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X-WR-CALDESC:Events for Erdheim-Chester Disease Global Alliance
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CREATED:20250519T064843Z
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UID:10000045-1750788000-1750791600@www.erdheim-chester.org
SUMMARY:Grief Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/event/grief-community-chat-june-2025/
CATEGORIES:Grief Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Grief-Chat.jpg
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DTSTART;TZID=America/Chicago:20250419T123000
DTEND;TZID=America/Chicago:20250419T133000
DTSTAMP:20260604T063333
CREATED:20250418T192848Z
LAST-MODIFIED:20250614T000835Z
UID:10000030-1745065800-1745069400@www.erdheim-chester.org
SUMMARY:Grief Community Chats Event 04/19/2025
DESCRIPTION:Date: 19 April\, 2025\nTime: 01:30 pm to 02:30 pm \nRegister Today
URL:https://www.erdheim-chester.org/event/grief-community-chats-event-04-19-2025/
CATEGORIES:Grief Community Chats
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