Caregiver Community Chat
2025-05-13 19:00 - 20:00, 2025-06-10 18:00 - 19:00, 2025-07-08 18:00 - 19:00, 2025-08-12 18:00 - 19:00, 2025-09-09 19:00 - 20:00, 2025-10-14 19:00 - 20:00, 2025-11-18 19:00 - 20:00 (America/Chicago)
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Chats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues, treatments, tests, knowledgeable doctors, symptoms, treatment side effects, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other.
Please read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar.
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There will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
