Erdheim-Chester Disease Global Alliance

Histio Patient Needs: A Focus on the Eyes and Vision
2021-06-24 12:00 - 13:00 (America/Chicago)
In this webinar, the doctors at Memorial Sloan Kettering Cancer Center (MSK) help further your understanding of how current eye involvement may affect daily life and how to obtain better outcomes and results. This will also be of interest to those patients that do not have any current eye involvement, but their upcoming treatments may cause eye concerns.
Recorded February 2021

8th Annual ECD Medical Symposium
2021-05-25 - 2021-05-26
2021 Annual International ECD Medical Symposium
Virtual Symposium
Thank you for participating in this year’s virtual symposium! Provided below is a listing for this meeting, including the agenda, a printable program, speaker bios, abstracts, and presentation slides. Following the meeting, a recording will be added here and emailed to attendees. 2021 Virtual Event Agenda Medical Symposium Program 2021 ECD Virtual Medical Symposium Recording

Using ECD Consensus Recommendations: Advocating for your health
2020-07-01 12:00 - 13:00
An educational webinar was held to explain the newest Erdheim-Chester Disease (ECD) consensus document and learn how to use it for care and payer support. Questions answered following the meeting are posted here.
Recorded June 2020

7th International ECD Patient & Family Gathering
2019-01-11 07:00 - 2019-01-12 16:00
Location: Milan, Italy

7th Annual ECD Medical Symposium
2019-01-10 - 2019-01-11

6th Annual International ECD Patient & Family Gathering
2018-05-15 - 2018-05-16
Location: Orlando, FL

6th Annual ECD Medical Symposium
2018-05-14 - 2018-05-15

5th Annual International ECD Patient & Family Gathering
2017-04-26 - 2017-04-27
Location: New York, NY

5th Annual ECD Medical Symposium
2017-04-25 07:00 - 2017-04-26 16:00

4th Annual ECD Medical Symposium
2016-03-15 - 2016-03-16
Location: Paris, France

4th International ECD Patient & Family Gathering
2016-03-15 - 2016-03-16

3rd Annual ECD Medical Symposium
2015-04-17 - 2015-04-18
Location: Houston, TX

2nd Annual ECD Medical Symposium
2014-03-17 - 2014-03-18
Location: Bethesda, Maryland

1st International ECD Medical Symposium
2013-05-30 - 2013-05-31
Location: San Diego, CA
