{"id":24030,"date":"2014-11-19T08:51:39","date_gmt":"2014-11-19T14:51:39","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/accueil\/"},"modified":"2026-06-15T16:14:02","modified_gmt":"2026-06-15T21:14:02","slug":"accueil","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/fr\/","title":{"rendered":"Accueil"},"content":{"rendered":"

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Du 1er juin au 30 juin 2026<\/strong><\/p>\n

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Faites la diff\u00e9rence !<\/p>\n

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Se rassembler en tant que communaut\u00e9.<\/p>\n

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ECD Alliance mondiale – Apportez votre soutien !<\/p>\n

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Rejoignez le mouvement et faites avancer les choses.<\/p>\n

[\/et_pb_slide][et_pb_slide heading=\u00a0\u00bb@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9tZXRhX2tleSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IkxlcyBzb2lucyBzb250IGRpc3BvbmlibGVzIiwiYWZ0ZXIiOiIiLCJtZXRhX2tleSI6IiIsImVuYWJsZV9odG1sIjoib2ZmIn19@\u00a0\u00bb button_text=\u00a0\u00bbTrouver un centre de soins\u00a0\u00bb button_link=\u00a0\u00bb@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjExMjgifX0=@\u00a0\u00bb alignment=\u00a0\u00bbbottom\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _dynamic_attributes=\u00a0\u00bbheading,button_link,link_option_url\u00a0\u00bb _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_enable_color=\u00a0\u00bboff\u00a0\u00bb use_background_color_gradient=\u00a0\u00bbon\u00a0\u00bb background_color_gradient_stops=\u00a0\u00bbrgba(255,255,255,0.82) 65%|rgba(53,164,187,0.6) 100%\u00a0\u00bb background_color_gradient_overlays_image=\u00a0\u00bbon\u00a0\u00bb background_image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/01\/shutterstock_2415509297-scaled.jpg\u00a0\u00bb background_enable_image=\u00a0\u00bbon\u00a0\u00bb link_option_url=\u00a0\u00bb@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjExMjgifX0=@\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb sticky_transition=\u00a0\u00bbon\u00a0\u00bb]<\/p>\n

En savoir plus sur les centres de soins<\/p>\n

[\/et_pb_slide][\/et_pb_fullwidth_slider][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ disabled_on=\u00a0\u00bboff|on|on\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#0a1640″ custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb0px||0px||true|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_button button_url=\u00a0\u00bbhttps:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance\u00a0\u00bb url_new_window=\u00a0\u00bbon\u00a0\u00bb button_text=\u00a0\u00bbFaire un don\u00a0\u00bb disabled_on=\u00a0\u00bboff|on|on\u00a0\u00bb module_class=\u00a0\u00bbfull-button\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_button=\u00a0\u00bbon\u00a0\u00bb button_text_size=\u00a0\u00bb16px\u00a0\u00bb button_border_radius=\u00a0\u00bb3px\u00a0\u00bb button_font=\u00a0\u00bb|||on|||||\u00a0\u00bb button_use_icon=\u00a0\u00bboff\u00a0\u00bb custom_padding=\u00a0\u00bb12px||12px||true|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1″ module_class=\u00a0\u00bbhome-events\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#0a1640″ custom_padding=\u00a0\u00bb0px||0px||true|false\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row column_structure=\u00a0\u00bb1_2,1_2″ use_custom_gutter=\u00a0\u00bbon\u00a0\u00bb gutter_width=\u00a0\u00bb2″ make_equal=\u00a0\u00bbon\u00a0\u00bb custom_padding_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb width=\u00a0\u00bb88%\u00a0\u00bb width_tablet=\u00a0\u00bb100%\u00a0\u00bb width_phone=\u00a0\u00bb100%\u00a0\u00bb width_last_edited=\u00a0\u00bboff|desktop\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb0px||160px||false|false\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb0px||0px||true|false\u00a0\u00bb custom_padding_phone=\u00a0\u00bb0px||0px||true|false\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2″ _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb custom_padding=\u00a0\u00bb50px||120px||false|false\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb||0px||false|false\u00a0\u00bb custom_padding_phone=\u00a0\u00bb50px||0px||false|false\u00a0\u00bb custom_padding_last_edited=\u00a0\u00bbon|tablet\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.0″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_2_font=\u00a0\u00bb|600|||||||\u00a0\u00bb header_2_font_size=\u00a0\u00bb50px\u00a0\u00bb background_layout=\u00a0\u00bbdark\u00a0\u00bb custom_margin=\u00a0\u00bb||10px||false|false\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb50px\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb36px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Ev\u00e9nements<\/span><\/h2>\n

[\/et_pb_text][dgcm_cptgrid post_type=\u00a0\u00bbtribe_events\u00a0\u00bb posts_number=\u00a0\u00bb2″ post_display=\u00a0\u00bbby_tax\u00a0\u00bb tax_for_tribe_events=\u00a0\u00bbtribe_events_cat\u00a0\u00bb tribe_events_terms_tribe_events_cat=\u00a0\u00bb3439″ column=\u00a0\u00bb2″ column_tablet=\u00a0\u00bb2″ column_phone=\u00a0\u00bb1″ column_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][dgcm_cptitem type=\u00a0\u00bbimage\u00a0\u00bb image_size=\u00a0\u00bboriginal\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb border_radii=\u00a0\u00bbon|8px|8px|8px|8px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/dgcm_cptitem][dgcm_cptitem type=\u00a0\u00bbtitle\u00a0\u00bb title_tag=\u00a0\u00bbh3″ _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb body_font=\u00a0\u00bb|600|||||||\u00a0\u00bb body_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb body_font_size=\u00a0\u00bb18px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/dgcm_cptitem][dgcm_cptitem type=\u00a0\u00bbcontent\u00a0\u00bb use_post_excrpt=\u00a0\u00bbon\u00a0\u00bb excerpt_length=\u00a0\u00bb400″ _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb body_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/dgcm_cptitem][dgcm_cptitem type=\u00a0\u00bbbutton\u00a0\u00bb button_padding=\u00a0\u00bb8px||8px||true|false\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb body_text_align=\u00a0\u00bbcenter\u00a0\u00bb body_text_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb background_color=\u00a0\u00bb#35A4BB\u00a0\u00bb background_enable_color=\u00a0\u00bbon\u00a0\u00bb border_radii=\u00a0\u00bbon|2px|2px|2px|2px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/dgcm_cptitem][\/dgcm_cptgrid][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_2″ disabled_on=\u00a0\u00bboff|off|off\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_enable_image=\u00a0\u00bboff\u00a0\u00bb background_size=\u00a0\u00bbcustom\u00a0\u00bb background_image_width=\u00a0\u00bb100%\u00a0\u00bb background_position=\u00a0\u00bbtop_right\u00a0\u00bb custom_padding=\u00a0\u00bb50px||||false|false\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb0px||50px||false|false\u00a0\u00bb custom_padding_phone=\u00a0\u00bb0px||50px||false|false\u00a0\u00bb custom_padding_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_2_font=\u00a0\u00bb|600|||||||\u00a0\u00bb header_2_font_size=\u00a0\u00bb50px\u00a0\u00bb background_layout=\u00a0\u00bbdark\u00a0\u00bb custom_margin=\u00a0\u00bb||10px||false|false\u00a0\u00bb custom_padding=\u00a0\u00bb||||false|false\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb50px\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb36px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Actualit\u00e9s<\/span><\/h2>\n

[\/et_pb_text][dgcm_cptgrid post_type=\u00a0\u00bbpost\u00a0\u00bb posts_number=\u00a0\u00bb2″ post_display=\u00a0\u00bbby_tax\u00a0\u00bb tax_for_post=\u00a0\u00bbcategory\u00a0\u00bb post_terms_category=\u00a0\u00bb5573″ column=\u00a0\u00bb2″ column_tablet=\u00a0\u00bb2″ column_phone=\u00a0\u00bb1″ column_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][dgcm_cptitem type=\u00a0\u00bbimage\u00a0\u00bb image_size=\u00a0\u00bboriginal\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb border_radii=\u00a0\u00bbon|8px|8px|8px|8px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/dgcm_cptitem][dgcm_cptitem type=\u00a0\u00bbtitle\u00a0\u00bb title_tag=\u00a0\u00bbh3″ _builder_version=\u00a0\u00bb4.27.5″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb body_font=\u00a0\u00bb|600|||||||\u00a0\u00bb 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global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_3″ module_class=\u00a0\u00bbblurb-grids\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_enable_color=\u00a0\u00bboff\u00a0\u00bb custom_padding=\u00a0\u00bb||20px||false|false\u00a0\u00bb border_radii=\u00a0\u00bbon|6px|6px|6px|6px\u00a0\u00bb border_width_all=\u00a0\u00bb6px\u00a0\u00bb border_color_all=\u00a0\u00bb#FFFFFF\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_blurb title=\u00a0\u00bbInformations pour les patients\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Patient-Information-Erdheim-Chester-Global-Alliance.jpg\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_level=\u00a0\u00bbh3″ header_line_height=\u00a0\u00bb2em\u00a0\u00bb background_color=\u00a0\u00bb#35A4BB\u00a0\u00bb background_enable_image=\u00a0\u00bboff\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb background_layout=\u00a0\u00bbdark\u00a0\u00bb custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbECD Vue d'ensemble\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/a-propos-de-ecd\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-31.png\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/a-propos-de-ecd\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbCentres de soins\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/centres-de-soins\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-30.png\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/centres-de-soins\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbRessources pour les patients\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/ressources\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-29.png\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/ressources\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbDemander une brochure\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/demandez-une-brochure\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-32.png\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.6″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/demandez-une-brochure\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb min_height=\u00a0\u00bb245px\u00a0\u00bb custom_padding=\u00a0\u00bb20px|10px||10px|false|true\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Notre objectif est de donner aux personnes touch\u00e9es par la maladie les moyens d’agir en leur apportant des connaissances et un soutien. Erdheim-Chester maladie en leur apportant des connaissances et un soutien. Vous trouverez ici des informations fiables sur ECD, les options de traitement, la gestion des sympt\u00f4mes et la mise en relation avec des sp\u00e9cialistes. Explorez les ressources con\u00e7ues pour aider les patients et les familles \u00e0 cheminer avec confiance et espoir. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3″ module_class=\u00a0\u00bbblurb-grids\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_enable_color=\u00a0\u00bboff\u00a0\u00bb custom_padding=\u00a0\u00bb||20px||false|false\u00a0\u00bb border_radii=\u00a0\u00bbon|6px|6px|6px|6px\u00a0\u00bb border_width_all=\u00a0\u00bb6px\u00a0\u00bb border_color_all=\u00a0\u00bb#FFFFFF\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_blurb title=\u00a0\u00bbInformations sur la famille\/les soignants\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/soutien-aux-aidants\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_pexels-kampus-7551607-1.jpg\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_level=\u00a0\u00bbh3″ header_line_height=\u00a0\u00bb2em\u00a0\u00bb background_color=\u00a0\u00bb#35A4BB\u00a0\u00bb background_enable_image=\u00a0\u00bboff\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb background_layout=\u00a0\u00bbdark\u00a0\u00bb custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/soutien-aux-aidants\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbECD Vue d'ensemble\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/a-propos-de-ecd\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-31.png\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/a-propos-de-ecd\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbRessources pour les familles et les aidants\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/ressources-pour-les-soignants\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-25-1.svg\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/ressources-pour-les-soignants\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbConnexion des aidants\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/contact-soignant\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-6.svg\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/contact-soignant\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbDemander une brochure\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/demandez-une-brochure\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-32.png\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/demandez-une-brochure\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb min_height=\u00a0\u00bb245px\u00a0\u00bb custom_padding=\u00a0\u00bb20px|10px||10px|false|true\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Prendre soin d’une personne atteinte de Erdheim-Chester peut \u00eatre difficile, mais vous n’\u00eates pas seul. Nos ressources sont con\u00e7ues pour fournir des conseils, un soutien \u00e9motionnel et des outils pratiques afin d’aider les aidants \u00e0 traverser cette \u00e9preuve. Renseignez-vous sur le site ECD, entrez en contact avec des r\u00e9seaux de soutien et d\u00e9couvrez des strat\u00e9gies pour prendre soin de votre proche tout en prenant soin de vous. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3″ module_class=\u00a0\u00bbblurb-grids\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_enable_color=\u00a0\u00bboff\u00a0\u00bb custom_padding=\u00a0\u00bb||20px||false|false\u00a0\u00bb border_radii=\u00a0\u00bbon|6px|6px|6px|6px\u00a0\u00bb border_width_all=\u00a0\u00bb6px\u00a0\u00bb border_color_all=\u00a0\u00bb#FFFFFF\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3″ global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_blurb title=\u00a0\u00bbProfessionnels de la sant\u00e9\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/ressources-medicales\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Medical-Professionals-Erdheim-Chester-Disease-Global-Alliance.jpg\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_level=\u00a0\u00bbh3″ header_line_height=\u00a0\u00bb2em\u00a0\u00bb background_color=\u00a0\u00bb#35A4BB\u00a0\u00bb background_enable_image=\u00a0\u00bboff\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb background_layout=\u00a0\u00bbdark\u00a0\u00bb custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/ressources-medicales\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbECD Vue d'ensemble\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/a-propos-de-ecd\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-31.png\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/a-propos-de-ecd\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbCentres de soins\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/centres-de-soins\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-30.png\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/centres-de-soins\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbRessources m\u00e9dicales\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/ressources-medicales\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-2.svg\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/ressources-medicales\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bb\u00c9tudes et essais\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/etudes-et-essais\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-18-1.svg\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb 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Trouvez des outils et des informations pour soutenir votre travail avec les patients du site ECD. Acc\u00e9dez \u00e0 des lignes directrices cliniques actualis\u00e9es, \u00e0 des informations sur les sp\u00e9cialit\u00e9s m\u00e9dicales et \u00e0 des possibilit\u00e9s de financement de la recherche. Nos ressources sont con\u00e7ues pour permettre aux prestataires de soins de sant\u00e9 de fournir les meilleurs soins possibles et d’am\u00e9liorer les r\u00e9sultats pour les personnes vivant avec la maladie. Erdheim-Chester maladie. <\/p>\n

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D\u00e9couvrez les possibilit\u00e9s de financement pour soutenir la recherche et les initiatives visant \u00e0 en savoir plus sur les maladies infectieuses et \u00e0 am\u00e9liorer les r\u00e9sultats pour les patients et les soignants. Erdheim-Chester la maladie afin d’am\u00e9liorer les r\u00e9sultats pour les patients et les soignants. Explorez les \u00e9tudes cliniques en cours pour les patients du site ECD. <\/p>\n

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header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/chats-communautaires\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bb\u00c9v\u00e9nements communautaires\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/community-events\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-11-1.svg\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/community-events\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbWebinars Connect\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/webinaires\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-15-1.svg\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/webinaires\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbConnexion des aidants\u00a0\u00bb url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/contact-soignant\/\u00a0\u00bb image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-6.svg\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/contact-soignant\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb min_height=\u00a0\u00bb345px\u00a0\u00bb custom_padding=\u00a0\u00bb20px|10px||10px|false|true\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n

Ensemble, nous avons un impact r\u00e9el dans la lutte contre la maladie. Erdheim-Chester la maladie. D\u00e9couvrez les r\u00e9alisations rendues possibles gr\u00e2ce au d\u00e9vouement et \u00e0 la g\u00e9n\u00e9rosit\u00e9 de notre communaut\u00e9, qu’il s’agisse de faire avancer la recherche, d’am\u00e9liorer les soins aux patients ou de favoriser les relations et le soutien \u00e0 l’\u00e9chelle mondiale. Voyez comment votre engagement entra\u00eene des changements significatifs et inspire de l’espoir aux personnes touch\u00e9es par ECD. <\/p>\n

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image=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-14.svg\u00a0\u00bb image_icon_width=\u00a0\u00bb50px\u00a0\u00bb content_max_width=\u00a0\u00bb100%\u00a0\u00bb module_class=\u00a0\u00bbsmall-blurb\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4″ _module_preset=\u00a0\u00bbdefault\u00a0\u00bb header_font=\u00a0\u00bb|300|||||||\u00a0\u00bb header_font_size=\u00a0\u00bb14px\u00a0\u00bb background_color=\u00a0\u00bb#F2F2F2″ image_icon_custom_margin=\u00a0\u00bb||0px||false|false\u00a0\u00bb image_icon_custom_padding=\u00a0\u00bb||0px||false|false\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb20px||20px||true|false\u00a0\u00bb link_option_url=\u00a0\u00bbhttps:\/\/www.erdheim-chester.org\/fr\/prix-communautaires\/\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_blurb][et_pb_blurb title=\u00a0\u00bbR\u00e9compenses pass\u00e9es\u00a0\u00bb 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L’Alliance mondiale ECD finance la recherche sur la maladie Erdheim-Chester recherche sur les maladies depuis qu’elle a obtenu le statut 501(c)3 en 2010 (avec effet r\u00e9troactif \u00e0 2009). L’organisation attribue g\u00e9n\u00e9ralement chaque ann\u00e9e une bourse de jeune chercheur d’un montant de 50 000 \u00e0 60 000 dollars. Dans la mesure du possible, l’organisation finance \u00e9galement des projets de plus grande envergure tels que la cr\u00e9ation du registre des patients ECD, des \u00e9tudes sur la survie et une enqu\u00eate sur l’origine de ECD. <\/p>\n

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Annonces<\/span><\/h2>\n

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Un r\u00e9seau de centres de soins ECD est disponible pour aider les patients \u00e0 trouver des m\u00e9decins comp\u00e9tents afin de confirmer un diagnostic et de fournir des traitements ainsi que des soins continus. Ces institutions s\u2019engagent \u00e0 mettre \u00e0 disposition une \u00e9quipe de sp\u00e9cialistes pour offrir les meilleurs soins aux patients atteints d\u2019ECD. De plus, des essais\/\u00e9tudes ECD en cours acceptent actuellement des patients ECD. Contactez notre accompagnateur de patients<\/a> pour plus d’informations. <\/p>\n

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Prenez contact avec nous<\/span><\/h2>\n

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