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Make a Positive Difference \u2013 Volunteer!<\/p>\n
Thank you for considering lending your skills to the work of the organization. The ECDGA members are a community of people that come together to overcome ECD and adult histiocytic disorders. Volunteers help make the day-to-day work possible! We hope you will want to become involved.<\/p>\n
\u201cYou can say I have a very personal agenda towards [helping the ECDGA]. I see what the organization does for an orphan disease. Because of ECDGA, today I know what future treatment could be available for individuals like myself. I didn\u2019t just want to be a patient in the books, but a contributor to the greater good of what ECDGA stands for.\u201d<\/em> – Mohammad Chowdhury, Patient, Board of Directors, Donor, Volunteer<\/p>\n