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X-WR-CALNAME:Erdheim-Chester Disease Global Alliance
X-ORIGINAL-URL:https://www.erdheim-chester.org
X-WR-CALDESC:Events for Erdheim-Chester Disease Global Alliance
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DTSTART;TZID=America/Chicago:20210720T120000
DTEND;TZID=America/Chicago:20210720T130000
DTSTAMP:20260604T094049
CREATED:20250826T125935Z
LAST-MODIFIED:20250910T094016Z
UID:10000727-1626782400-1626786000@www.erdheim-chester.org
SUMMARY:Erdheim-Chester disease: A review of updated guidelines in the molecular era
DESCRIPTION:In this review of the latest ECD Consensus Guidelines 2020\, the presentation and discussion are tailored for the medical professional community. Please share with your colleagues or care team.\nRecorded November 2020
URL:https://www.erdheim-chester.org/event/erdheim-chester-disease-a-review-of-updated-guidelines-in-the-molecular-era/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Erdheim-Chester-disease-A-review-of-updated-guidelines-in-the-molecular-era.png
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210629T120000
DTEND;TZID=America/Chicago:20210629T130000
DTSTAMP:20260604T094049
CREATED:20250826T130616Z
LAST-MODIFIED:20250910T135755Z
UID:10000763-1624968000-1624971600@www.erdheim-chester.org
SUMMARY:Understanding the NCCN Clinical Practice Guidelines for Histiocytic Neoplasms
DESCRIPTION:Watch webinar on youtube \nA review of the recently published National Comprehensive Cancer Network (NCCN) Guidelines® for Histiocytosis. The NCCN developed these new clinical practice guidelines to provide the latest evidence and expert consensus for diagnosing and treating the three most common forms of histiocytosis in adults: Langerhans cell histiocytosis (LCH)\, Erdheim-Chester disease (ECD)\, and Rosai-Dorfman disease.\nRecorded June 2021
URL:https://www.erdheim-chester.org/event/understanding-the-nccn-clinical-practice-guidelines-for-histiocytic-neoplasms/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Understanding-the-NCCN-Clinical-Practice-Guidelines-for-Histiocytic-Neoplasms.png
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210624T120000
DTEND;TZID=America/Chicago:20210624T130000
DTSTAMP:20260604T094049
CREATED:20250826T130147Z
LAST-MODIFIED:20250910T094751Z
UID:10000751-1624536000-1624539600@www.erdheim-chester.org
SUMMARY:Endocrine Conditions in Erdheim-Chester Disease
DESCRIPTION:This webinar\, co-hosted by the Histiocytosis Association and Erdheim-Chester Disease Global Alliance focused on ECD and covers endocrine conditions and their management across all histiocytic disorders.\nRecorded March 2021
URL:https://www.erdheim-chester.org/event/endocrine-conditions-in-erdheim-chester-disease/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Endocrine-Conditions-in-Erdheim-Chester-Disease.png
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210624T120000
DTEND;TZID=America/Chicago:20210624T130000
DTSTAMP:20260604T094049
CREATED:20250826T130035Z
LAST-MODIFIED:20250910T094317Z
UID:10000739-1624536000-1624539600@www.erdheim-chester.org
SUMMARY:Histio Patient Needs: A Focus on the Eyes and Vision
DESCRIPTION:In this webinar\, the doctors at Memorial Sloan Kettering Cancer Center (MSK) help further your understanding of how current eye involvement may affect daily life and how to obtain better outcomes and results. This will also be of interest to those patients that do not have any current eye involvement\, but their upcoming treatments may cause eye concerns.\nRecorded February 2021
URL:https://www.erdheim-chester.org/event/histio-patient-needs-a-focus-on-the-eyes-and-vision/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Histio-Patient-Needs-A-Focus-on-the-Eyes-and-Vision.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20200701T120000
DTEND;TZID=America/Chicago:20200701T130000
DTSTAMP:20260604T094049
CREATED:20250826T125837Z
LAST-MODIFIED:20250910T093813Z
UID:10000715-1593604800-1593608400@www.erdheim-chester.org
SUMMARY:Using ECD Consensus Recommendations: Advocating for your health
DESCRIPTION:An educational webinar was held to explain the newest Erdheim-Chester Disease (ECD) consensus document and learn how to use it for care and payer support.  Questions answered following the meeting are posted here.\nRecorded June 2020
URL:https://www.erdheim-chester.org/event/using-ecd-consensus-recommendations-advocating-for-your-health/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Using-ECD-Consensus-Recommendations-Advocating-for-your-health.png
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