{"id":52111,"date":"2015-07-04T15:49:08","date_gmt":"2015-07-04T20:49:08","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/histoires-de-patients\/"},"modified":"2025-09-27T09:54:43","modified_gmt":"2025-09-27T14:54:43","slug":"histoires-de-patients","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/fr\/histoires-de-patients\/","title":{"rendered":"Histoires de patients"},"content":{"rendered":"<p>[et_pb_section fb_built=\u00a0\u00bb1&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png\u00a0\u00bb background_position=\u00a0\u00bbbottom_center\u00a0\u00bb background_vertical_offset=\u00a0\u00bb20%\u00a0\u00bb custom_padding=\u00a0\u00bb0px||0px||true|false\u00a0\u00bb background_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb background_position_tablet=\u00a0\u00bbbottom_right\u00a0\u00bb background_position_phone=\u00a0\u00bbcenter_right\u00a0\u00bb global_module=\u00a0\u00bb28071&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_dmb_breadcrumbs _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb body_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb body_font_size=\u00a0\u00bb12px\u00a0\u00bb link_text_color=\u00a0\u00bb#35A4BB\u00a0\u00bb custom_margin=\u00a0\u00bb||5px||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb body_font_size_tablet=\u00a0\u00bb12px\u00a0\u00bb body_font_size_phone=\u00a0\u00bb10px\u00a0\u00bb body_font_size_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_dmb_breadcrumbs][et_pb_heading title=\u00a0\u00bb@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _dynamic_attributes=\u00a0\u00bbtitle\u00a0\u00bb _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_font=\u00a0\u00bb&#8211;et_global_heading_font|300|||||||\u00a0\u00bb title_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb title_font_size=\u00a0\u00bb40px\u00a0\u00bb custom_margin=\u00a0\u00bb||3px|||\u00a0\u00bb title_font_size_tablet=\u00a0\u00bb\u00a0\u00bb title_font_size_phone=\u00a0\u00bb25px\u00a0\u00bb title_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_heading][et_pb_button button_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/contactez-nous\/\u00a0\u00bb button_text=\u00a0\u00bbContactez nous\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_button=\u00a0\u00bbon\u00a0\u00bb button_text_size=\u00a0\u00bb15px\u00a0\u00bb button_text_color=\u00a0\u00bb#C02E43&Prime; button_bg_color=\u00a0\u00bbrgba(10,22,64,0.53)\u00a0\u00bb button_border_width=\u00a0\u00bb0px\u00a0\u00bb button_icon=\u00a0\u00bb&#xe60f;||divi||400&Prime; button_icon_color=\u00a0\u00bb#C02E43&Prime; button_icon_placement=\u00a0\u00bbleft\u00a0\u00bb button_on_hover=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb filter_opacity__hover_enabled=\u00a0\u00bbon|hover\u00a0\u00bb filter_opacity__hover=\u00a0\u00bb70%\u00a0\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb||3px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row column_structure=\u00a0\u00bb1_2,1_4,1_4&Prime; use_custom_gutter=\u00a0\u00bbon\u00a0\u00bb gutter_width=\u00a0\u00bb2&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h1>Les voix de ECD<\/h1>\n<h3>\u00c9crits sur les membres et l&rsquo;organisation<\/h3>\n<p>Les membres de l&rsquo;Alliance mondiale ECD ont pour mission de sensibiliser le public aux questions suivantes Erdheim-Chester la maladie. Les liens suivants permettent d&rsquo;acc\u00e9der \u00e0 des articles de presse et \u00e0 des vid\u00e9os sur les patients de ECD et leurs familles. Si vous souhaitez partager une histoire imprim\u00e9e ou t\u00e9l\u00e9vis\u00e9e sur ECD, veuillez nous contacter \u00e0 propos de la publication \u00e0 inclure ici.  <\/p>\n<p>Veuillez noter que tous les articles et toutes les informations concernant ECD sont tr\u00e8s appr\u00e9ci\u00e9s sur les sites suivants et dans les articles associ\u00e9s. Cependant, certains faits concernant ECD peuvent parfois \u00eatre mal interpr\u00e9t\u00e9s. Veuillez noter que certaines informations concernant ECD dans certains articles peuvent ne pas \u00eatre scientifiquement correctes.  <\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_4&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/01\/Hiba-Tohme-Story-Francais-pdf.jpg\u00a0\u00bb title_text=\u00a0\u00bbHiba-Tohme-Histoire-Fran\u00e7aise-pdf\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||15px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_button button_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2022\/02\/Hiba-Tohme-Story-Francais.pdf\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb button_text=\u00a0\u00bbT\u00e9l\u00e9charger le PDF\u00a0\u00bb module_class=\u00a0\u00bbfull-button\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||15px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_button][et_pb_button button_text=\u00a0\u00bbVoir l&apos;article\u00a0\u00bb module_class=\u00a0\u00bbfull-button\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_button][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_4&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/01\/2021-Atnip-Virtual-Run-story-Final-pdf.jpg\u00a0\u00bb title_text=\u00a0\u00bb2021-Atnip-Virtual-Run-story-Final-pdf\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||15px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_button button_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/2021-Atnip-Virtual-Run-story-Final.pdf\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb button_text=\u00a0\u00bbT\u00e9l\u00e9charger le PDF\u00a0\u00bb module_class=\u00a0\u00bbfull-button\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||15px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_button][et_pb_button button_text=\u00a0\u00bbVoir l&apos;article\u00a0\u00bb module_class=\u00a0\u00bbfull-button\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb0px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][dpdfg_filtergrid include_categories=\u00a0\u00bb272&Prime; post_number=\u00a0\u00bb1000&Prime; show_thumbnail=\u00a0\u00bboff\u00a0\u00bb use_overlay=\u00a0\u00bboff\u00a0\u00bb title_link=\u00a0\u00bbon\u00a0\u00bb meta_separator=\u00a0\u00bb|\u00a0\u00bb show_author=\u00a0\u00bboff\u00a0\u00bb show_terms=\u00a0\u00bbon\u00a0\u00bb show_terms_taxonomy=\u00a0\u00bbpost_tag\u00a0\u00bb terms_separator=\u00a0\u00bb |\u00a0\u00bb terms_links=\u00a0\u00bboff\u00a0\u00bb show_content=\u00a0\u00bbon\u00a0\u00bb truncate_content=\u00a0\u00bb200&Prime; truncate_excerpt=\u00a0\u00bbon\u00a0\u00bb read_more=\u00a0\u00bbon\u00a0\u00bb read_more_text=\u00a0\u00bbVoir l&#039;article complet\u00a0\u00bb show_filters=\u00a0\u00bboff\u00a0\u00bb s_df=\u00a0\u00bbon\u00a0\u00bb df_y=\u00a0\u00bb2024, 2017, 2016, 2015, 2014, 2013, 2012, 2011, 2009&Prime; s_df_m=\u00a0\u00bboff\u00a0\u00bb filter_layout=\u00a0\u00bbselect\u00a0\u00bb filter_dropdown_show_tags=\u00a0\u00bboff\u00a0\u00bb filter_dropdown_placeholder=\u00a0\u00bbS\u00e9lectionnez une cat\u00e9gorie\u00a0\u00bb show_pagination=\u00a0\u00bboff\u00a0\u00bb items_width=\u00a0\u00bb30%\u00a0\u00bb bg_filters=\u00a0\u00bb#FFFFFF\u00a0\u00bb bg_filter_active=\u00a0\u00bb#F2F2F2&Prime; bg_filter_label=\u00a0\u00bb#FFFFFF\u00a0\u00bb module_class=\u00a0\u00bbblog-grid\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb dpdfg_entry_meta_font=\u00a0\u00bb|600||on|||||\u00a0\u00bb dpdfg_entry_meta_text_color=\u00a0\u00bb#C02E43&Prime; dpdfg_entry_meta_font_size=\u00a0\u00bb11px\u00a0\u00bb dpdfg_filters_text_color=\u00a0\u00bb#35A4BB\u00a0\u00bb dpdfg_filters_active_text_color=\u00a0\u00bb#C02E43&Prime; custom_read_more_button=\u00a0\u00bbon\u00a0\u00bb read_more_button_text_size=\u00a0\u00bb13px\u00a0\u00bb read_more_button_text_color=\u00a0\u00bb#35A4BB\u00a0\u00bb read_more_button_bg_color=\u00a0\u00bbrgba(53,164,187,0.15)\u00a0\u00bb read_more_button_icon=\u00a0\u00bb&#x24;||divi||400&Prime; read_more_button_on_hover=\u00a0\u00bboff\u00a0\u00bb read_more_button_alignment=\u00a0\u00bbleft\u00a0\u00bb read_more_button_custom_padding=\u00a0\u00bb0px|34px|0px|0px|true|false\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb read_more_button_text_color__hover_enabled=\u00a0\u00bbon|hover\u00a0\u00bb read_more_button_text_color__hover=\u00a0\u00bb#FFFFFF\u00a0\u00bb read_more_button_bg_color__hover_enabled=\u00a0\u00bbon|hover\u00a0\u00bb read_more_button_bg_color__hover=\u00a0\u00bb#35A4BB\u00a0\u00bb read_more_button_bg_enable_color__hover=\u00a0\u00bbon\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; thumbnail_action=\u00a0\u00bbnone\u00a0\u00bb][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[et_pb_dmb_breadcrumbs _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb body_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb body_font_size=\u00a0\u00bb12px\u00a0\u00bb link_text_color=\u00a0\u00bb#35A4BB\u00a0\u00bb custom_margin=\u00a0\u00bb||5px||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb body_font_size_tablet=\u00a0\u00bb12px\u00a0\u00bb body_font_size_phone=\u00a0\u00bb10px\u00a0\u00bb body_font_size_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_dmb_breadcrumbs]Les voix de ECD \u00c9crits sur les membres et l&rsquo;organisation Les membres de l&rsquo;Alliance mondiale ECD ont pour mission [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":23547,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-52111","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/52111","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=52111"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/52111\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media\/23547"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=52111"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}