BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Erdheim-Chester Disease Global Alliance - ECPv6.16.3//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Erdheim-Chester Disease Global Alliance
X-ORIGINAL-URL:https://www.erdheim-chester.org
X-WR-CALDESC:Events for Erdheim-Chester Disease Global Alliance
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:America/Chicago
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20250309T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20251102T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20260308T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20261101T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20270314T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20271107T070000
END:STANDARD
BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
TZNAME:CDT
DTSTART:20280312T080000
END:DAYLIGHT
BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
DTSTART:20281105T070000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260416T110000
DTEND;TZID=America/Chicago:20260416T120000
DTSTAMP:20260604T102200
CREATED:20260406T175431Z
LAST-MODIFIED:20260406T175431Z
UID:10001394-1776337200-1776340800@www.erdheim-chester.org
SUMMARY:Canadian Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/canadian-community-chat-10/
CATEGORIES:Canadian Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/download-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260421T110000
DTEND;TZID=America/Chicago:20260421T120000
DTSTAMP:20260604T102200
CREATED:20260406T175329Z
LAST-MODIFIED:20260406T175329Z
UID:10001382-1776769200-1776772800@www.erdheim-chester.org
SUMMARY:Spanish Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/spanish-community-chat-8/
CATEGORIES:Spanish Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Spanish-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260422T220000
DTEND;TZID=America/Chicago:20260422T230000
DTSTAMP:20260604T102200
CREATED:20260406T175610Z
LAST-MODIFIED:20260406T175610Z
UID:10001416-1776895200-1776898800@www.erdheim-chester.org
SUMMARY:Australian/New Zealand Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/australian-new-zealand-community-chat-11/
CATEGORIES:Australian and New Zealand Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/12/A-N.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260429
DTEND;VALUE=DATE:20260501
DTSTAMP:20260604T102200
CREATED:20251030T142537Z
LAST-MODIFIED:20260410T171905Z
UID:10000955-1777420800-1777593599@www.erdheim-chester.org
SUMMARY:11th Annual ECD Patient & Family Gathering - Birmingham 2026
DESCRIPTION:Erdheim-Chester Disease Global Alliance Announces 2026 Patient & Family Gathering. \nBirmingham\, AL — The Erdheim-Chester Disease Global Alliance (ECDGA) and UAB School of Medicine invites patients\, families\, healthcare professionals\, and researchers to save the date. \n\nPatient & Family Gathering (PFG): April 29–30\, 2026\n\nWednesday\, April 29\, 2026\nMeet and Greet: 3:00 pm-5:00 pm\nLocation: Hilton at UAB Downtown \nThursday\, April 30\, 2026\nPatient & Family Gathering: 8:00 am-4:30 pm\nLocation: Marnix E. Heersink Conference Center at the University of Alabama at Birmingham \nCelebration Dinner: 6:00 pm-8:00 pm\nLocation: Hilton at UAB Downtown \nThis event will bring together the global Erdheim-Chester disease community with leading medical experts to share the latest research\, clinical insights\, and community resources. Attendees can expect educational sessions\, opportunities to connect with peers\, and updates on emerging treatments and patient care. \nFurther details on the hotel and program highlights will be released in the coming months. \nAgenda\n\n\n\n\n	TimeAllocated minutes (510 min total)Presentation Subject Possibilities (Actual Titles to be Provided by Presenters)PresenterSession Description\n\n\n\n\n	8:00 AM30Registration & Light Breakfast\n\n\n	8:30 AM15Welcome to Birmingham & PFG MeetingGaurav Goyal\, MDWelcome to the 11th Annual Erdheim-Chester Disease International Conference!  Introductions to Birmingham\, UAB and the ECD Global Alliance.\n\n\n	8:45 AM15Manifestations of histiocytosis in adultsMatthew Collin\, MD\, PhDLearn about the difference types of adult histiocytic disorders. How are they different? How are they the same?  What have we learned recently that makes us believe they are more alike than they once were.\n\n\n	9:00 AM15Histiocytosis at the Cellular LevelAstrid van Halteren\, PhDThis presentation will zoom into the different cell types which can be found in the bone marrow\, blood and tissues of patients diagnosed with histiocytosis\n\n\n	9:15 AM15ECD/Histio Treatment OptionsSam Reynolds\, MDECD/Histio Treatment Options (Current & on the horizon)\n\n\n	9:30 AM15Tagreted Therapy: The Good\, the Bad\, and the UnaffordableDaniel Sokolowski\, PharmDOverview of targeted treatments for histiocytosis and management of their adverse effects.\n\n\n	9:45 AM20BreakN/A\n\n\n	10:05 AM15Advancing treatment for histiocytic neurodegeneration through patient specific modelingNicole Coufal\, MD\, PhDThe importance of patient samples to the science\, and the importance of pilot funding and where we hope to take it in the future.\n\n\n	10:20 AM15What should I know about ECD Treatment and My Heart?  Potential cardiac side effects of ECD treatment.Carrie Lenneman\, MD\, MSCIDiscuss common medication used in treatment of ECD . Review  potential cardiac side effects and management strategies of ECD treatment.\n\n\n	10:35 AM15ECD on the BrainEli Diamond\, MDDiscussion of ECD effects on the brain.\n\n\n	10:50 AM15Endocrine Manifestations of Erdheim-Chester DiseaseAlexandra Dodd\, MDUnderstand endocrine manifestations of ECD including effects on the pituitary gland. Understand the treatments for endocrine disorders related to ECD.\n\n\n	11:05 AM40Expert Q&AJulien Haroche\, MD\, PhD\nEli Diamond\, MD\nRonald Go\, MD\nGaurav Goyal\, MD (Moderator)Ask your questions and hear the answers from ECD Medical experts. Hear up-to-date answers from those who are doing ECD research.\n\n\n	11:45 AM15PicturesN/A\n\n\n	12:00 – 1:00pm60LunchN/A\n\n\n	1:00 PM20Research Opportunities (Panel Discussion - 5 min each)Eli Diamond\, MD (Registry)\nGaurav Goyal\, MD (Survivorship)\nJithma Abeykoon\, MD (CSF1R\, ERK)\nMatthew Collins\, MD\, PhDHear the answers from ECD Medical experts about the open research opportunities.  Hear up-to-date answers from those who are doing ECD research.\n\n\n	1:20 PM20Expert Question & Answer PanelGaurav Goyal\, MD\nEli Diamond\, MD\nJithme Abeykoon\, MD\nMatthew Collins\, MD\, PhDAsk your questions and hear the answers from ECD Medical experts. Hear up-to-date answers from those who are doing ECD research.  Don’t be shy\, ask your questions about ECD in general! [Please note\, the panel is unable to provide any personal medical advise during this session.]\n\n\n	1:40 PM60Breakout SessionsKevin O'Brien\, RN\, MS-CRNP (patients) \n\nSylvia Huang\, PhD\, MA\, MEd\, FAAHPM (Caregivers)Breakout Session:\n\n- Patients: Personal Challenges in Living with Erdheim-Chester Disease\n\n- Cargivers & Family:  Addressing YOUR Emotional Needs\n\n\n	2:40 PM20BreakN/A\n\n\n	3:00 PM15General medical management for ECDKevin O'Brien\, RN\, MS-CRNPHighlighting the importance of managing ongoing general medical problems.  For example\, hypertension\, diabetes\, weight\, cholesterol levels\, etc.  These uncontrolled medical problems can compound overall disease burden.\n\n\n	3:15 PM15Emotional and Cognitive Changes in ECDSylvia Huang\, PhD\, MA\, MEd\, FAAHPMLiving with Erdheim-Chester Disease can bring emotional\, cognitive\, and fatigue-related changes that are real and often invisible. This session offers understanding\, reassurance\, and practical guidance to help patients and families make sense of these experiences. Participants will learn about supportive strategies and resources that promote resilience\, wellbeing\, and hope.\n\n\n	3:30 PM15Fatigue and Pain in Erdheim-Chester Disease: Root Causes and Practical Strategies for Energy\, Relief\, and ResilienceRichard Taylor\, PhD\, DNP\, CRNP\, APN-BCThis session is designed to empower patients and caregivers by unpacking the root causes of fatigue and pain in Erdheim-Chester Disease (ECD).\n\nThe goal is to offer meaningful\, evidence-informed tools to reduce suffering\, build resilience\, and improve energy\, mobility\, and quality of life.\n\n\n	3:45 PM15Movement is MedicineElizabeth Bohorfoush\, DPTPatients and caregivers receive guidance through gentle\, low-level exercises to help reduce pain\, build strength\, improve posture\, and encourage activity.\n\n\n	4:00 PM20Expert Question & Answer PanelKevin O'Brien\, RN\, MS-CRNP\nSylvia Huang\, PhD\, MA\, MEd\, FAAHPM\nRichard Taylor\, PhD\, DNP\, CRNP\, APN-BC\nElizabeth Bohorfoush\, DPTAsk your questions and hear the answers from the experts. Don’t be shy\, ask your questions! [Please note\, the panel is unable to provide any personal medical advise during this session.]\n\n\n	4:20 PM10ECDGA CloseJerome Henson\, ED (ECDGA)Learn more about the ECD Global Alliance.  Hear why the organization was created and what has been accomplished as a result.  Learn how the organization is able to do its work and how you can become more involved in improving the lives of all who have been impacted by Erdheim-Chester Disease.\n\n\n	510\n\n\n\n\nDownload Agenda \nRegister \nNOTE: Register before February 1st to take advantage of the early bird registration cost! Save $100 USD and register for only $100 USD! \nMark Heaney Awareness Award & Community Champion Award\nFebruary 1st\, 2026 – Last day to submit your nomination for the Mark Heaney Awareness Award & Community Champion Award. \n\nPlease submit your nominations here.\n\nMark Heaney Awareness Award.  Nominate a medical professional who is working to improve the lives of ECD patients by bringing awareness to the disease within the medical profession.\nCommunity Champion Award.  Nominate anyone (patient\, caregiver\, medical professional\, friend\, etc.) who has volunteered their time to help improve the lives of all of those impacted by ECD.\n\n\n\nContact:\nErdheim-Chester Disease Global Alliance\nEmail: support@erdheim-chester.org \nPatient Poster – Submissions\nFebruary 1\, 2026\, is the last day to complete a Patient Poster for display at the Patient & Family Gathering. Please submit your poster information here! \nTravel Scholarships\nTravel Assistance – The Glenn Padnick Memorial Travel Fund Now accepting applications for the 2026 ECDGA Conference. \nGlenn Padnick lived a full and impactful life while navigating Erdheim-Chester Disease (ECD) for decades. From 2011 to 2022\, he served with unwavering dedication on the ECD Global Alliance Board of Directors\, always ensuring that the voices and needs of patients remained central to every decision. \nIn honor of Glenn’s legacy of service and compassion\, his family generously established the Glenn Padnick Memorial Travel Fund. This fund provides financial assistance to help patients\, caregivers\, and medical professionals attend the annual ECD conference for those who may not otherwise be able to participate due to financial constraints. \nApplications are now open for travel assistance for the 2026 ECD Conference. Funding is limited\, and priority will be given to individuals who have never attended the event before. Our goal is to make this opportunity available to as many community members as possible with the resources available. \nApplication Deadline: February 1\, 2026 Award Notifications: No later than March 1\, 2026 \nApply Here: Glenn Padnick Memorial Travel Fund Request. \nConference Hotel & Travel Information\nConference Hotel\nHilton Birmingham at UAB\n808 20th Street South\nBirmingham\, AL 35205\nPhone: +1 (659) 251-1934 \nA block of rooms has been reserved at the Hilton Birmingham at UAB for conference attendees.\nRooms must be reserved by April 6\, 2026\, to receive the group rate. \nBook a Room \nIf you have any issues with booking your room\, please contact  Simon Hill at the Hilton Birmingham Downtown.  His number is 205-910-1970 and his email is simon.hill@hiltoncom. \nAirport Transportation\nBirmingham–Shuttlesworth International Airport (BHM)\nComplimentary shuttle service is available from the Birmingham airport to the hotel and is provided directly by the Hilton Downtown at UAB. \nTo use the shuttle:  \n\nCollect your luggage.\nCall the hotel at 205-933-9000 to request the shuttle.\nProceed to Door #4L and wait for the bus marked “Hilton.”\n\nTraveling via Atlanta\nHartsfield–Jackson Atlanta International Airport (ATL) is approximately 3 hours from Birmingham and offers direct international flights to most countries. Shuttle services are available between the Atlanta airport and Birmingham for travelers arriving through ATL. \nShuttle Service Link \nRegister \nOur Sponsors\nThis meeting is made possible by our sponsor\, Father Charles Balnaves of Melbourne\, Australia\, who supports this event in memory of his late wife\, Tanya. We are grateful for Father Charles’ continued\, generous sponsorship. We also appreciate the support of ARUP Laboratories.\n 
URL:https://www.erdheim-chester.org/event/11th-annual-ecd-patient-family-gathering-birmingham-2026/
LOCATION:Hilton Birmingham at UAB\, 808 20th St S\, Birmingham\, AL 35205\, Birmingham\, AL\, 35205\, United States
CATEGORIES:ECD Patient & Family Gathering,Featured
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/09/Patient-Family-Gathering-hd-v2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20260430
DTEND;VALUE=DATE:20260503
DTSTAMP:20260604T102201
CREATED:20250924T153146Z
LAST-MODIFIED:20260410T171628Z
UID:10000871-1777507200-1777766399@www.erdheim-chester.org
SUMMARY:11th Annual ECD Medical Symposium - Birmingham 2026
DESCRIPTION:Erdheim-Chester Disease Global Alliance Announces 2026 Medical Symposium \nBirmingham\, AL — The Erdheim-Chester Disease Global Alliance (ECDGA) and UAB School of Medicine invites healthcare professionals and researchers. \n\nMedical Symposium: April 30–May 2\, 2026\n\nThursday\, April 30\, 2026\nPatient & Family Gathering: 8:00am-4:30pm\nLocation: Marnix E. Heersink Conference Center at University of Alabama at Birmingham\nCelebration Dinner: 6:00pm-8:00pm\nLocation: Hilton at UAB Downtown \nFriday\, May 1\, 2026\nMedical Symposium: 8:00am-5:00pm\nLocation: Marnix E. Heersink Conference Center at University of Alabama at Birmingham\nMedical Symposium Medical Reception: 6:00pm-8:00pm\nLocation: Marnix E. Heersink Conference Center at University of Alabama at Birmingham \nSaturday\, May 2\, 2026\nECD Care Center Meeting: 8:00am-11:00am\nLocation: UAB Cancer Center \nThis event will bring together the global Erdheim-Chester disease community with leading medical experts to share the latest research\, clinical insights\, and community resources. Attendees can expect educational sessions\, opportunities to connect with peers\, and updates on emerging treatments and patient care. \nFurther details on the hotel and program highlights will be released in the coming months. \nAgenda\n\n\n\n\n	TimeSubjectPresenter\n\n\n\n\n	8:00 amRegistration & light breakfast\n\n\n	8:30 amWelcome to Birmingham and the 11th Annual Erdheim-Chester Disease International ConferenceGaurav Goyal\nUniversity of Alabama at Birmingham\, Birmingham\, AL USA\n\n\n	Keynote Address\n\n\n	8:45 am Diversity and Degeneration in\nNeurohistiocytic DiseaseNicole Coufal\nUniversity of California\, San Diego\nUSA\n\n\n	9:25 amBreak\n\n\n	Morning Abstract Presentations Session 1: Cells\, Clones & Circuits: Where Histiocytosis Begins (and Persists)\n\n\n	9:35 amARAF Mutations Drive Histiocytic Neoplasms\nIn Vivo and Provide Insights into Cellular\nOriginBenjamin Durham\nRutgers Cancer Institute\, Robert\nWood Johnson School of Medicine\,\nBrunswick\, NJ\n\n\n	9:50 amTracking BRAF V600E Persistence under MEK\nInhibition in Histiocytoses: a B-cell–enriched\nsignalJulien Haroche\nDepartment of Internal Medicine &\nE3M Institute\, Pitié-Salpêtrière\nHospital\, AP-HP – Sorbonne\nUniversity\, Paris\, France\n\n\n	10:05 amDistribution of MAP2K1 Variants Across\nPeripheral Blood Cells in Erdheim-Chester\nDisease and Other HistiocytosesIrena Ungureanu\nAmbroise-Paré Hospital\, Pathology\nDepartment\, Boulogne-Billancourt\,\nFrance\n\n\n	10:20 amThe Clonal Origin and Evolution of High-Risk\nMultisystem Histiocytosis in AdultsMatthew Collin\nNewcastle University\, United\nKingdom\n\n\n	10:35 amNetworking Break\n\n\n	Morning Abstract Presentations Session 2: Genotype → Therapy: Biomarkers\, Responses\, and New Vulnerabilities\n\n\n	10:50 amKRAS Mutations in Histiocytic Neoplasms:\nMutation Spectrum and Response to MEK\nInhibitionDongni Yi\nMayo Clinic\, Rochester\, MN USA\n\n\n	11:05 amCyclin D1 Overexpression Drives Replication\nStress and Creates Therapeutic\nVulnerabilities in Histiocytic NeoplasmsDongni Yi\nMayo Clinic\, Rochester\, MN USA\n\n\n	11:20 amClonal Hematopoiesis Predicts Response to\nInterferon-α in Erdheim-Chester Disease and\nMyeloproliferative NeoplasmsJérôme Razanamahery\nDijon University Hospital\, France\n\n\n	11:35 amImpact of Additional Genetic Variants in the\nCourse of Erdheim-Chester Disease… a\nMulticentric Longitudinal Study of 445 French\nPatientsFélicien Triboulet\nPitié-Salpêtrière hospital\, Sorbonne\nUniversity\, Paris\, France\n\n\n	11:50 amGroup Photo\n\n\n	12:00 pmLunch\n\n\n	Afternoon Abstract Presentations Session 3: Pixels to Patterns: ECD and Xanthogranuloma\n\n\n	1:00 pmCentral Nervous System Imaging\nAbnormalities in Erdheim–Chester Disease: A\nSystematic ReviewMustafa Abomohsen\nBrookdale University Hospital and\nMedical Center\, Brooklyn\, NY USA\n\n\n	1:15 pmMusculoskeletal System Imaging\nAbnormalities in Erdheim–Chester Disease: A\nSystematic ReviewMustafa Abomohsen\nBrookdale University Hospital and\nMedical Center\, Brooklyn\, NY USA\n\n\n	1:30 pmPatterns of Presentation and Outcomes in\nAdult XanthogranulomaGuneet Janda\nMayo Clinic\, Rochester\, MN USA\n\n\n	1:45 pmNetworking Break\n\n\n	Afternoon Abstract Presentations Session 4: Care in the Real World: Treatment Patterns and Survivorship\n\n\n	2:00 pmReal World Frontline Systemic Anti-Cancer\nTreatment Patterns and Outcomes in\nErdheim–Chester DiseaseCarla Isabel Borre\nMayo Clinic\, Rochester\, MN USA\n\n\n	2:15 pmBurden of Chronic Health Conditions After\nDiagnosis of Erdheim–Chester Disease\n(ECD): Early Results from the Histiocytic\nDisorder Survivor StudyGaurav Goyal\nUniversity of Alabama at\nBirmingham\, Birmingham\, AL USA\n\n\n	2:30 pmDestombes-Rosai-Dorfman Disease:\nClinical\, Molecular Characteristics and\nTreatment Response: data from a\nretrospective cohort of 107 patientsJulien Haroche\nDepartment of Internal Medicine &\nE3M Institute\, Pitié-Salpêtrière\nHospital\, AP-HP – Sorbonne\nUniversity\, Paris\, France\n\n\n	2:45 pmConsiderations for Assessment and\nTreatment of Neuropsychiatric Symptoms in\nECDAnneka Johnston\nRush University Medical Center\,\nChicago IL\n\n\n	Poster Presentations and Networking\n\n\n	3:00 pmErdheim-Chester Disease (ECD) is a Rare\nHistiocytic Neoplasm of Non-Langerhans\nCell HistiocytosisAbdalla Bowirrat\nAriel University\, Israel\n\n\n	Diagnostic challenges in mixed ErdheimChester Disease and Langerhans Cell\nHistiocytosis in a 54-year-old maleSameer Andani\nMofitt Cancer Center & University\nof South Florida\n\n\n	A Mycosis Fungoides-like Drug Reaction\nRapidly Resolving Following Switch from\nBRAF Inhibitor to MEK Inhibitor Monotherapy\nin Erdheim-Chester DiseaseSaipriya Ayyar\nUniversity of Cincinnati/UC Health\,\nCincinnati OH\n\n\n	Multimodality Imaging in Erdheim–Chester\nDisease: Radiologic Insights from Pediatric\nand Adult CasesPriyanka Naranje\nAll India Institute of Medical\nSciences\, New Delhi\, India\n\n\n	Cardiovascular System Imaging\nAbnormalities in Erdheim-Chester Disease: A\nSystematic ReviewMustafa Abomohsen\nBrookdale University Hospital and\nMedical Center\, Brooklyn\, NY USA\n\n\n	BRAF-Positive Erdheim–Chester Disease with\nProgressive Pulmonary and Vascular\nInvolvement Successfully Treated with\nVemurafenib: A Case ReportHulya Yilmaz Tekinhatun\nDiyarbakir Gazi Yasargil Training and\nResearch Hospital\, Turkey\n\n\n	Concurrent Erdheim-Chester Disease and\nClassical Hodgkin Lymphoma with\nunexpected response to lymphoma-directed\ntherapyRebecca Denson\nNew York Presbyterian-Weill Cornell\nMedicine\, New York\, NY\n\n\n	Abdominal Imaging Abnormalities in\nErdheim-Chester Disease: A Systematic\nReviewMustafa Abomohsen\nBrookdale University Hospital and\nMedical Center\, Brooklyn\, NY USA\n\n\n	Prevalence and distribution of ErdheimChester Disease in the UK estimated from\nreferral to a National Advisory PanelMatthew Collin\nNewcastle University\, United\nKingdom\n\n\n	Challenging Case Study\n\n\n	3:45 pmAll that glitters: retro-orbital\nxanthogranuloma or ECD?Matthew Collin\nNewcastle University\, United\nKingdom\n\n\n	Challenging Case Study\n\n\n	4:15 pmThe Clue Was the Blood Pressure: Atypical\nErdheim–Chester DiseaseJithma Abeykoon\nMayo Clinic\, Rochester\, MN USA\n\n\n	Closing Remarks & Student Abstract Award\n\n\n	4:45 pmECD Global Alliance into the FutureJerome Henson\nExecutive Director\, ECD Global\nAlliance\, DeRidder\, LA USA\n\n\n	4:55 pmJunior Investigator – Best Student\nPresentation AwardOshrat Hershkovitz-Rokah\nAriel University & Assut\n\n\n\n\nDownload Agenda \nRegister \nNOTE: Register before February 1st to take advantage of the early bird registration cost! Save $200 USD and register for only $300 USD! \nMark Heaney Awareness Award & Community Champion Award\nFebruary 1st\, 2026 – Last day to submit your nomination for the Mark Heaney Awareness Award & Community Champion Award . \n\nPlease submit your nominations here.\n\nMark Heaney Awareness Award.  Nominate a medical professional who is working to improve the lives of ECD patients by bringing awareness to the disease within the medical profession.\nCommunity Champion Award.  Nominate anyone (patient\, caregiver\, medical professional\, friend\, etc.) who has volunteered their time to help improve the lives of all of those impacted by ECD.\n\n\n\nOral / Poster Presentation Abstracts\nFebruary 1\, 2026- Abstracts Due. \n\nAbstract submissions for the Medical Symposium on 1 May\, are accepted here  Please submit abstracts for oral and/or poster presentation.  This is a great opportunity to share your work and the work of your colleagues.  Please let them know of the opportunity.\n\nTravel Scholarships\nTravel Assistance – The Glenn Padnick Memorial Travel Fund Now accepting applications for the 2026 ECDGA Conference. \nGlenn Padnick lived a full and impactful life while navigating Erdheim-Chester Disease (ECD) for decades. From 2011 to 2022\, he served with unwavering dedication on the ECD Global Alliance Board of Directors\, always ensuring that the voices and needs of patients remained central to every decision. \nIn honor of Glenn’s legacy of service and compassion\, his family generously established the Glenn Padnick Memorial Travel Fund. This fund provides financial assistance to help patients\, caregivers\, and medical professionals attend the annual ECD conference for those who may not otherwise be able to participate due to financial constraints. \nApplications are now open for travel assistance for the 2026 ECD Conference. Funding is limited\, and priority will be given to individuals who have never attended the event before. Our goal is to make this opportunity available to as many community members as possible with the resources available. \nApplication Deadline: February 1\, 2026 Award Notifications: No later than March 1\, 2026 \nApply Here: Glenn Padnick Memorial Travel Fund Request. \nConference Hotel & Travel Information\nConference Hotel\nHilton Birmingham at UAB\n808 20th Street South\nBirmingham\, AL 35205\nPhone: +1 (659) 251-1934 \nA block of rooms has been reserved at the Hilton Birmingham at UAB for conference attendees.\nRooms must be reserved by April 6\, 2026\, to receive the group rate. \nBook a Room \nIf you have any issues with booking your room\, please contact  Simon Hill at the Hilton Birmingham Downtown.  His number is 205-910-1970 and his email is simon.hill@hiltoncom. \nAirport Transportation\nBirmingham–Shuttlesworth International Airport (BHM)\nComplimentary shuttle service is available from the Birmingham airport to the hotel and is provided directly by the Hilton Downtown at UAB. \nTo use the shuttle:  \n\nCollect your luggage.\nCall the hotel at 205-933-9000 to request the shuttle.\nProceed to Door #4L and wait for the bus marked “Hilton.”\n\nTraveling via Atlanta\nHartsfield–Jackson Atlanta International Airport (ATL) is approximately 3 hours from Birmingham and offers direct international flights to most countries. Shuttle services are available between the Atlanta airport and Birmingham for travelers arriving through ATL. \nShuttle Service Link \nContact:\nErdheim-Chester Disease Global Alliance\nEmail: support@erdheim-chester.org \nRegister \nOur Sponsors\n 
URL:https://www.erdheim-chester.org/event/11th-annual-ecd-medical-symposium-birmingham-2026/
LOCATION:Hilton Birmingham at UAB\, 808 20th St S\, Birmingham\, AL 35205\, Birmingham\, 35205\, United States
CATEGORIES:ECD Medical Symposium,Featured
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/09/Medical-Symposium-hd-v2.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260512T130000
DTEND;TZID=America/Chicago:20260512T140000
DTSTAMP:20260604T102201
CREATED:20260506T123856Z
LAST-MODIFIED:20260506T123856Z
UID:10001430-1778590800-1778594400@www.erdheim-chester.org
SUMMARY:Caregiver Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/caregiver-community-chat-12/
CATEGORIES:Caregiver Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Caregiver-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260519T110000
DTEND;TZID=America/Chicago:20260519T120000
DTSTAMP:20260604T102201
CREATED:20260506T123951Z
LAST-MODIFIED:20260506T123951Z
UID:10001431-1779188400-1779192000@www.erdheim-chester.org
SUMMARY:Spanish Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/spanish-community-chat-9/
CATEGORIES:Spanish Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Spanish-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260521T110000
DTEND;TZID=America/Chicago:20260521T120000
DTSTAMP:20260604T102201
CREATED:20260506T124103Z
LAST-MODIFIED:20260506T124103Z
UID:10001443-1779361200-1779364800@www.erdheim-chester.org
SUMMARY:Canadian Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/canadian-community-chat-11/
CATEGORIES:Canadian Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/download-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260522T043000
DTEND;TZID=America/Chicago:20260522T053000
DTSTAMP:20260604T102201
CREATED:20260506T124230Z
LAST-MODIFIED:20260506T124230Z
UID:10001449-1779424200-1779427800@www.erdheim-chester.org
SUMMARY:Australian/New Zealand Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/australian-new-zealand-community-chat-12/
CATEGORIES:Australian and New Zealand Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/12/A-N.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260526T130000
DTEND;TZID=America/Chicago:20260526T140000
DTSTAMP:20260604T102201
CREATED:20260506T124359Z
LAST-MODIFIED:20260506T124359Z
UID:10001467-1779800400-1779804000@www.erdheim-chester.org
SUMMARY:Peer-to-Peer Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/peer-to-peer-community-chat-10/
CATEGORIES:Peer-to-Peer Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Peer-to-Peer-Chat-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260609T130000
DTEND;TZID=America/Chicago:20260609T140000
DTSTAMP:20260604T102201
CREATED:20260526T030702Z
LAST-MODIFIED:20260526T030702Z
UID:10001514-1781010000-1781013600@www.erdheim-chester.org
SUMMARY:Caregiver Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/caregiver-community-chat-13/
CATEGORIES:Caregiver Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Caregiver-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260616T110000
DTEND;TZID=America/Chicago:20260616T120000
DTSTAMP:20260604T102201
CREATED:20260526T030752Z
LAST-MODIFIED:20260526T030752Z
UID:10001515-1781607600-1781611200@www.erdheim-chester.org
SUMMARY:Spanish Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/spanish-community-chat-10/
CATEGORIES:Spanish Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Spanish-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260618T040000
DTEND;TZID=America/Chicago:20260618T050000
DTSTAMP:20260604T102201
CREATED:20260526T031107Z
LAST-MODIFIED:20260526T031107Z
UID:10001539-1781755200-1781758800@www.erdheim-chester.org
SUMMARY:Australian/New Zealand Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/australian-new-zealand-community-chat-13/
CATEGORIES:Australian and New Zealand Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/05/australia-june.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260618T130000
DTEND;TZID=America/Chicago:20260618T140000
DTSTAMP:20260604T102201
CREATED:20260526T030939Z
LAST-MODIFIED:20260526T030939Z
UID:10001521-1781787600-1781791200@www.erdheim-chester.org
SUMMARY:Canadian Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/canadian-community-chat-12/
CATEGORIES:Canadian Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/download-5.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260630T130000
DTEND;TZID=America/Chicago:20260630T140000
DTSTAMP:20260604T102201
CREATED:20260526T031154Z
LAST-MODIFIED:20260526T031154Z
UID:10001551-1782824400-1782828000@www.erdheim-chester.org
SUMMARY:Peer-to-Peer Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/peer-to-peer-community-chat-11/
CATEGORIES:Peer-to-Peer Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Peer-to-Peer-Chat-1.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260709T080000
DTEND;TZID=America/Chicago:20260709T090000
DTSTAMP:20260604T102201
CREATED:20260528T141730Z
LAST-MODIFIED:20260528T141730Z
UID:10001598-1783584000-1783587600@www.erdheim-chester.org
SUMMARY:French Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/french-community-chat-5/
CATEGORIES:French Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/French-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260713T110000
DTEND;TZID=America/Chicago:20260713T120000
DTSTAMP:20260604T102201
CREATED:20260526T031328Z
LAST-MODIFIED:20260526T031328Z
UID:10001563-1783940400-1783944000@www.erdheim-chester.org
SUMMARY:German Community Chat
DESCRIPTION:Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nRegister Today \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/german-community-chat-4/
CATEGORIES:German Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/German-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260714T110000
DTEND;TZID=America/Chicago:20260714T120000
DTSTAMP:20260604T102201
CREATED:20260526T031418Z
LAST-MODIFIED:20260526T031418Z
UID:10001575-1784026800-1784030400@www.erdheim-chester.org
SUMMARY:Italian Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/italian-community-chat-4/
CATEGORIES:Italian Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Italian-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270801
DTEND;VALUE=DATE:20270901
DTSTAMP:20260604T102201
CREATED:20260519T170441Z
LAST-MODIFIED:20260531T142109Z
UID:10001490-1817078400-1819756799@www.erdheim-chester.org
SUMMARY:12th Annual ECD Patient & Family Gathering – Glasgow\, Scotland 2027
DESCRIPTION:We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held in Glasgow\, Scotland in August 2027. This special event will bring together patients\, families\, researchers\, clinicians\, and advocates from around the world to connect\, learn\, and support one another. The gathering will be held in conjunction with the Histiocyte Society meeting. Additional details\, including exact dates\, venue information\, and registration details\, will be announced soon.
URL:https://www.erdheim-chester.org/event/12th-annual-ecd-patient-family-gathering-glasgow-scotland-2027/
CATEGORIES:ECD Patient & Family Gathering,Featured
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2026/05/patients-and-families-1800-1200.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270801
DTEND;VALUE=DATE:20270901
DTSTAMP:20260604T102201
CREATED:20260519T170446Z
LAST-MODIFIED:20260531T142121Z
UID:10001491-1817078400-1819756799@www.erdheim-chester.org
SUMMARY:12th Annual ECD Medical Symposium – Glasgow\, Scotland 2027
DESCRIPTION:We are excited to announce that the 12th Annual ECDGA Medical Symposium will be held in Glasgow\, Scotland in August 2027. This special event will bring together researchers and clinicians from around the world to connect\, learn\, and support one another. The gathering will be held in conjunction with the Histiocyte Society meeting. Additional details\, including exact dates\, venue information\, and registration details\, will be announced soon.
URL:https://www.erdheim-chester.org/event/12th-annual-ecd-medical-symposium-glasgow-scotland-2027/
CATEGORIES:ECD Medical Symposium,Featured
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2026/05/medical-professionals-1800-1200.jpg
END:VEVENT
END:VCALENDAR