Erdheim-Chester Disease Global Alliance

Beyond the Office Visit - Part Two: Functional Nutrition & Wellness
2022-05-05 12:00 - 13:00 (America/Chicago)
The ECD Global Alliance (ECDGA) and the Histiocytosis Association co-host Beyond the Office Visit virtual education series, Part Two: Functional Nutrition & Wellness. During this session, Certified Health Coach and Certified Functional Nutrition Practitioner, Alyssa Cabral, explained the role of functional wellness and nutrition when living with or caring for someone with histiocytosis or any rare/chronic condition.

Beyond the Office Visit: Managing the Cost of Histio Care
2022-03-01 12:00 - 13:00
Watch webinar on youtube
This is the start of the Beyond the Office Visit virtual education series co-hosted with the Histiocytosis Association. Speakers Deandre Pate and Victoria Lassen from Memorial Sloan Kettering walk through ways to manage healthcare costs, find local assistance, and improve logistical burdens while living with a histiocytosis disorder.
Recorded February 2022

2021 ECD Virtual Medical Symposium
2021-11-22 12:00 - 13:00
Watch webinar on youtube
The 8th Annual International ECD Medical Symposium was held on November 16, 2021. This virtual experience was organized in hopes that the medical community is provided the opportunity to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease and other histiocytic disorders.

Talk for adult patients with Histiocytosis and ECD. Organized by OR Association and HA.
2021-09-27 12:00 - 13:00
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Impact on adult patients with LCH and Erdheim-Chester, ongoing treatments, and studies
Dr. Gaurav Goyal, University of Alabama, Birmingham, led the educational meeting by presenting the topic of Impact on adult patients with LCH and Erdheim-Chester, ongoing treatments, and studies. The talk included descriptions of adult histiocytic disorders, common clinical features, and treatments that have been found effective. Diagnostic tips were shared to help physicians confirm an accurate diagnosis of these similar diseases.
Recorded September 2021

Erdheim-Chester disease: A review of updated guidelines in the molecular era
2021-07-20 12:00 - 13:00
In this review of the latest ECD Consensus Guidelines 2020, the presentation and discussion are tailored for the medical professional community. Please share with your colleagues or care team.
Recorded November 2020

Understanding the NCCN Clinical Practice Guidelines for Histiocytic Neoplasms
2021-06-29 12:00 - 13:00
Watch webinar on youtube
A review of the recently published National Comprehensive Cancer Network (NCCN) Guidelines® for Histiocytosis. The NCCN developed these new clinical practice guidelines to provide the latest evidence and expert consensus for diagnosing and treating the three most common forms of histiocytosis in adults: Langerhans cell histiocytosis (LCH), Erdheim-Chester disease (ECD), and Rosai-Dorfman disease.
Recorded June 2021

Endocrine Conditions in Erdheim-Chester Disease
2021-06-24 12:00 - 13:00
This webinar, co-hosted by the Histiocytosis Association and Erdheim-Chester Disease Global Alliance focused on ECD and covers endocrine conditions and their management across all histiocytic disorders.
Recorded March 2021

Histio Patient Needs: A Focus on the Eyes and Vision
2021-06-24 12:00 - 13:00
In this webinar, the doctors at Memorial Sloan Kettering Cancer Center (MSK) help further your understanding of how current eye involvement may affect daily life and how to obtain better outcomes and results. This will also be of interest to those patients that do not have any current eye involvement, but their upcoming treatments may cause eye concerns.
Recorded February 2021

8th Annual ECD Medical Symposium
2021-05-25 - 2021-05-26
2021 Annual International ECD Medical Symposium
Virtual Symposium
Thank you for participating in this year’s virtual symposium! Provided below is a listing for this meeting, including the agenda, a printable program, speaker bios, abstracts, and presentation slides. Following the meeting, a recording will be added here and emailed to attendees. 2021 Virtual Event Agenda Medical Symposium Program 2021 ECD Virtual Medical Symposium Recording

Using ECD Consensus Recommendations: Advocating for your health
2020-07-01 12:00 - 13:00
An educational webinar was held to explain the newest Erdheim-Chester Disease (ECD) consensus document and learn how to use it for care and payer support. Questions answered following the meeting are posted here.
Recorded June 2020

7th International ECD Patient & Family Gathering
2019-01-11 07:00 - 2019-01-12 16:00
Location: Milan, Italy

7th Annual ECD Medical Symposium
2019-01-10 - 2019-01-11

6th Annual International ECD Patient & Family Gathering
2018-05-15 - 2018-05-16
Location: Orlando, FL

6th Annual ECD Medical Symposium
2018-05-14 - 2018-05-15

5th Annual International ECD Patient & Family Gathering
2017-04-26 - 2017-04-27
Location: New York, NY

5th Annual ECD Medical Symposium
2017-04-25 07:00 - 2017-04-26 16:00

4th Annual ECD Medical Symposium
2016-03-15 - 2016-03-16
Location: Paris, France

4th International ECD Patient & Family Gathering
2016-03-15 - 2016-03-16

3rd Annual ECD Medical Symposium
2015-04-17 - 2015-04-18
Location: Houston, TX

2nd Annual ECD Medical Symposium
2014-03-17 - 2014-03-18
Location: Bethesda, Maryland

1st International ECD Medical Symposium
2013-05-30 - 2013-05-31
Location: San Diego, CA
