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X-WR-CALNAME:Erdheim-Chester Disease Global Alliance
X-ORIGINAL-URL:https://www.erdheim-chester.org
X-WR-CALDESC:Events for Erdheim-Chester Disease Global Alliance
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TZID:America/Chicago
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DTSTART:20250309T080000
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261029T173000
DTEND;TZID=America/Chicago:20261029T183000
DTSTAMP:20260930T194803Z
CREATED:20260930T194803Z
LAST-MODIFIED:20260930T194803Z
UID:10001697-1793295000-1793298600@www.erdheim-chester.org
SUMMARY:Portuguese-Speaking Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/portuguese-speaking-community-chat-3/
CATEGORIES:Portuguese-Speaking Community Chat
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/07/4647cbca-977f-4aa2-bd46-edf098e57384.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261029T130000
DTEND;TZID=America/Chicago:20261029T140000
DTSTAMP:20260930T195037Z
CREATED:20260930T195037Z
LAST-MODIFIED:20260930T195037Z
UID:10001700-1793278800-1793282400@www.erdheim-chester.org
SUMMARY:Canadian Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/canadian-community-chat-16/
CATEGORIES:Canadian Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/08/Canadian-Community-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261027T130000
DTEND;TZID=America/Chicago:20261027T140000
DTSTAMP:20260930T195318Z
CREATED:20260930T195318Z
LAST-MODIFIED:20260930T195318Z
UID:10001702-1793106000-1793109600@www.erdheim-chester.org
SUMMARY:Peer-to-Peer Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/peer-to-peer-community-chat-14-2/
CATEGORIES:Peer-to-Peer Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Peer-to-Peer-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261020T110000
DTEND;TZID=America/Chicago:20261020T120000
DTSTAMP:20260930T195000Z
CREATED:20260930T195000Z
LAST-MODIFIED:20260930T195000Z
UID:10001699-1792494000-1792497600@www.erdheim-chester.org
SUMMARY:Spanish Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/spanish-community-chat-13/
CATEGORIES:Spanish Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Spanish-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261016T200000
DTEND;TZID=America/Chicago:20261016T210000
DTSTAMP:20260930T195225Z
CREATED:20260930T195128Z
LAST-MODIFIED:20260930T195225Z
UID:10001701-1792180800-1792184400@www.erdheim-chester.org
SUMMARY:Australian/New Zealand Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/australian-new-zealand-community-chat-17/
CATEGORIES:Australian and New Zealand Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/09/Australia-NZ-Chat-Oct-17-2026.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261015T130000
DTEND;TZID=America/Chicago:20261015T140000
DTSTAMP:20260924T041934Z
CREATED:20260924T041934Z
LAST-MODIFIED:20260924T041934Z
UID:10001696-1792069200-1792072800@www.erdheim-chester.org
SUMMARY:Topic: Kidney disease in patients with histiocytosis
DESCRIPTION:Speaker: Augusto Vaglio\, MD\, PhD\nNephrologist\nAOU Meyer\, Firenze\, Italy\nDate: Thursday\, October 15\, 2026\nTime: 1:00 PM CT \nDr Vaglio graduated at the University of Parma (Italy) in 2000\, and at the same institution completed his Nephrology post-graduate fellowship (2005) and his PhD (2009). In 2005-2006 he was post-doctoral fellow at the Lowance Center for Human Immunology of the Emory University\, Atlanta\, USA. \nDr Vaglio’s research interests include systemic vasculitis\, lupus nephritis\, retroperitoneal fibrosis and IgG4 related disease\, and Erdheim-Chester disease. He is a member of the scientific council of the European Vasculitis Society (EUVAS) and coordinates the European EGPA study group. He published >300 papers in international\, peer-reviewed journals and lectured in >60 International Meetings. He is Associate Editor of Nephrology Dialysis and Transplantation. Dr Vaglio currently serves as Director of the Post-Graduate Fellowship program in Nephrology at the University of Florence\, Italy\, where he is Associate Professor of Nephrology.\n Register Here
URL:https://www.erdheim-chester.org/event/topic-kidney-disease-in-patients-with-histiocytosis/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/09/Dr.-Vaglio.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261013T130000
DTEND;TZID=America/Chicago:20261013T140000
DTSTAMP:20260930T194915Z
CREATED:20260930T194915Z
LAST-MODIFIED:20260930T194915Z
UID:10001698-1791896400-1791900000@www.erdheim-chester.org
SUMMARY:Caregiver Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/caregiver-community-chat-17/
CATEGORIES:Caregiver Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Caregiver-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261013T110000
DTEND;TZID=America/Chicago:20261013T120000
DTSTAMP:20260930T195632Z
CREATED:20260930T195632Z
LAST-MODIFIED:20260930T195632Z
UID:10001703-1791889200-1791892800@www.erdheim-chester.org
SUMMARY:Italian Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/italian-community-chat-5/
CATEGORIES:Italian Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Italian-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261008T080000
DTEND;TZID=America/Chicago:20261008T090000
DTSTAMP:20260826T141850Z
CREATED:20260826T141850Z
LAST-MODIFIED:20260826T141850Z
UID:10001694-1791446400-1791450000@www.erdheim-chester.org
SUMMARY:French Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/french-community-chat-6/
CATEGORIES:French Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/French-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260929T130000
DTEND;TZID=America/Chicago:20260929T140000
DTSTAMP:20260826T141806Z
CREATED:20260826T141806Z
LAST-MODIFIED:20260826T141806Z
UID:10001693-1790686800-1790690400@www.erdheim-chester.org
SUMMARY:Peer-to-Peer Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/peer-to-peer-community-chat-14-2/
CATEGORIES:Peer-to-Peer Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Peer-to-Peer-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260922T110000
DTEND;TZID=America/Chicago:20260922T120000
DTSTAMP:20260826T162643Z
CREATED:20260826T145434Z
LAST-MODIFIED:20260826T162643Z
UID:10001695-1790074800-1790078400@www.erdheim-chester.org
SUMMARY:Erdheim-Chester Disease (ECD): Educational guidance for patients\, families\, and medical practitioners
DESCRIPTION:Speaker: Dr. Hind Salama\, Consultant\nHematology/Oncology at King Abdulaziz Medical City\nRiyadh/Saudi Arabia\nDate: Tuesday\, September 22\, 2026\nTime: 11:00 AM CDT \nDr. Hind Salama is a Consultant Adult Hematologist at King Abdulaziz Medical City (KAMC) in Riyadh\, Saudi Arabia\, and an Assistant Professor at King Saud bin Abdulaziz University for Health Sciences (KASU). She is recognized as a leading specialist in adult hematology\, with a strong focus on acute lymphoblastic leukemia (ALL) and histiocytic diseases. Register Here
URL:https://www.erdheim-chester.org/event/erdheim-chester-disease-ecd-educational-guidance-for-patients-families-and-medical-practitioners/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/08/Educational-guidance-for-patients-families-and-medical.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260918T210000
DTEND;TZID=America/Chicago:20260918T220000
DTSTAMP:20260826T141727Z
CREATED:20260826T141727Z
LAST-MODIFIED:20260826T141727Z
UID:10001692-1789765200-1789768800@www.erdheim-chester.org
SUMMARY:Australian/New Zealand Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/australian-new-zealand-community-chat-16/
CATEGORIES:Australian and New Zealand Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/08/Australia-and-New-Zealand-Chat-v1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260917T173000
DTEND;TZID=America/Chicago:20260917T183000
DTSTAMP:20260826T141511Z
CREATED:20260826T141511Z
LAST-MODIFIED:20260826T141511Z
UID:10001691-1789666200-1789669800@www.erdheim-chester.org
SUMMARY:Portuguese-Speaking Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/portuguese-speaking-community-chat-2/
CATEGORIES:Portuguese-Speaking Community Chat
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/07/4647cbca-977f-4aa2-bd46-edf098e57384.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260917T130000
DTEND;TZID=America/Chicago:20260917T140000
DTSTAMP:20260826T141410Z
CREATED:20260826T141410Z
LAST-MODIFIED:20260826T141410Z
UID:10001690-1789650000-1789653600@www.erdheim-chester.org
SUMMARY:Canadian Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/canadian-community-chat-15/
CATEGORIES:Canadian Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/08/Canadian-Community-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260915T110000
DTEND;TZID=America/Chicago:20260915T120000
DTSTAMP:20260730T021243Z
CREATED:20260730T021243Z
LAST-MODIFIED:20260730T021243Z
UID:10001684-1789470000-1789473600@www.erdheim-chester.org
SUMMARY:Spanish Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/spanish-community-chat-12/
CATEGORIES:Spanish Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Spanish-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260908T130000
DTEND;TZID=America/Chicago:20260908T140000
DTSTAMP:20260826T141308Z
CREATED:20260826T141308Z
LAST-MODIFIED:20260826T141308Z
UID:10001689-1788872400-1788876000@www.erdheim-chester.org
SUMMARY:Caregiver Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/caregiver-community-chat-16/
CATEGORIES:Caregiver Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Caregiver-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260825T130000
DTEND;TZID=America/Chicago:20260825T140000
DTSTAMP:20260817T121822Z
CREATED:20260730T052615Z
LAST-MODIFIED:20260817T121822Z
UID:10001688-1787662800-1787666400@www.erdheim-chester.org
SUMMARY:Peer-to-Peer Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/peer-to-peer-community-chat-13/
CATEGORIES:Peer-to-Peer Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Peer-to-Peer-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260821T210000
DTEND;TZID=America/Chicago:20260821T220000
DTSTAMP:20260805T133853Z
CREATED:20260730T052334Z
LAST-MODIFIED:20260805T133853Z
UID:10001687-1787346000-1787349600@www.erdheim-chester.org
SUMMARY:Australian/New Zealand Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/australian-new-zealand-community-chat-15/
CATEGORIES:Australian and New Zealand Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/07/download-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260818T130000
DTEND;TZID=America/Chicago:20260818T140000
DTSTAMP:20260730T040110Z
CREATED:20260730T040110Z
LAST-MODIFIED:20260730T040110Z
UID:10001686-1787058000-1787061600@www.erdheim-chester.org
SUMMARY:Portuguese-Speaking Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/portuguese-speaking-community-chat/
CATEGORIES:Portuguese-Speaking Community Chat
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/07/4647cbca-977f-4aa2-bd46-edf098e57384.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260813T130000
DTEND;TZID=America/Chicago:20260813T140000
DTSTAMP:20260825T171121Z
CREATED:20260730T021523Z
LAST-MODIFIED:20260825T171121Z
UID:10001685-1786626000-1786629600@www.erdheim-chester.org
SUMMARY:Canadian Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/canadian-community-chat-14/
CATEGORIES:Canadian Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/08/Canadian-Community-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260811T130000
DTEND;TZID=America/Chicago:20260811T140000
DTSTAMP:20260825T171102Z
CREATED:20260730T020918Z
LAST-MODIFIED:20260825T171102Z
UID:10001683-1786453200-1786456800@www.erdheim-chester.org
SUMMARY:Caregiver Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/caregiver-community-chat-15/
CATEGORIES:Caregiver Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Caregiver-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260728T130000
DTEND;TZID=America/Chicago:20260728T140000
DTSTAMP:20260825T170644Z
CREATED:20260703T043337Z
LAST-MODIFIED:20260825T170644Z
UID:10001659-1785243600-1785247200@www.erdheim-chester.org
SUMMARY:Peer-to-Peer Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/peer-to-peer-community-chat-12/
CATEGORIES:Peer-to-Peer Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Peer-to-Peer-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260723T130000
DTEND;TZID=America/Chicago:20260723T140000
DTSTAMP:20260825T170543Z
CREATED:20260703T043101Z
LAST-MODIFIED:20260825T170543Z
UID:10001624-1784811600-1784815200@www.erdheim-chester.org
SUMMARY:Canadian Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/canadian-community-chat-13/
CATEGORIES:Canadian Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/08/Canadian-Community-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260723T040000
DTEND;TZID=America/Chicago:20260723T050000
DTSTAMP:20260825T171841Z
CREATED:20260703T043245Z
LAST-MODIFIED:20260825T171841Z
UID:10001646-1784779200-1784782800@www.erdheim-chester.org
SUMMARY:Australian/New Zealand Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/australian-new-zealand-community-chat-14/
CATEGORIES:Australian and New Zealand Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Australia-NZ-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260721T110000
DTEND;TZID=America/Chicago:20260721T120000
DTSTAMP:20260703T043016Z
CREATED:20260703T043016Z
LAST-MODIFIED:20260703T043016Z
UID:10001623-1784631600-1784635200@www.erdheim-chester.org
SUMMARY:Spanish Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/spanish-community-chat-11/
CATEGORIES:Spanish Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Spanish-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260716T120000
DTEND;TZID=America/Chicago:20260716T130000
DTSTAMP:20260705T201201Z
CREATED:20260705T201201Z
LAST-MODIFIED:20260705T201201Z
UID:10001682-1784203200-1784206800@www.erdheim-chester.org
SUMMARY:Topic: Erdheim-Chester Disease (ECD) & Histiocytosis: The Diagnosis is only the beginning - From disease biology to treatment options
DESCRIPTION:Speaker: Oshrat Rokah\, PhD\nMolecular Research Laboratory\nAssuta Medical Center\nTel-Aviv\, Israel\nDate: Thursday\, July 16\, 2026\nTime: 12:00 PM CDT \nDr. Oshrat Rokah is the head of the Molecular Research Lab at Assuta Medical Center\, located in Tel Aviv\, Israel. She holds a PhD from the Department of Genetics in the Faculty of Medicine at Tel Aviv University. Dr. Rokah’s group were pioneers in studying microRNA expression in Erdheim-Chester Disease\, contributing to a better understanding of the molecular mechanisms underlying the development of the disease and opening new avenues for therapeutic treatment. She works in close cooperation with clinical professionals\, physicians\, and scientists to target real clinical needs and deficiencies. As part of the dedicated clinic at Assuta Medical Center for histiocytic neoplasms\, her lab is investigating the role of epigenetic mechanisms in these neoplasms. Register Here
URL:https://www.erdheim-chester.org/event/topic-erdheim-chester-disease-ecd-histiocytosis-the-diagnosis-is-only-the-beginning-from-disease-biology-to-treatment-options/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/07/new-webinar.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260714T130000
DTEND;TZID=America/Chicago:20260714T140000
DTSTAMP:20260825T170230Z
CREATED:20260703T042933Z
LAST-MODIFIED:20260825T170230Z
UID:10001622-1784034000-1784037600@www.erdheim-chester.org
SUMMARY:Caregiver Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/caregiver-community-chat-14/
CATEGORIES:Caregiver Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Caregiver-Chat.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260714T110000
DTEND;TZID=America/Chicago:20260714T120000
DTSTAMP:20260526T031418Z
CREATED:20260526T031418Z
LAST-MODIFIED:20260526T031418Z
UID:10001575-1784026800-1784030400@www.erdheim-chester.org
SUMMARY:Italian Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/italian-community-chat-4/
CATEGORIES:Italian Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Italian-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260713T110000
DTEND;TZID=America/Chicago:20260713T120000
DTSTAMP:20260526T031328Z
CREATED:20260526T031328Z
LAST-MODIFIED:20260526T031328Z
UID:10001563-1783940400-1783944000@www.erdheim-chester.org
SUMMARY:German Community Chat
DESCRIPTION:Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nRegister Today \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/german-community-chat-4/
CATEGORIES:German Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/German-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260709T080000
DTEND;TZID=America/Chicago:20260709T090000
DTSTAMP:20260528T141730Z
CREATED:20260528T141730Z
LAST-MODIFIED:20260528T141730Z
UID:10001598-1783584000-1783587600@www.erdheim-chester.org
SUMMARY:French Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/french-community-chat-5/
CATEGORIES:French Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/French-Chat.jpg
END:VEVENT
END:VCALENDAR