leur ont permis de partager leurs histoires et leurs exp\u00e9riences les uns avec les autres. Ces \u00e9v\u00e9nements annuels se sont r\u00e9v\u00e9l\u00e9s \u00eatre une contribution pr\u00e9cieuse \u00e0 cette communaut\u00e9 forte qu’est ECD! Pour en savoir plus sur ces \u00e9v\u00e9nements, y compris les enregistrements et les photos des pr\u00e9sentations, ainsi que sur les \u00e9v\u00e9nements \u00e0 venir, veuillez cliquer sur le bouton \u00ab\u00a0En savoir plus\u00a0\u00bb ci-dessous. <\/p>\n
[\/et_pb_blurb][et_pb_button button_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/events\/category\/ecd-patient-family-gathering\/\u00a0\u00bb button_text=\u00a0\u00bbEn savoir plus\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb hover_enabled=\u00a0\u00bb0″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0″][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_3,2_3″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ custom_margin=\u00a0\u00bb50px||||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb40px|40px|40px|40px|true|true\u00a0\u00bb border_radii=\u00a0\u00bbon|20px|20px|20px|20px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_3″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/11\/2017-MS-Group-Photo_All-attendees-300×200.jpg\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][et_pb_column type=\u00a0\u00bb2_3″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_blurb title=\u00a0\u00bbECD Symposium m\u00e9dical\u00a0\u00bb icon_alignment=\u00a0\u00bbleft\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||12px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n
Des professionnels de la sant\u00e9 du monde entier se r\u00e9unissent \u00e0 l’occasion de cet \u00e9v\u00e9nement annuel pour partager les r\u00e9sultats scientifiques, les r\u00e9sultats obtenus par les patients, les \u00e9tudes de cas et les nouveaux d\u00e9veloppements dans la recherche et le traitement de cette maladie. Cet \u00e9v\u00e9nement permet \u00e9galement aux scientifiques de collaborer et encourage le d\u00e9veloppement d’un r\u00e9seau plus solide de centres de soins de r\u00e9f\u00e9rence ( ECD ). Vous trouverez des r\u00e9sum\u00e9s des \u00e9v\u00e9nements pass\u00e9s et des informations sur les \u00e9v\u00e9nements \u00e0 venir en cliquant sur le bouton \u00ab\u00a0En savoir plus\u00a0\u00bb. <\/p>\n
[\/et_pb_blurb][et_pb_button button_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/events\/category\/ecd-medical-symposium\/\u00a0\u00bb button_text=\u00a0\u00bbEn savoir plus\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb hover_enabled=\u00a0\u00bb0″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_enabled=\u00a0\u00bb0″][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"
[et_pb_dmb_breadcrumbs _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb body_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb body_font_size=\u00a0\u00bb12px\u00a0\u00bb link_text_color=\u00a0\u00bb#35A4BB\u00a0\u00bb custom_margin=\u00a0\u00bb||5px||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb body_font_size_tablet=\u00a0\u00bb12px\u00a0\u00bb body_font_size_phone=\u00a0\u00bb10px\u00a0\u00bb body_font_size_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_dmb_breadcrumbs]Trouvez des informations sur les \u00e9v\u00e9nements li\u00e9s \u00e0 ECD organis\u00e9s dans le monde entier.Le site ECDGA a accueilli cinq […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-52616","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/52616","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=52616"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/52616\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=52616"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}