German Community Chat
2026-07-13 11:00 - 12:00 (America/Chicago)
Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.
Register Today
Please read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar.
NOTE: Check your time zone here: Time Zone Converter.
There will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.

Italian Community Chat
2026-07-14 11:00 - 12:00
Register Today
Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.
Please read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar.
NOTE: Check your time zone here: Time Zone Converter.
There will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.

12th Annual ECD Patient & Family Gathering – Glasgow, Scotland 2027
2027-08-01 - 2027-08-31
We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held in Glasgow, Scotland in August 2027. This special event will bring together patients, families, researchers, clinicians, and advocates from around the world to connect, learn, and support one another. The gathering will be held in conjunction with the Histiocyte Society meeting. Additional details, including exact dates, venue information, and registration details, will be announced soon.

12th Annual ECD Medical Symposium – Glasgow, Scotland 2027
2027-08-01 - 2027-08-31
We are excited to announce that the 12th Annual ECDGA Medical Symposium will be held in Glasgow, Scotland in August 2027. This special event will bring together researchers and clinicians from around the world to connect, learn, and support one another. The gathering will be held in conjunction with the Histiocyte Society meeting. Additional details, including exact dates, venue information, and registration details, will be announced soon.
