{"id":50747,"date":"2019-03-10T12:53:21","date_gmt":"2019-03-10T17:53:21","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/evenements-passes\/"},"modified":"2025-09-29T21:57:51","modified_gmt":"2025-09-30T02:57:51","slug":"evenements-passes","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/fr\/evenements-passes\/","title":{"rendered":"\u00c9v\u00e9nements pass\u00e9s"},"content":{"rendered":"

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Histoire annuelle du patient et de sa famille<\/h2>\n

Une partie de la mission de l’Alliance mondiale ECD est d’\u00e9duquer et de soutenir les patients en leur fournissant les informations dont ils ont besoin pour d\u00e9fendre leur sant\u00e9 et leur qualit\u00e9 de vie. L’objectif du rassemblement des patients et des familles (PFG) est de r\u00e9unir les patients internationaux et les membres de leur famille, ainsi que d’am\u00e9liorer leurs connaissances et leur compr\u00e9hension de la maladie. Erdheim-Chester la maladie. <\/p>\n

Le PFG offre aux participants un lieu de rencontre et une occasion de poser leurs questions et de faire part de leurs pr\u00e9occupations \u00e0 un groupe international de professionnels de la sant\u00e9 qui ont l’exp\u00e9rience de la prise en charge des patients du site ECD et qui effectuent des recherches dans ce domaine. Les informations partag\u00e9es peuvent aider un patient \u00e0 en savoir rapidement plus sur ECD et sur les options de traitement possibles, ainsi qu’\u00e0 prendre connaissance des derniers r\u00e9sultats de la recherche. <\/p>\n

Les vid\u00e9os et pr\u00e9sentations des ann\u00e9es pr\u00e9c\u00e9dentes vous permettront d’en savoir plus sur cet \u00e9v\u00e9nement. Vous trouverez ci-dessous la liste de ces vid\u00e9os et pr\u00e9sentations et n’h\u00e9sitez pas \u00e0 nous contacter si vous avez des questions. (Toutes les vid\u00e9os de ECDGA sont \u00e9galement disponibles sur notre cha\u00eene YouTube<\/a>). <\/p>\n

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[et_pb_dmb_breadcrumbs _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb body_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb body_font_size=\u00a0\u00bb12px\u00a0\u00bb link_text_color=\u00a0\u00bb#35A4BB\u00a0\u00bb custom_margin=\u00a0\u00bb||5px||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb body_font_size_tablet=\u00a0\u00bb12px\u00a0\u00bb body_font_size_phone=\u00a0\u00bb10px\u00a0\u00bb body_font_size_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_dmb_breadcrumbs]Histoire annuelle du patient et de sa famille Une partie de la mission de l’Alliance mondiale ECD est d’\u00e9duquer […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-50747","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/50747","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=50747"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/50747\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=50747"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}