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X-WR-CALNAME:Erdheim-Chester Disease Global Alliance
X-ORIGINAL-URL:https://www.erdheim-chester.org
X-WR-CALDESC:Events for Erdheim-Chester Disease Global Alliance
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LAST-MODIFIED:20260528T141730Z
UID:10001598-1783584000-1783587600@www.erdheim-chester.org
SUMMARY:French Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/french-community-chat-5/
CATEGORIES:French Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/French-Chat.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260713T110000
DTEND;TZID=America/Chicago:20260713T120000
DTSTAMP:20260604T104900
CREATED:20260526T031328Z
LAST-MODIFIED:20260526T031328Z
UID:10001563-1783940400-1783944000@www.erdheim-chester.org
SUMMARY:German Community Chat
DESCRIPTION:Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nRegister Today \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/german-community-chat-4/
CATEGORIES:German Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/German-Chat.jpg
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260714T110000
DTEND;TZID=America/Chicago:20260714T120000
DTSTAMP:20260604T104900
CREATED:20260526T031418Z
LAST-MODIFIED:20260526T031418Z
UID:10001575-1784026800-1784030400@www.erdheim-chester.org
SUMMARY:Italian Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/italian-community-chat-4/
CATEGORIES:Italian Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Italian-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270801
DTEND;VALUE=DATE:20270901
DTSTAMP:20260604T104900
CREATED:20260519T170441Z
LAST-MODIFIED:20260531T142109Z
UID:10001490-1817078400-1819756799@www.erdheim-chester.org
SUMMARY:12th Annual ECD Patient & Family Gathering – Glasgow\, Scotland 2027
DESCRIPTION:We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held in Glasgow\, Scotland in August 2027. This special event will bring together patients\, families\, researchers\, clinicians\, and advocates from around the world to connect\, learn\, and support one another. The gathering will be held in conjunction with the Histiocyte Society meeting. Additional details\, including exact dates\, venue information\, and registration details\, will be announced soon.
URL:https://www.erdheim-chester.org/event/12th-annual-ecd-patient-family-gathering-glasgow-scotland-2027/
CATEGORIES:ECD Patient & Family Gathering,Featured
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2026/05/patients-and-families-1800-1200.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270801
DTEND;VALUE=DATE:20270901
DTSTAMP:20260604T104900
CREATED:20260519T170446Z
LAST-MODIFIED:20260531T142121Z
UID:10001491-1817078400-1819756799@www.erdheim-chester.org
SUMMARY:12th Annual ECD Medical Symposium – Glasgow\, Scotland 2027
DESCRIPTION:We are excited to announce that the 12th Annual ECDGA Medical Symposium will be held in Glasgow\, Scotland in August 2027. This special event will bring together researchers and clinicians from around the world to connect\, learn\, and support one another. The gathering will be held in conjunction with the Histiocyte Society meeting. Additional details\, including exact dates\, venue information\, and registration details\, will be announced soon.
URL:https://www.erdheim-chester.org/event/12th-annual-ecd-medical-symposium-glasgow-scotland-2027/
CATEGORIES:ECD Medical Symposium,Featured
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2026/05/medical-professionals-1800-1200.jpg
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