{"id":49890,"date":"2023-01-18T13:33:34","date_gmt":"2023-01-18T19:33:34","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/prix-communautaires\/"},"modified":"2026-03-24T08:41:47","modified_gmt":"2026-03-24T13:41:47","slug":"prix-communautaires","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/fr\/prix-communautaires\/","title":{"rendered":"Prix communautaires"},"content":{"rendered":"

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Prix et nominations de l’ECDGA<\/strong><\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb0px||||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]Chaque ann\u00e9e, l’Alliance mondiale pour la maladie d’Erdheim-Chester (ECDGA) rend hommage aux personnes et aux organisations qui ont eu un impact significatif sur la communaut\u00e9 mondiale de la maladie d’Erdheim-Chester. \u00c0 travers une s\u00e9rie de cinq prix uniques, nous reconnaissons les contributions exceptionnelles dans les domaines de la science, de la d\u00e9fense des droits, de la collaboration et du service. Ces prix sont d\u00e9cern\u00e9s lors de notre conf\u00e9rence annuelle et nous encourageons les patients, les soignants, les cliniciens et les sympathisants du monde entier \u00e0 proposer des candidatures.[\/et_pb_text][et_pb_button button_url=\u00a0\u00bb#past-awards\u00a0\u00bb button_text=\u00a0\u00bbVoir les laur\u00e9ats pr\u00e9c\u00e9dents\u00a0\u00bb button_alignment=\u00a0\u00bbleft\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||13px|||\u00a0\u00bb custom_padding=\u00a0\u00bb10px||10px||true|false\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb0px||0px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Aper\u00e7u des prix ECDGA<\/strong><\/h2>\n

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Prix de sensibilisation \u00e0 la m\u00e9moire de Mark Heaney<\/h3>\n

Ce prix est nomm\u00e9 en l’honneur du regrett\u00e9 Dr Mark Heaney, un m\u00e9decin, chercheur, \u00e9ducateur et d\u00e9fenseur brillant. Le prix r\u00e9compense une personne, souvent un professionnel de sant\u00e9, qui a eu un impact significatif dans la sensibilisation \u00e0 la maladie d’Erdheim-Chester (ECD) et aux troubles histiocytaires de l’adulte. La sensibilisation au sein de la communaut\u00e9 m\u00e9dicale conduit \u00e0 des diagnostics plus pr\u00e9coces, \u00e0 moins de souffrance et \u00e0 de meilleurs r\u00e9sultats pour les patients. Ce prix r\u00e9compense ceux qui contribuent \u00e0 faire de cela une r\u00e9alit\u00e9 gr\u00e2ce \u00e0 la science, \u00e0 l’\u00e9ducation et au plaidoyer pour am\u00e9liorer directement les soins aux patients.[\/et_pb_text][et_pb_button button_url=\u00a0\u00bbhttps:\/\/ecdga.questionpro.com\/2025-ECDGA-Award-Nomination\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb button_text=\u00a0\u00bbProposez une personne pour le prix Mark Heaney \u00a0\u00bb button_alignment=\u00a0\u00bbleft\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||13px|||\u00a0\u00bb custom_padding=\u00a0\u00bb10px||10px||true|false\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_button][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2023\/01\/Heaney-Mark.png\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb border_width_top=\u00a0\u00bb1px\u00a0\u00bb border_color_top=\u00a0\u00bb#e8e8e8″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Prix du champion communautaire<\/h3>\n

Ce prix r\u00e9compense un patient, un soignant, un b\u00e9n\u00e9vole ou un d\u00e9fenseur qui fait preuve d’une compassion, d’une r\u00e9silience et d’un engagement extraordinaires envers la communaut\u00e9 ECD. Les champions de la communaut\u00e9 sont des personnes qui renforcent le r\u00e9seau mondial par le biais du soutien des pairs, de la sensibilisation, de la d\u00e9fense des int\u00e9r\u00eats ou de l’action de proximit\u00e9.[\/et_pb_text][et_pb_button button_url=\u00a0\u00bbhttps:\/\/ecdga.questionpro.com\/2025-ECDGA-Award-Nomination\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb button_text=\u00a0\u00bbProposez une personne pour le prix du champion de la Communaut\u00e9 \u00a0\u00bb button_alignment=\u00a0\u00bbleft\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_margin=\u00a0\u00bb||13px|||\u00a0\u00bb custom_padding=\u00a0\u00bb10px||10px||true|false\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb border_width_top=\u00a0\u00bb1px\u00a0\u00bb border_color_top=\u00a0\u00bb#e8e8e8″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Prix de la pr\u00e9sentation d’un r\u00e9sum\u00e9 par un \u00e9tudiant<\/h3>\n

D\u00e9cern\u00e9 \u00e0 un \u00e9tudiant ou \u00e0 un chercheur en d\u00e9but de carri\u00e8re dont le r\u00e9sum\u00e9 est accept\u00e9 pour une pr\u00e9sentation au symposium m\u00e9dical de l’ECDGA, ce prix r\u00e9compense un travail scientifique exceptionnel li\u00e9 \u00e0 la maladie d’Erdheim-Chester ou aux troubles histiocytaires. Le laur\u00e9at est s\u00e9lectionn\u00e9 par un comit\u00e9 de professionnels de la sant\u00e9 sur la base de la qualit\u00e9 scientifique du r\u00e9sum\u00e9 et de l’excellence de la pr\u00e9sentation faite lors du symposium. <\/p>\n

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Prix de l’h\u00f4te<\/h3>\n

Chaque ann\u00e9e, le rassemblement annuel des patients et des familles et le symposium m\u00e9dical de l’ECDGA sont rendus possibles gr\u00e2ce au soutien d\u00e9sint\u00e9ress\u00e9 d’un centre de soins local et du professionnel m\u00e9dical qui se porte volontaire pour co-animer la conf\u00e9rence. Le prix de l’h\u00f4te est d\u00e9cern\u00e9 \u00e0 l’h\u00f4te en reconnaissance de ses efforts et de son engagement exceptionnels dans la planification, l’organisation et l’ex\u00e9cution d’un \u00e9v\u00e9nement r\u00e9ussi qui rassemble la communaut\u00e9.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb border_width_top=\u00a0\u00bb1px\u00a0\u00bb border_color_top=\u00a0\u00bb#e8e8e8″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Prix de la r\u00e9ussite exceptionnelle<\/h3>\n

Ce prix rare et prestigieux r\u00e9compense une personne ou une organisation dont les contributions exceptionnelles ont fait progresser de mani\u00e8re significative la mission de l’ECDGA en mati\u00e8re de sensibilisation, de soutien, d’\u00e9ducation et de recherche. Contrairement aux autres prix, le prix pour r\u00e9alisations exceptionnelles n’est pas d\u00e9cern\u00e9 chaque ann\u00e9e, mais \u00e0 la discr\u00e9tion du conseil d’administration de l’ECDGA lorsqu’un impact vraiment extraordinaire est reconnu.[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#35A4BB\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb0px||0px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_layout=\u00a0\u00bbdark\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Comment proposer une candidature<\/strong><\/h2>\n

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Les nominations pour le prix Mark Heaney et le prix du champion de la communaut\u00e9 sont accept\u00e9es tout au long de l’ann\u00e9e. Vous pouvez soumettre une nomination en remplissant le formulaire en ligne accessible \u00e0 partir de cette page. <\/p>\n

Pour d\u00e9signer une personne, il vous sera demand\u00e9 de fournir les informations suivantes :<\/p>\n

    \n
  • Le nom et les coordonn\u00e9es du candidat (s’ils sont connus),<\/li>\n
  • La cat\u00e9gorie de prix,<\/li>\n
  • Une br\u00e8ve description de leur contribution et les raisons pour lesquelles ils m\u00e9ritent d’\u00eatre reconnus.<\/li>\n<\/ul>\n

    Nous vous encourageons \u00e0 fournir des documents compl\u00e9mentaires tels que des histoires, des photos ou des liens.<\/p>\n

    Les finalistes sont s\u00e9lectionn\u00e9s par un comit\u00e9 de b\u00e9n\u00e9voles et examin\u00e9s par le conseil d’administration de l’ECDGA. Les laur\u00e9ats sont annonc\u00e9s et honor\u00e9s lors de la conf\u00e9rence internationale annuelle de l’ECDGA. <\/p>\n

    C\u00e9l\u00e9brons les personnes qui font la diff\u00e9rence – ensemble, nous rendons hommage \u00e0 ceux qui contribuent \u00e0 faire avancer notre mission.<\/p>\n

    [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ module_id=\u00a0\u00bbprix du pass\u00e9\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

    R\u00e9compenses pass\u00e9es<\/strong><\/h2>\n

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    Le site ECDGA d\u00e9cerne des prix communautaires pour r\u00e9compenser les personnes de la communaut\u00e9 qui ont eu un impact durable sur la communaut\u00e9 ECD. Ces prix et leurs anciens r\u00e9cipiendaires sont les suivants <\/p>\n

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    Prix et nominations de l’ECDGAChaque ann\u00e9e, l’Alliance mondiale pour la maladie d’Erdheim-Chester (ECDGA) rend hommage aux personnes et aux organisations qui ont eu un impact significatif sur la communaut\u00e9 mondiale […]<\/p>\n","protected":false},"author":8,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-49890","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/49890","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/users\/8"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/comments?post=49890"}],"version-history":[{"count":3,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/49890\/revisions"}],"predecessor-version":[{"id":121889,"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/pages\/49890\/revisions\/121889"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/fr\/wp-json\/wp\/v2\/media?parent=49890"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}