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X-WR-CALDESC:Events for Erdheim-Chester Disease Global Alliance
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DTSTART;TZID=America/Chicago:20260625T130000
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SUMMARY:Topic: Managing ECD Pain & Fatigue
DESCRIPTION:Speaker: Kevin O’Brien\nRN\, MS-CRNP\, Nurse Practitioner\,\nClinical Investigator\, Genome Research Institute\,\nNational Institutes of Health\nDate: Thursday\, June 25\, 2026\nTime: 1:00 PM CDT \nKevin O’Brien is a nurse practitioner and clinical investigator at the National Human Genome Research Institute (NHGRI) of the National Institutes of Health in Bethesda\, Maryland. He earned his Bachelor of Science degree from Johns Hopkins University and his Master of Science and Nurse Practitioner degree from the University of Maryland. \nKevin has played a key role in NHGRI clinical research\, including protocol 15-HG-0006\, a clinical trial investigating dabrafenib and trametinib in BRAF-positive patients with Erdheim-Chester disease (ECD)\, as well as the Natural History of ECD study. Register Here
URL:https://www.erdheim-chester.org/event/managing-ecd-pain-fatigue/
CATEGORIES:Webinars
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