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X-WR-CALNAME:Erdheim-Chester Disease Global Alliance
X-ORIGINAL-URL:https://www.erdheim-chester.org
X-WR-CALDESC:Events for Erdheim-Chester Disease Global Alliance
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210624T120000
DTEND;TZID=America/Chicago:20210624T130000
DTSTAMP:20260604T225253
CREATED:20250826T130147Z
LAST-MODIFIED:20250910T094751Z
UID:10000751-1624536000-1624539600@www.erdheim-chester.org
SUMMARY:Endocrine Conditions in Erdheim-Chester Disease
DESCRIPTION:This webinar\, co-hosted by the Histiocytosis Association and Erdheim-Chester Disease Global Alliance focused on ECD and covers endocrine conditions and their management across all histiocytic disorders.\nRecorded March 2021
URL:https://www.erdheim-chester.org/event/endocrine-conditions-in-erdheim-chester-disease/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Endocrine-Conditions-in-Erdheim-Chester-Disease.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210624T120000
DTEND;TZID=America/Chicago:20210624T130000
DTSTAMP:20260604T225253
CREATED:20250826T130035Z
LAST-MODIFIED:20250910T094317Z
UID:10000739-1624536000-1624539600@www.erdheim-chester.org
SUMMARY:Histio Patient Needs: A Focus on the Eyes and Vision
DESCRIPTION:In this webinar\, the doctors at Memorial Sloan Kettering Cancer Center (MSK) help further your understanding of how current eye involvement may affect daily life and how to obtain better outcomes and results. This will also be of interest to those patients that do not have any current eye involvement\, but their upcoming treatments may cause eye concerns.\nRecorded February 2021
URL:https://www.erdheim-chester.org/event/histio-patient-needs-a-focus-on-the-eyes-and-vision/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Histio-Patient-Needs-A-Focus-on-the-Eyes-and-Vision.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210525
DTEND;VALUE=DATE:20210527
DTSTAMP:20260604T225253
CREATED:20210402T041036Z
LAST-MODIFIED:20250929T234414Z
UID:10000028-1621983600-1622069999@www.erdheim-chester.org
SUMMARY:8th Annual ECD Medical Symposium
DESCRIPTION:2021 Annual International ECD Medical Symposium\nVirtual Symposium\nThank you for participating in this year’s virtual symposium! Provided below is a listing for this meeting\, including the agenda\, a printable program\, speaker bios\, abstracts\, and presentation slides. Following the meeting\, a recording will be added here and emailed to attendees. 2021 Virtual Event Agenda Medical Symposium Program 2021 ECD Virtual Medical Symposium Recording
URL:https://www.erdheim-chester.org/event/8th-annual-ecd-medical-symposium/
CATEGORIES:ECD Medical Symposium
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2021/04/8th-medical-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20200701T120000
DTEND;TZID=America/Chicago:20200701T130000
DTSTAMP:20260604T225253
CREATED:20250826T125837Z
LAST-MODIFIED:20250910T093813Z
UID:10000715-1593604800-1593608400@www.erdheim-chester.org
SUMMARY:Using ECD Consensus Recommendations: Advocating for your health
DESCRIPTION:An educational webinar was held to explain the newest Erdheim-Chester Disease (ECD) consensus document and learn how to use it for care and payer support.  Questions answered following the meeting are posted here.\nRecorded June 2020
URL:https://www.erdheim-chester.org/event/using-ecd-consensus-recommendations-advocating-for-your-health/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Using-ECD-Consensus-Recommendations-Advocating-for-your-health.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20190111T070000
DTEND;TZID=America/Chicago:20190112T160000
DTSTAMP:20260604T225253
CREATED:20190112T044502Z
LAST-MODIFIED:20250930T032729Z
UID:10000020-1547190000-1547308800@www.erdheim-chester.org
SUMMARY:7th International ECD Patient & Family Gathering
DESCRIPTION:Location: Milan\, Italy
URL:https://www.erdheim-chester.org/event/7th-international-ecd-patient-family-gathering/
CATEGORIES:ECD Patient & Family Gathering
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2019/01/7th-annual-ECD-patient-and-family-gathering.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190110
DTEND;VALUE=DATE:20190112
DTSTAMP:20260604T225253
CREATED:20190402T040910Z
LAST-MODIFIED:20250929T232638Z
UID:10000027-1547161200-1547247599@www.erdheim-chester.org
SUMMARY:7th Annual ECD Medical Symposium
DESCRIPTION:Location: Milan\, Italy
URL:https://www.erdheim-chester.org/event/7th-annual-ecd-medical-symposium/
CATEGORIES:ECD Medical Symposium
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/7th-annual-ECD-medical-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180515
DTEND;VALUE=DATE:20180517
DTSTAMP:20260604T225253
CREATED:20180517T031728Z
LAST-MODIFIED:20250930T032856Z
UID:10000019-1526425200-1526511599@www.erdheim-chester.org
SUMMARY:6th Annual International ECD Patient & Family Gathering
DESCRIPTION:Location: Orlando\, FL
URL:https://www.erdheim-chester.org/event/6th-annual-international-ecd-patient-family-gathering/
CATEGORIES:ECD Patient & Family Gathering
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/6th-annual-ECD-patient-family-gathering.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180514
DTEND;VALUE=DATE:20180516
DTSTAMP:20260604T225253
CREATED:20180402T040640Z
LAST-MODIFIED:20250929T231223Z
UID:10000026-1526338800-1526425199@www.erdheim-chester.org
SUMMARY:6th Annual ECD Medical Symposium
DESCRIPTION:Location: Orlando\, FL
URL:https://www.erdheim-chester.org/event/6th-annual-ecd-medical-symposium/
CATEGORIES:ECD Medical Symposium
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/6th-annual-ECD-medical-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20170426
DTEND;VALUE=DATE:20170428
DTSTAMP:20260604T225253
CREATED:20170428T031317Z
LAST-MODIFIED:20250930T032832Z
UID:10000018-1493247600-1493333999@www.erdheim-chester.org
SUMMARY:5th Annual International ECD Patient & Family Gathering
DESCRIPTION:Location: New York\, NY
URL:https://www.erdheim-chester.org/event/5th-annual-international-ecd-patient-family-gathering/
CATEGORIES:ECD Patient & Family Gathering
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/5th-annual-ECD-patient-family-gathering.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20170425T070000
DTEND;TZID=America/Chicago:20170426T160000
DTSTAMP:20260604T225253
CREATED:20170402T040456Z
LAST-MODIFIED:20250924T154928Z
UID:10000025-1493103600-1493222400@www.erdheim-chester.org
SUMMARY:5th Annual ECD Medical Symposium
DESCRIPTION:Location: New York\, NY
URL:https://www.erdheim-chester.org/event/5th-annual-ecd-medical-symposium/
CATEGORIES:ECD Medical Symposium
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/5th-annual-ECD-medical-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20160315
DTEND;VALUE=DATE:20160317
DTSTAMP:20260604T225253
CREATED:20160402T040314Z
LAST-MODIFIED:20250929T231441Z
UID:10000024-1458082800-1458169199@www.erdheim-chester.org
SUMMARY:4th Annual ECD Medical Symposium
DESCRIPTION:Location: Paris\, France
URL:https://www.erdheim-chester.org/event/4th-annual-ecd-medical-symposium/
CATEGORIES:ECD Medical Symposium
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/4th-annual-ECD-medical-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20160315
DTEND;VALUE=DATE:20160317
DTSTAMP:20260604T225253
CREATED:20160317T031203Z
LAST-MODIFIED:20250930T002316Z
UID:10000017-1458082800-1458169199@www.erdheim-chester.org
SUMMARY:4th International ECD Patient & Family Gathering
DESCRIPTION:Location: Paris\, France
URL:https://www.erdheim-chester.org/event/4th-international-ecd-patient-family-gathering/
CATEGORIES:ECD Patient & Family Gathering
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/4th-intl-ECD-family-gathering.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20150417
DTEND;VALUE=DATE:20150419
DTSTAMP:20260604T225253
CREATED:20150402T040141Z
LAST-MODIFIED:20250929T231609Z
UID:10000023-1429311600-1429397999@www.erdheim-chester.org
SUMMARY:3rd Annual ECD Medical Symposium
DESCRIPTION:Location: Houston\, TX
URL:https://www.erdheim-chester.org/event/3rd-annual-ecd-medical-symposium/
CATEGORIES:ECD Medical Symposium
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/3rd-annual-medical-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20140317
DTEND;VALUE=DATE:20140319
DTSTAMP:20260604T225253
CREATED:20140402T035939Z
LAST-MODIFIED:20250929T232353Z
UID:10000022-1395097200-1395183599@www.erdheim-chester.org
SUMMARY:2nd Annual ECD Medical Symposium
DESCRIPTION:Location: Bethesda\, Maryland
URL:https://www.erdheim-chester.org/event/2nd-annual-ecd-medical-symposium/
CATEGORIES:ECD Medical Symposium
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/2nd-annual-medical-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20130530
DTEND;VALUE=DATE:20130601
DTSTAMP:20260604T225253
CREATED:20130402T035405Z
LAST-MODIFIED:20250929T232436Z
UID:10000021-1369954800-1370041199@www.erdheim-chester.org
SUMMARY:1st International ECD Medical Symposium
DESCRIPTION:Location: San Diego\, CA
URL:https://www.erdheim-chester.org/event/1st-international-ecd-medical-symposium/
CATEGORIES:ECD Medical Symposium
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Ist-Intl.-ECD-medical-symposium-1.png
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